9
9

Miles Needs Surgery

$2,055 of $3,000 goal

Raised by 22 people in 40 months
My Grandson, Miles, has Spina Bifida 
My goal is to raise enough money so that my daughter a registered nurse can afford FML to his medical needs while he has a shunt inserted into his brain.

Follow this link for a more complete explanation:
http://www.wisn.com/news/baby-still-in-womb-undergoes-groundbreaking-procedure-at-childrens-hospital/29470172

 Miles, 7 months old now, 5 months adjusted.  He's still working on learning to roll over and sit up as well as a few teeth might be coming through!  His head measures large and he's taken a big jump on his growth curve.  Friday the 20th he had a head ultrasound and saw his neurosurgeon for follow up.  Miles weighed 15# and because of the big change in his head circumference his doc wants a repeat head MRI. Since he needs to be sedated he'll also have a full spine MRI.  There was only a minimal change in the ventricle size, but because they've been large and the big jump of his head size the doctor thinks Miles will probably need a shunt or other similar type of surgery.  Miles will have the MRI under sedation in 03/06 and we'll meet again on the 11th to discuss what type of surgery Miles will need and when. We're still hoping and praying that maybe he won't need anything, but the doctor feels it's time.
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Miles is doing great! He had a follow up appointment June 10, 2015 with neurosurgery and with urology. Both said we'll see you in 2 months!

Neuro thought things look stable or possibly slightly better! We go back in August for a sedated MRI.

Urology thought things looked great except his bladder was very full. They're concerned he's not empting completely. They increased his medication for bladder spasms and to help him empty. He'll have the scans repeated in August too.

Cardiology gave Miles a clearance until he's 2!

Physical Therapy still comes to work with Miles every week. He's getting stronger and working on sitting longer and is doing really good at rolling!

Miles is such a sweet happy little man. Even when he comes out from MRI crying he still gives the staff a smile.

Thank you everyone for all your continued kindness, prayers and support!
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Another trip to Milwaukee! The car should know the way. Thank You everyone
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Miles 2nd day post-op
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Miles had his surgery 3/26/15 and is on the road to recovery for now.
They were able to do the Endoscopic Third Ventriculostomy (ETV), but when they went to do the second part the Choroid Plexus Coagulation (CPC) they were only able to do half. We're hopeful that they were able to do enough of the CPC, but if not Miles will need another surgery. We will know in 2-3 weeks when they repeat his MRI.
In the hospital Miles had a lot of pain and head/face swelling. They did a MRI on Friday which showed his ventricles were smaller already, but poor Miles was suffering with a lot of vomiting in addition to the pain and swelling. He was a trooper through it all!
Miles came home late Sunday evening and was all smiles when he walked through the door!
Heading home 03/29!
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$2,055 of $3,000 goal

Raised by 22 people in 40 months
Created February 21, 2015
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