Building a Legacy for Baby Emma
Emma was a beautiful, amazing baby, and our time with her was tragically short. Our family is still struggling every day to figure out what our new normal is, and how losing our little girl will affect us as we try to move forward. We are keeping this campaign open to continue to raise funds in Emma's name, so that we may create a lasting legacy for Emmy Bear. This will likely take many forms, but so far we know of one: a book. There is no guidebook for the impossible choices we were forced to make this year, and we know that parents in our situation face this every day...alone. We have begun writing a memoir of our time with Emma, to fully tell her story in the hopes that other families are able to read it and find comfort and understanding. Money donated to this campaign will now be directed to this purpose, and to creating a lasting legacy of kindness and hope for others. Emma Jean Boucher passed away peacefully on July 12, 2018 at 1:56 PM from congenital heart disease surrounded by her Mom Stacey, her Dad Scott, and her big sister Anya. This page is temporarily being used as a means to assist her family with funeral and related expenses before being repurposed with the intention of creating a legacy for Emma that will last forever. Our family is thankful for your support, and will continue to update here and at Emma's Story on facebook. With love, Scott, Stacey, Anya and Emma We recently received a huge and exciting surprise; baby number two is on her way. During the weeks that followed, we received another two surprises: 1. baby Emma will be here in July, and 2, she has major abnormalities of both the heart and the brain that mean she must be born 3 hours away in Boston. Emma's heart condition in simple terms, is that her septum (the wall inside her heart between ventricles) is largely missing, causing oxygenated blood to mix with non-oxygenated blood. Her heart is also missing a pulmonary artery. Without this artery, Emma cannot circulate blood to her lungs, and will not survive without immediate medical intervention and open heart surgery to artificially rebuild her heart and create a synthetic version of a pulmonary artery. In addition to the heart issues, our baby also has some malformations within her brain. Part of her brain did not properly divide during her early fetal development. The part that is fused is her thalamus. She also has brain ventricles that are severely enlarged with fluid (ventriculomegaly), and the doctor strongly believes that she is missing a large portion of her brain. Emma will be born in Boston, and will likely have open heart surgery shortly after birth. We will have to spend a minimum of 4 to 6 weeks in Boston for her to have a chance of survival. We as a family are not prepared for this emotionally or financially. The money we receive through this campaign will help us cover transportation, lodging, any living expenses we cannot cover after our paid time off runs out, unforseen medical costs, travel, and any necessary supplies for Emma. Please consider donating, and remember that every single dime counts. We also ask that you keep in mind that even if you can't donate, you can still help us and Emma by sharing this with everyone you possibly can. Thank you for taking the time to read this. We will be starting a blog about Emma soon and will post the link in the updates as soon as it is available. Thank you again for your immense love and support, Scott, Stacey, Anya, and baby Emma+ Read More
i have started the process of writing Emma's story, and I hope to have some of it available to preview in the next month. it has been emotional and at times impossibly difficult to put to paper. the pain of losing her is an unbearable reslity that we struggle with every single day. Donations received are now being used toward financing the writing and eventual publishing of this memoir. we look forward to sharing the good and the tough times with the world with the hope that it will help other parents and families faced with heartbreaking decisions like those we were forced to make. please keep sharing. Know that your support
is extremely important to us.
is extremely important to us.
Emma's story has only just begun. We have begun a memoir and are repurposing this campaign to support our ongoing efforts to create a legacy for Emmy Bear.
Emma passed away on Thursday July 12 at 1:56 PM. She was with her father, her mother, and her big sister Anya. She went peacefully and was not in pain. This page will remain active to help our family with funeral and related expenses before becoming dedicated to creating a lasting legacy for our little Emmy Bear. Updates will keep coming. Thank you for all your love and support.
We are at Brigham and Womens, Stacey is being induced and is getting an IV drip of medicine that will cause contractions. Her water has broken, and she is now 4 cm dilated. Emma will be here by sometime tomorrow , and we need all the love, shares, and prayers we can get! Thank you to everyone who is on this journey with us...we could not do it without you!!! Scott, Stacey, Anya, and Emma