Stem Cell Transplant - Scleroderma
I am trying all aspects to get this out and trying to raise the funds on my own. The procedure cost at least 150,000 and I feel like if I can get my story out I might be able to raise the funds to save my life. Unfortunately with this disease time is not on my side.
Thank you for taking the time to read this.
Love you all, your support is so amazing!
I feel bad, but you should sell that huge house behind you in the picture if that is your house? because there are people starving all over if that is your house sell it use the money and then move into a smaller home?!? That house looks like its over millions of dollars? Do not scam us?
Please look into other forms of stem cells. Inquire from patients who have had them and reputable clinics doing clinical trials, or protocols from clinical trials collecting data establishing safety data. You may very well have less expensive much more effective and safer options that would not require you to have immunisuppressives for life. I am happy to help you try to find someone in your area, and to help you find reputable data so you can learn for yourself what may be worth considering, and what would be a waste of your time and money.
I am terribly sorry. I really did not mean to hurt anyone so, I will keep my mouth shut from here on. Sorry I just skimmed through the information and then came to a very rude conclusion of the house and scam and I appoligze for being insensitive. So very sorry guys that was very rude of me! My appoligies to the family? You can definetly call me a moron that is totally what I am with that post. So really again sorry everyone I was being insensitive and just not educated in the matter of what was going on. Thanks everyone for your comments it did make me think and I will not do something like this in the future. I pray that she gets better. And I really can not imagine what shes going through. Like everyone said do not comment on things that you do not know about for my sake.
Seriously Ivan? You are a moron. Craw back under your rock
For all of you wanting to contact BcBs on the behalf of Scleroderma Warriors that are being turned down for our life-saving stem cell transplants call 1-800-565-9140 . We are forever grateful & in your debt. I have had SD since 1999, keep the faith & stay strong Brianna!!
I pray that you get the funds raised to cover your surgery and that your daughter is able to have happy times with her mommy!! Will they cover it if you have the surgery in the state of MA? Will Mass Health cover it? Maybe try to apply for that? Fingers crossed!!
Hello! If the public wants to contact BC/BS on your behalf, who do we contact. Also contact your Alderman, Senator, the Governor and Mayor- They all helped me find services for my son. Good Luck!
Look into Stemedica. They are a San Diego based company who works out of Tijuana and offers Stem Cell treatments. I have a family member who just returned from having the procedure done and we have seen MIRACLES happen. And I believe their fees are under $25K. If you have any questions please feel free to contact me. http://www.stemedica.com/
I to have Scleroderma, because people, are not aware how life threatening it is, and like you said that it's just a skin problem. Which it is far from that. I also have lupus which unfortunately happens a lot with immune from diseases. We need to raise more awareness. I pray and hope you get the treatment. I'm going to share on my FB. Raise the awareness.
I have posted this, and texted my entire phone book. I also contacted my friend, a newscaster at channel 7, to try to get them to re run the story. I posted to WAAF as well. Praying and pulling for you!!
Hi when I was diagnosed with an illness Blue cross told me wasn't sick enough to have my 12 thousand dollar treatment paid for .we have had them as our insurance company for almost 20 yrs I contacted the pan foundation and they paid for my medicine.Maybe they could help you. Best of luck to you and your family.Visit there web site .Pan Foundation.com.
Write a letter to your state's insurance commissioner!
Don't give up Briana. You have come this far and you are doing a great job raising awareness! I'm praying you will be approved.
If this one doesn't work keep fighting and yes, use all of the media available to you. Keep us posted on the appeal and how it goes.
I pray everyone will know what this disease is really capable of. I psi the stem cell transplant works not only for mt sister but v fire everyone with this awful disease. Endometriosis should be eligible for this treatment from insurance since there is no cure. I'm going to do all I can do to bring awareness. I pray you will be healed from this Briana! ♡