Donating Money For Skyla

Hello, I am trying to raise money for my daughter Skyla. Skyla was diagnosed in 2002 with epilepsy. At first her seizures would happen when she got fever. Then she grew out of them and went straight into the absence seizures. They lasted for a few years, and as she grew older her seizures increased more and more. Skyla now has the worst kind of seizures possible. Skyla is now experiencing the Tonic Clonic Seizures. Skyla has a total of 223 seizures a day, and 300 silent ones, according to her Vns Stimulator / Eeg reports. We have tried 12 different medication and she has failed them all, she has a two Vns Stimulator in and they both haven’t helped her either. Skyla has done the Keto diet and it wasn’t successful. So now we were told a few weeks ago by her doctors that there wasn’t nothing else they can do. I have registered her for the Cannabinol oil card here in Indiana, but have had no luck getting any yet to see if it would help her. But, until then I have reached out to Boston, Massachusetts Children’s Hospital and I have made her an appointment for January 9, 2018. This was the earliest they had, but they told me that Skyla would be staying at least a week there for they can do some medical treatment trials, and their own 48 eeg. So since we live in Indiana, we are needing to raise money for travel expenses and Medicine that’s not covered by her insurance. This is our first time doing this, so if you can kindly donate anything to help her out that would be great. This trip could very well be the miracle that Skyla needs. Also, Boston, Massachusetts Children’s Hospital is rated #1 by the Us Times. Skyla is also at a very high risk for SUDEP. As, of today Skyla seizures have been worsening, she has been in and out of the hospital because of them. This is something serious and we need to find a cure or something to help slow them down. Skyla, isn’t her self anymore, she wants to sleep all the time, she has no energy and can hardly stand up straight without wobbling. The doctors told her when it came to this, then that means her health is deteriorating. So please be kind and help this sweet angel out. I appreciate the ones who have helped so far. It means a lot to her and me.