Austin's LIMB LENGTHENING Fund

$3,400 of $6,000 goal

Raised by 57 people in 25 months
We are currently raising money for Austin Blaylock's, FINAL LIMB LENGTHENING surgery and Tibial rotations on his left leg. This surgery was performed on July 18th, 2017 and requires us to stay in Baltimore for 12 weeks. Austin is undergoing daily lengthening, specialized physical therapy, and weekly visits with Dr. Herzenburg. We are asking for donations to assist their family with expenses. His mother is out of work on unpaid FMLA for 12 weeks and she is still having to maintain their household bills at their home in North Carolina. In addition, they are also paying a very high deductible with their insurance and have heafty expenses with lodging for their family while staying in Baltimore, MD for the 12 weeks.

Austin Blaylock was born with a congenital birth defect that affects only 1 in 40,000 births, called Congenital Fibular Hemimelia. They were informed by two different orthopedic specialists that amputation was the best route to take for Austin due to the fact he would be tall and not able to bare that much weight on his left leg. Austin has only three toes on his left foot, no ankle joint, which means he is unable to rotate his foot side to side or up and down, his foot is almost half the size of his right foot, meaning he wears a size 11 on the right foot and only a size 8 on the left, and missing a great deal of musulature and tendons in his right lower leg, which makes the leg approximately half the size of the right leg. Last but not least, his overall expected left leg length discrepency was to total almost 5 inches by the time he was fully grown.

When Austin was 6 months old they were able to locate a doctor in Baltimore, MD named Dr. John Herzenberg at the Mt. Sinai Institute for Advanced Orthopedics, International Center for Limb Lengthening. Dr. Herzenberg was and continues to be their saving grace. When they finally got an appointment with him (they had to wait 6 months to get the initial visit) he assured them that he could help Austin be as normal as possible without having to amputate his leg. The next couple of years was a waiting game. When he was three years old, Austin had his first operation. Dr. Herzenberg completed the first of many surgeries that lied ahead for Austin. His first limb-lengthening surgery along with reconstruction of his ankle and foot bones to provide stability for Austin going forward. Austin still has no joint his his left foot/ankle and is still unable to rotate his foot side to side or up and down, but he is able to support his weight, which was why the other doctors had told them to amputate his leg.

Since his first surgery, at age three up until September 2012, Austin was able to live a "normal" everyday kids life. Something his family initially thought would be impossible for him. They all knew that when Austin entered puberty that he would enter into a realm of multiple procedures in order for him to maintain a normal lifestyle going forward & minimize health risks as he grew older.

The first procedure was completed in September 2012, which was "Correction of Angular Deformities" in the knees due to his condition. It entailed placing eighth plates & screws between the lower right knee & the tibia/fibula at the growth plate and another in the upper left knee between the knee and the femur. These plates were placed to straighten his legs as much as possible prior to making any corrections in length discrepancies. He completed eight weeks of physical therapy and the doctors have been astounded by his ability to acheive more flexibility than he had to begin with.

His next surgery was due in May 2014, but the surgery was postponed so he would have the opportunity to finish his baseball season, becuase it was very important to him. In August 2015, Dr. Herzenberg removed both eighth plates & screws out of Austin's knees and drilled into the growth plate on the right leg (the "good leg") to stunt the growth, which is called Percutaneous Epiphysiodesis. Recovery from this procedure was approximately 4 to 6 weeks of carefully ensuring knee stability to prevent fracturing the newly drilled area of the growth plate. Following that he attended 6 to 8 weeks of physical therapy 3x per week to achieve his desired mobility. He was carefully monitored every 3 months during that 12 month process to ensure that the rate of growth was accurate and that the desired outcome was achieved. By stunting his overall heighth approximately one inch, it helped to eliminate the need for two more limb lengthening procedures. Unfortunately, after this procedure, due to the strain on the left leg, that he would no longer play baseball in order to maintain this leg, knee, and hip for years to come.

With all of this said, they are now in the process of the FINAL LIMB LENGTHENING and need as much assistance as possible with costs. They are in need of donations to assist with covering extremely high deductibles for the surgery and heafty lodging expenses for the 12 weeks they have to remain in Baltimore, MD. Their overall goal is to raise $6,000.00 (lodging is $450 per week). Please help this family reach their goal!!

Thank you all for taking the time to read and learn about Austin's condition as well as supporting their family during a very difficult time. We know that a lot of you have been through tough times as well. Anything you can do will help. Even if it's only $5 or $10. Their family is very thankful and they appreciate all of your prayers, love, and support!!



