138
138
6

Our Strong Little Man

$9,760 of $15,000 goal

Raised by 133 people in 17 months
As most of you already know or have heard, my daughter Brittany and her fiancé Matt's little boy Nolan has been battling bilateral retinoblastoma, a very rare form of eye cancer, since August 2016. At his routine 6th month check up his pediatrician realized there was something wrong with his eyes. From there we sought out specialists and eventually received the news no parent or grandparent wants to hear - that our precious little 6-month-old had cancerous tumors in both of his eyes. The doctors kept mentioning the very real possibility of eye removal, but we wanted to try everything possible for Nolan to retain his sight. The next steps were 6 rounds of chemotherapy, followed by 5 weeks of daily radiation. Through all of this Nolan has been an absolute trooper. His constant smile and happy demeanor has helped his parents and family remain positive. After hearing nothing but bad news for what seemed like the longest time we thought that we were finally seeing the light at the end of the tunnel. The tumors were shrinking, Nolan's sight was improving, our little boy was courageously fighting and everything pointed to the conclusion that he was winning. After completing the rounds of chemotherapy and radiation, our oncologist believed that this was all he needed for treatment. His first follow up had all the doctors extremely impressed, they even scheduled to have his chemo port surgically removed. We finally thought, "Wow, this is it; we did it... Nolan did it!"Then just after we finally thought this was all going to be a thing of the past, we got the news last week that the cancer had returned. And not only was there a relapse, but Nolan's oncologist said that the tumors are about the same size as when he was originally diagnosed. So here we are back at square one, faced with yet another battle. His team of doctors have told us Nolan's case is one of the most severe they have ever seen. Again, or what any parent wants to hear. They are now planning to take a new form of action with this next round of treatment. Instead of the chemo we did the first go-around, they want to do intra-arterial chemotherapy, which is a more aggressive form of treatment and will go directly into his eyes. We are praying that this next round will do the trick. Besides the chemo, Nolan will also need to undergo more radiation as well. With intra-arterial being a new form of chemotherapy, it is not offered at many places throughout the country so Brittany, Matt and Nolan will need to stay in Boston for an extended period of time until his treatments are complete. This will put a hardship on this young family as both parent will once again be forced to take leaves of absences from their respective jobs. The next couple of months will be very tough on them emotionally, physically, and especially financially. We hate to ask for help with this but the reality is we really need it. Any donations would be greatly appreciated. Please share this story with your friends and send positive vibes and prayers Nolan's way. God knows this family could surely use some good karma. We thank you all from the bottom of our hearts for everything you all have done for Nolan and his family. God bless.
+ Read More
UPDATE:

Unfortunately we did not get the news we were hoping for today. They found new growth of tumor in Nolan’s left eye. This is the very last thing we wanted to hear.

Our next step for Nolan is Enucleation; the process of removing his left eye. We will be doing this procedure within the next couple of weeks. From there he will get a prosthetic eye 4-6 weeks later that will match, and move in conjunction with his other. Around this same time he will also be undergoing the surgery to clear up some blood in his right and hopefully gain some vision back in that one.

Although this news is heartbreaking for us, we in a sense knew it was coming. The way i try to look at it is, if this eye is gone, then those stubborn tumors don’t stand one single chance!

Please keep praying and sending positive vibes to our little man. We appreciate it more than words can express. We will not give up, and WE WILL beat this!

#nolanstrong #retinoblastomawarrior #kickcancersbutt
+ Read More
UPDATE:

Since it's seemed like all we've received lately has been bad news, it's only right for us to finally get some good news, right!?

Many of you know that Nolan has recently lost the majority of his vision, including full vision loss in the left eye. The right eye has been rapidly losing sight as well due to a detachment that has left blood in his eye, causing a blockage to his central vision. Nolan’s doctor explained to us that this happens fairly often, and in most if not all cases this will clear up on its own.

After this tough week of seeming like we were going to be adjusting to life with a child that can't see; we were again handed hope, and positivity. We were told that other than the bleeding in his eye, which has stopped, the anatomy of Nolan’s right eye is still perfect and the doctor has every reason to believe that once this bleeding clears up Nolan will regain his full vision in that eye.

Noles will be undergoing one more round of injections, and intra arterial chemotherapy. So please keep sending your positive thoughts and prayers our way. Without our loving, supportive friends and family I don’t know if we could have made it this far. Thank you so much from the bottom of our hearts. We will beat this! Just have to keep on fighting one day at a time!

#retinoblastomawarrior #nolanstrong #kickcancersbutt
+ Read More
Update:
Unfortunately this last weekend our family got some not so good news. The pressure in Nolan's eyes built up too much, which caused new blood vessels to form in the iris of his left eye. As far as we can tell Nolan no longer has sight in his left eye at the moment. Nolan's eyesight is extremely compromised right now. The seeding in his right eye is also playing a factor, making it hard for him to see out of that one as well. He hasn't been seeing enough to play, or eat on his own. He no longer looks us straight in the eyes. These past few days have been very hard on us as you could imagine.

Our families will be traveling to New York City to get a second opinion from Dr. Abramson; an ophthalmology/oncology Doctor. He is well known for treating many cases of retinoblastoma specifically. We are truly hoping for a miracle. Hoping that these doctors can save our little mans sight.

This is so unfair, and we wish more than anything that he didn't have to go through this. But we will keep fighting this. We know that no matter what is thrown our way, together as a family we will get through this. Our little man has undergone so much that we have no doubt he will get through this and come out stronger on the other side, just like he always does. We will not let the cancer Win! Please, everyone keep us in your prayers, send tons of good energy our way as we need it now more than ever.

#nolanstrong #retinoblastomawarrior #weregonnabeatthis #prayersfornolan
+ Read More
Update:
Nolan is doing great so far. He had his first round of intra arterial chemotherapy last week, and like always, he handled it like the champ that he is! Nolans oncologist believes that he will need at least 4 rounds of this chemo, possibly even 5 or 6. They will be spaced 3-4 weeks apart, and on the in between he will also have a procedure done with his opthomologist/surgeon at mass eye and ear. This procedure is called intravitreal injections, where they will directly inject the chemotherapy into his eyes. So at this time our little man is undergoing two different kinds of chemo therapies. It's a lot on our family, with all the stress and constantly traveling back and forth. But we will get through it as a family! We always do!

Please continue to pray for our little man and/or send positive vibes and lots of love our way. We need it now more than ever!

Please also, continue to share this post so your family and friends can see his update as well.

Thank you so much to everyone that is still following Nolans story, and cheering on our little warrior. The amount that a community can come together in a time like this is heartwarming to all of us.

#nolanstrong #retinoblastomawarrior #prayersfornolan #kickcancersbutt
+ Read More
Read a Previous Update

$9,760 of $15,000 goal

Raised by 133 people in 17 months
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
RT
$25
Rick & Sue Talbot
3 months ago
$10
Jordan Wahlstrom
3 months ago
AM
$25
Ashlee Maloney
4 months ago
$200
Anonymous
4 months ago
BB
$100
Bruce Ballard
4 months ago
$20
Lucy Hosack
4 months ago
$25
Gregin Doxsee
4 months ago
BB
$20
Blake Bormet
4 months ago
$100
Susan DuPlessis
4 months ago
SC
$100
Sara Kim Chea
4 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.