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Help Kayla Receive Treatment In USA

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I'm seeking help for my 14 year old daughter Kayla, who has had some significant health issues. I'm am a single solo Mum to 5 children, Kayla being the eldest. Sadly, they don't see their Father (same Dad) and haven't in 5 years. I don't get anything significant in the way of support from him and he owes me back payments in child support which is only going up by a minuscule amount of $34.50 per month for all 5 children...not each!I've had to put my full time studies on hold as well as the ability to seek employment, to care for her, as at times, she's unable to even wash unaided. It's heartbreaking as her education is suffering, but more importantly, her right to be a normal 14 year old girl that should be able to play sports and socialise with her peers and have a quality of life. She's mostly bed ridden with minimal days where the pain is manageable. She is declining rapidly, physically, mentally and emotionally and so am I. She's my daughter and I can't help her financially, but how can I not help her. I'm at a loss. Kayla will engage in s live in program via Royal Melbourne hospital for pain management as well as significant physiotherapy, that costs the bomb! Even that's almost 6 hours from our home town....learning how to best manage this excruciating debilitating pain, is all that can be offered.She has suffered many ailments for most of her life which ill mention later. She has recently been diagnosed with CRPS - Complex regional pain Syndrome She has missed most of her schooling this year as a result and has been treated with opioids such as endone to help her feel comfortable. They're addictive and the prospect of her taking those long term, is frightening. There is no cure for this disease, however there is a treatment "Calmare therapy" that has had some amazing results with CRPS sufferers that offers them a quality of life. The problem is, I'm in Australia and the treatment is in America. I have funded, educated, raised, loved and nurtured my 5 children on my own 24/7 without a break, for the past 5 years. I'm exhausted, but they're beautiful innocent children that didn't ask for any of this and I'm so blessed that they chose me to be their Mum. I cannot give let them down.I feel incredibly guilty asking for financial assistance in order to care for my daughter....she's my responsibility and it doesn't make me feel at all proud that I can't gift her the life that she deserves. But how can I not, she's my little girl, so I have to swallow my pride and help her. It's heartbreaking and very damaging to us as a family to see her suffer and all we do is shove addictive opioids down her throat...that's all we can offer for help! We love her and want to see her enjoy the rest of her childhood, and her life. If you are able to spare just a $1 even, we would be forever grateful and you'd literally, in my opinion, be saving a life. I've listed just some of the things she's suffering,...-chronic Asthma-anaphylaxis -eczema-Patella alta-ligamentous laxity-Patella femoral hypersensitivity -subluxation of the knee-mild degeneration of the facet joint L5/S1-CRPSTHANK YOU from the bottom of my heart for your attention and your generosity. If you are unable to help, please help create awareness for this disease. As quoted in the video, "they need compassion"Please watch the video. It perfectly explains just how debilitating this condition is. Thanks again for reading my voice. As I said, please share, creating awareness alone, is so important. There are many sufferers and I wish I could help them all. I'm sorry that I'm selfish right now and thinking only of my child. She's just a little girl. xxx

Organizer

Penny Burch
Organizer
New South Wales

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