The Conway Family's Fight Against ALS
Tony and his wife, Amanda, are raising two precious girls, Cora and Louise. Tony's diagnosis came weeks after Louise's birth, and 2 years later, they are all living life to the fullest. As Tony's ALS progresses, they adapt as necessary. His service dog, Jake, is the epitome of man's best friend. There's computer technology that promises to keep Tony in communication with others as his speech is impacted by the disease. The recent remodeling of their bedroom, bathroom and foyer have made their home safer and more comfortable, and computer software will allow Tony to better control their living space. And the need for a new vehicle has led to the purchase of a wheelchair-accessible van, of which they just took ownership last week. Of all of these adaptations, Amanda's decision to take a sabbatical from her teaching career was a major decision that will undoubtedly improve Tony's quality of life and ensure optimal time together.
This site is in place to increase awareness of ALS, as well as to ease Tony and Amanda's financial burdens. Please give. Please share this site with others. No donation is too small. Your generosity is greatly appreciated!
Click the links above to read more about Tony and his family.
Click here to read about Cora's ride to school in the new van.
I was first introduced to you in person by Amanda at Bodo’s Bagels—the one off of Rt. 29—and I knew without a doubt that Amanda had found her perfect partner. Jenny and I met you both there after hearing all of these amazing things about you from Amanda. The icing on the cake was that you were from Scotland, which seemed fitting because of Amanda’s affinity for everything UK. While not quite a British accent, the Scottish brogue was just enough to give the impression that Amanda had snagged her very own Beatle! And as if that weren’t enough of a perfect touch, she had found an incredible man who shared her fondness for the lovely town of Lexington. Amanda is a deeply loyal person who has strong roots to her hometown—a setting that draws people in from near and far. When I was struggling with the difficult loss of my grandfather back in 2000, Amanda frequently opened her home to me and allowed the calming magic of Lexington to provide some much needed therapy for my broken heart. I always knew that she would marry and raise a family in Lexington, but a Scotsman in Lexington was altogether perfect! I remember sitting in Bodo’s that day in awe of your VMI ring, which was so enormous it became a conversation piece that offered numerous jokes: the ring that doubles as a weapon, the ring that provides unilateral strength-training, etc. She was clearly smitten with you, and Jenny and I became founding members of the Tony & Amanda Fan Club.
Fast forward to your wedding day a while later…. Taylor and I rank your wedding as one of our all-time favorites. Tony can rock a kilt like no other! And the juxtaposition of a pig roast with bag pipes was so colossal in its representation of Amanda and Tony: two worlds colliding atop a gorgeous hilltop in Lexington, surrounded by family and friends from this and that side of the pond, forever united. Amanda was the most stunning of brides—a princess for her prince. And in typical Katie style, I managed to show up to the wedding too late to do Amanda’s makeup as I had promised (because I got the time for the ceremony mixed up!) and we got there just in time to find our seats for her walk down the aisle. After profusely apologizing, I realized that Amanda could have had her makeup applied by a 2-year-old and she still would have radiated a perfect beauty. What a lucky guy you are, Tony Conway! And she a lucky gal.
Who would have guessed that within a year of your wedding Taylor and I would wed and have our first child (you inspired us, I suppose?)? We took our first trip to Lexington as a “threesome” when Chase was about 8 months old. While Amanda and I entertained Chase (who enjoyed his jumpy swing that hung from the kitchen doorway of your first house), you took Taylor on his first “man excursion”: a pickup truck, a shotgun and mud were the highlight of Taylor’s visit (and ultimately bolstered the testosterone value of his man card). The five of us also enjoyed a walk around VMI, a visit to the horse barn and our ride into town for the obligatory meal at The Palms. Lexington cast its spell over Taylor, and the bonds of friendship deepened as Amanda & Katie became Amanda-Tony & Katie-Taylor. We were two cool, young married couples.
Two more kids later, you made the trip to visit us in Yorktown. We had added Brooks to our brood by that time, and you brought along sweet, little Cora. Between work schedules, school schedules and coaching schedules, our visits were few and far between. But we have always cherished the connection we have with the Conway family, even despite the geographical distance that separates us. There is a song by Keane—Somewhere Only We Know—that you played for me once many years ago. It instantly became one of my favorites and makes me think of you. I remember the tour you gave us of W&L after you started your job there. I recall the impressive home improvement projects you and Amanda accomplished that left me feeling very inadequate at my own ineptitude for DIYs. I think of your massive VMI ring and the kilt you donned for your wedding. But most of all, I think of Amanda-Tony-Cora-Louise. They are a part of you and you are a part of them. And I love you all. Thank you making Amanda’s dreams come true, because she is a dear friend of mine… and friends only want the best for each other. And you, Tony Conway, are the best. You are a great husband, father and friend. You have inspired and touched thousands. And you have secured a place in my heart that will forever smile when I look into the eyes of your beautiful girls.
Katie & Taylor Morgan
Rest in peace, dear friend. We love you!
Peace of mind can be the most powerful gift! While we may not be able to eliminate the physical and emotional burden of this horrific disease, we can relieve the family's financial burdens so that they can make the most of every moment together.
Happy Birthday, TONY!