With Love, Austin Blaylock & Family
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Finally getting to post an update!! We are still in Baltimore, MD. We were initially fundraising for money to stay for 6 weeks and now it will be almost 10 weeks before we are able to return home. With the extension of our stay, we are in dire need of fundraising money to pay for our continued lodging here in Baltimore. In addition, I am still out on FMLA without pay and have bills at home in North Carolina that do not stop recurring, such as rent, electricity, water, insurance, car payment, etc. In order to keep us with a place to stay while we are here in MD and a home when we return to NC, as well as a vehicle to get back and forth, we are in need of fundraising. We sincerely appreciate all your love, prayers, and donations!! ❤️

This is a lot longer than expected but his doctor has been seeing him weekly since he has had so many issues with his nerves and the incisions healing. It looks like we will be here for another three weeks, until near the end of September. The good news is, Austin's finally turned the corner!! At his last appointment on Thursday, he has now gotten 2.2 cm of separation with the rotations, which we are still doing 3x per day. We have been going very slow and will continue to do so due to the nerve pain he has experienced. Our total goal is approx 4 cm of additional bone growth, so we are a little over halfway there at this point. We are looking at another 30 to 60 days to obtain the remainder of the 4 cm. Bone regeneration has also been going very slow for Austin. We believe that's mainly due to the lack of ability to put any type of pressure on the foot to promote and activate the bone growth due to the nerve pain he has had. Since we've gotten the nerve pain under control, this should improve as we move forward in the lengthening.

He's been doing great this past week. He's now in pool therapy 3x and land therapy 2x per week here at the RIAO Physical Therapy Center. The only issues we are having at this point is still the circulation, but the pool seems to be helping with that. We also have an appointment with a Vascular Surgeon to evaluate the circulation in both legs in September.

We finally made it out of the house (first time in over a month ) to the mall to pick out a pair of shoes for him to start wearing on the right foot. We're hoping that wearing them during PT will help give him more stability to help with the blood flow and tingling so he can stand longer on the right foot (he's still only 30 lbs. weight bearing on the left). I have weened him off of most pain killers and Tylenol at this point except for when he really needs it. That's usually in the evenings or night when the bone starts aching from pulling it apart when lengthening.

Please continue to share and donate as well as send any care packages or encouraging cards!! It always helps me to see his smile when he opens them. ❤️ For anyone that would like to donate via paypal, please contact me for my email. To send a letter, card, donation, or care package, please mail to:

Hackerman-Patz House
Attn: Austin Blaylock #102
2434 W. Belvedere Ave.
Baltimore, MD. 21215
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Today was discharge day!! It took a few trips but we got all of our things moved over to the Hackerman-Patz House next door to the hospital. PT came and worked with him in the early afternoon and he did an awesome job. After we got to our room at the house we also managed to get him bathed and clean, which made him feel so much better. Thankfully he had just had his pain medicine so we were able to get through that without feeling a whole lot. He's been resting for the last hour or so because he's having quite a bit of swelling and pain in the lower part of his leg. We'll be doing elevation and ice for the rest of the night.

Thanks to all of you for the continued thoughts and prayers and for those of you that have donated and/or shared Austin Blaylock's fundraiser information. The place we are staying is a nightly cost and we will be staying for 6 weeks, any little bit helps. Please continue to share and donate if possible ❤️
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Check out this video update.
1st time walking since surgery on 07/18
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Austin's team of Orthopedic Surgeons here at the Rubin Institute for Advanced Orthopedics. Led by world-renowned Dr. John Herzenberg, Director of Pediatric Orthopedics at Sinai Hospital and Director of the International Center for Limb Lengthening and Advanced Orthopedics. Dr. Herzenberg has been treating Austin since he was 2 years old. After seeing several Pediatric Orthopedic Specialists that provided only one option of amputation of the left leg/foot, we located Dr. John Herzenberg. We waited over 6 months to get an appointment with him. I will never forget the first time he saw Austin and spoke with us. We just knew he was going to give us another recommendation to Amputate, but that was not at ALL what he said. He told us that his prognosis was excellent and that he could essentially save his leg. It was an amazing feeling to finally meet a Doctor that had faith in saving Austin's leg. ❤️ Dr. H is now a part of our family forever.
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Melissa Garnett
25 months ago
1
1

Thank you so very much for your Donation!! Our family very much appreciates your support!!

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$3,400 of $6,000 goal

Raised by 57 people in 25 months
Created June 5, 2017
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FE
$100
Feather Earst
21 months ago
DR
$100
Dana Rose
21 months ago
$100
Anonymous
22 months ago
1
1
RM
$160
Robert Miles
23 months ago
1
1
RH
$100
Randal Hamm
23 months ago
1
1
$50
Anonymous
23 months ago
1
1
SB
$50
Samantha Belt
23 months ago
1
1

Praying for you guys!

$10
Jennifer O'Neil
23 months ago
1
1
NM
$25
Nurse Donna Mcmillen
23 months ago
1
1

I remember you Austin when you were a student at McHarg. Sending positive thoughts.

CD
$100
Chaun Doak
23 months ago
2
2
Melissa Garnett
25 months ago
1
1

Thank you so very much for your Donation!! Our family very much appreciates your support!!

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