4
4

dealing with ataxia day to day

$200 of $1,000 goal

Raised by 4 people in 36 months
DEAR FOLKS :
I AM 65 YEARS OLD I HAVE HAD TO GIVE UP THE THINGS I HAVE ENJOYED MY ENTIRE LIFE WORKING IN THE TRUCKING INDUSTURY. I WAS DIAGNOSED WITH ATAXIA ON MY WIFE AND MY 43RD WEDDING ANNIVERSARY IN 2012. I STARTED TO FALL AT WORK IN OUR PARKING LOT AFTER FALLING AT LEAST FIVE TIMES I KNEW SOMETHING WAS NOT RIGHT. AFTER HAVING MANY MRI'S AND DOCTOR VISITS THE DOCTOR ADVISED US THAT I DID HAVE ATAXIA== IT IS A PROGRESSIVE NEUROLOGICAL DISEASE THAT IMPAIRS BALANCE, COORDINATION, AND SPEECH. DUE TO THE BALANCE ISSUES AND SLURRED SPEECH CAUSED BY ATAXIA A PERSON MAY APPEAR DRUNK I AM SHOWING ALL OF THOSE SYMPTOMS (NOT THE SLURRED SPEECH) AT THIS TIME THERE IS NO KNOWN CURE. I AM HOPING TO HAVE BLOOD WORK DONE TO HELP OUR 2 CHILDREN BECAUSE THIS IS HEREDITARY. MY DAD HAD IT. HIS SISTER HAD IT AND MY GRANDMA HAD IT. MAYO CLINIC SAID THAT MORE THAN LIKELY ONE OF MY CHILDREN WILL GET IT. THE PROBLEM IS THE BLOOD WORK IS VERY EXSENSIVE.
I HAVE STARTED GOING TO PHYSICAL THERAPY EACH AND EVERY WEEK THREE TIMES A WEEK. THERAPY HELPS THE MIND TO ADJUST TO EVERY DAY THINGS LIKE WALKING, EYE SIGHT, AND MUSCULAR COORDINATION. I DID NOT WANT TO RETIRE AT AGE 65 I WANTED TO WORK UNTILL AGE 70 BECAUSE I LOVED WORKING AND LOOKED FORWARD TO WORKING. NOW EACH AND EVERY DAY IS A CHALLENGE JUST TO WALK AND TO DO NORMAL THINGS THAT WE TAKE FOR GRANTED. EVEN DRIVING CAN SOMETIMES BE A CHANLLENG WHEN I EXPERIENCE DOUBLE VISION OR AT NIGHT IT IS HARDER TO SEE THE ROAD SIGNS AND JUDGE DISTANCE. IT IS DISHEARTENING THAT AT THIS TIME AS I MENTIONED, THERE IS NO KNOWN CURE OR MEDICATION TO TREAT ATAXIA.
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Update 20
13 months ago
WELL, THE 4TH IS OVER NOW FOR REST OF THE STORY IT WAS NICE CAROL AND I WERE IN LAJOLLA HELPING OUT RENEE BY WATCHING A COUPLE OF DOGS AND A VERY NICE HOME FOR ONE OF HER SPECIAL FOLKS WE COULD WATCH FIRE WORKS ALL AROUND US IT WAS VERY ENJOYABLE HOPE ALL HAD THE SAME
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Update 19
14 months ago
HI TO ALL THE SUMMER JUST STARTED DOIN MY BEST OF WALKING AND RESTIN YOU KNOW YOU MUST REST WHEN RETIRED A GREAT BIG HELLO TO ALL AND HAVE A SAFE SUMMER AND ENJOY ALL YOUR VACATIONS
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Update 18
15 months ago
HEY EVERY ONE CAN YOU BELIEVE IT IS THE END OF MAY IT HAS BEEN A TRYING YEAR ,,,BUT I AM TRYING MY BEST WALKING AND GETTING AROUND WITH HELP OF CAROL AND RENEE AS FAR AS IAM GOING I DONT THINK I AM ANY WORSE THATS GOOD ,TO ALL HAVE A SAFE SUMMER
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Update 17
17 months ago
HEY EVERY ONE IT HAS BEEN A GOOD YEAR SO FAR STILL WALKIN AS MUCHAS MY LEGS WILL LET ME EVERYDAY HOPE THIS FINDS ALL IN GOOD HEALTH LATER LEE
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Lee Laible
32 months ago

DEALING WITH ATAXIA DAY TO DAY

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$200 of $1,000 goal

Raised by 4 people in 36 months
Created September 8, 2013
PM
$75
Pablo Madrid
14 months ago
JL
$25
Jeffrey Lybarger
32 months ago
RL
$75
Renee Laible
32 months ago

Lets hope 2014 is a better year & we keep learning all there is more to know about Ataxia.

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$25
Anonymous
32 months ago
Lee Laible
32 months ago

DEALING WITH ATAXIA DAY TO DAY

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