Logan’s Life

Logan, who is 4 years old, was born with a rare genetic condition called NF1 – Noonans. Logan requires round the clock care and due to the complexity of his condition, the treatment needed to hopefully improve his health is only available in London.

 
NF1 is a genetic condition, said in full as Neurofibromatosis, which affects 1 in every 2,500 people. With the added complication of Noonans these statistics become more difficult to gauge, affecting far less people.


NF1 causes tumors to grow anywhere in or on the body along the nervous system. Every day a baby in the UK is born with the condition, making it more prevalent than cystic fibrosis, Duchenne muscular dystrophy and Huntington's Disease combined. There is no cure. Many of those with NF can have multiple medical, physical and psychological complications including tumors, learning difficulties and speech problems.

 
Due to ongoing issues with Logan’s respiratory system he requires oxygen and his parents are looking to purchase an oxygen stats machine to keep at home, this is the first of a number of items of equipment the funds raised will go towards.


Further to this, due to the treatment needed only being available in London – his Mum and Dad need to fund each trip themselves. Again funds raised will help towards these costs, which will be on-going for Logan’s lifetime.

Any donation big or small would be greatly appreciated towards this fantastic cause.

An initial fundraising target has been set but as this is lifelong I am hoping we can massively bypass it to help support Logan’s Mum and Dad cover the cost of anything required to ensure he gets the care needed.

Thanks so much in advance for any help that can be given xxx