Layla's Love

$9,930 of $10k goal

Raised by 581 people in 38 months
Missy Bowers Kosinski   WEIRTON, WV
In October of 2012, just 5 days before Layla turned two years old, she was diagnosed with Retinoblastoma (a rare cancer found in the eyes of children) in her right eye. We traveled to New York to see one of the best doctors in the country for RB, and on Halloween her eye was removed along with the tumor and a silicone implant was put in its place. In December, Layla had a procedure to check to see if the retinoblastoma had traveled anywhere else in her little body. The doctors at Childrens Hospital Pittsburgh performed a bone marrow test and spinal tap. In February, due to complications of fitting a prosthesis, Layla underwent a two hour surgery to remove scar tissue that all the doctors assumed was a reoccurance of tumor, and to fix her implant at Memorial Sloan-Kettering Cancer Center in NYC. She wore an eye patch for 6 months because of these complications. In April, she was finally able to get a prosthetic eye. Genetic testing has proved that the cancer was not sporadic and that Layla has the mutation of RB in 30% of her blood cells. This means she is at a higher risk to develop soft tissue sarcomas, melanoma and breast cancer as she grows older. Every 4-6 weeks we travel from West Virginia to New York City to have her eyes checked for new growth of tumors. The doctors at MSKCC put her under anesthesia and take scans of both of her eyes. Because her mutation of RB is mosaic and not sporadic, her other eye is at risk to develop this cancer also. These trips are essential in providing Layla with the best medical care possible. Our bills are mounting and our travel expenses range from $1000-$1500 each time we visit New York. Please consider donating if you are able, every little bit helps. God Bless.
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Update 5
37 months ago
We took laylas prosthesis out the other day because she started complaining again. Inside her eye looks very white. As I mentioned before I'm worried that her prosthetic is rubbing against her eye tissue and making a hole so that her implant is exposed. I expressed my concerns to her ocularist (the person making her eye) and she wants me to send a picture to her. I hope there is no hole, if so she will need surgery to fix it and that's another trip to NYC. considering we just got back that would really stink!! say a little prayer please and I promise I'll update as soon as I know.
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Update 4
37 months ago
Laylas eye is much better today. The swelling has gone down and it doesn't look as irritated. Whatever it was must have worked it's way out. Last night I caked her prosthetic with tobradex , an eye ointment that is used to treat infections) and today she has not complained much. Weird this is the first problem she's had since April when she was fitted.
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Update 3
37 months ago
So I have to tell you all.. I was contacted today by the GoFundme public relations rep. They are looking for powerful stories to share with the media and Layla's jumped out at them. She asked me if I was interested in sharing Layla's story in a press interview... OF COURSE I AM!!! before Layla was diagnosed with unilateral retinoblastoma, I had no idea this disease existed. I believe in my heart, that if more parents or people in general knew what to look for , a lot less kids would lose their eyes and vision might be able to be saved for a lot of these children. I want to express my sincerest gratitude for all of you who have been donating to help Layla and our families travel expenses . Without you, this probably would not have been possible. I hope I can raise awareness about this awful awful cancer. God Bless.
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Update 2
37 months ago
Layla's "bad" eye is very swollen and red today and she keeps holding it crying and saying "oww mommy".. I'm not sure if there is something in there that is causing her discomfort or her prosthesis is rubbing against her implant. I hope it is not causing a rip in her conjunctiva, but she will not let me touch it to find out. This is really the first time she has had any kind of issues with it since mid april. Keeping my fingers crossed its just dirt.
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Kathy Boston
37 months ago

Have you contacted "Angel Flights" to see if they could help you with your transportation back and forth? Or NE Angel flight?

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Patty Ledbetter
37 months ago

please pray for Layla, she needs us or donate to her cause

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Sylvia Reinard
37 months ago

praying for your family. I know God will take care of your precious babygirl.

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Lisa Shelton
37 months ago

Praying for your whole family. Your little angel deserves nothing but a ray of hope and Miracles. God Bless you all!

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Kathleen Braden
37 months ago

Dear Missy, Just learned of Layla this morning. I am sending up prayers for you all now along with other friends who are praying, too. You might enjoy staying at the Penington House in NYC. It is near Union Square and very affordable. The residents are Quakers and fabulous chefs. Meals are served family style and are out of this world. They used to have a parrot in the living room who is pretty funny.

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Marjorie Mursch
37 months ago

So glad you have had a good report. I am praying for Layla and for your family. God Bless you ALL

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$9,930 of $10k goal

Raised by 581 people in 38 months
Created July 12, 2013
Missy Bowers Kosinski     Medical   WEIRTON, WV
$20
Anonymous
30 months ago (Monthly Donation)
$20
Anonymous
31 months ago (Monthly Donation)
$20
Anonymous
32 months ago (Monthly Donation)
$20
Anonymous
33 months ago (Monthly Donation)
CD
$5
Carmen Doakes
33 months ago (Monthly Donation)
$20
Anonymous
34 months ago (Monthly Donation)
CD
$5
Carmen Doakes
34 months ago (Monthly Donation)
$20
Anonymous
35 months ago (Monthly Donation)
CD
$5
Carmen Doakes
35 months ago (Monthly Donation)
$20
Anonymous
36 months ago (Monthly Donation)
Kathy Boston
37 months ago

Have you contacted "Angel Flights" to see if they could help you with your transportation back and forth? Or NE Angel flight?

+ Read More
Patty Ledbetter
37 months ago

please pray for Layla, she needs us or donate to her cause

+ Read More
Sylvia Reinard
37 months ago

praying for your family. I know God will take care of your precious babygirl.

+ Read More
Lisa Shelton
37 months ago

Praying for your whole family. Your little angel deserves nothing but a ray of hope and Miracles. God Bless you all!

+ Read More
Kathleen Braden
37 months ago

Dear Missy, Just learned of Layla this morning. I am sending up prayers for you all now along with other friends who are praying, too. You might enjoy staying at the Penington House in NYC. It is near Union Square and very affordable. The residents are Quakers and fabulous chefs. Meals are served family style and are out of this world. They used to have a parrot in the living room who is pretty funny.

+ Read More
Marjorie Mursch
37 months ago

So glad you have had a good report. I am praying for Layla and for your family. God Bless you ALL

+ Read More
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