Kendall's Breast Cancer Care
Kendall is also pregnant with her second baby. She and her husband David will celebrate their son Camden's second birthday mid January, and are hopeful they will be able to take this pregnancy to full term. She will start chemotherapy in the next week and has been assured is ok to do during pregnancy.
David and Kendall are staying positive and are ready to fight, but we humbly ask for your help.
Donations will help cover the cost of medications and treatments not covered by insurance and will help to enable their family to be together in Seattle during treatments.
The Moyle, Schumacher, Allen and Butler families
This week is filled with daily appointments preparing me for the T-Cell infusion, which is projected for 4/18 (give or take a day). I completed baseline imaging yesterday, have clinical check-in today, data review on Wednesday and then start chemo on Friday. I will continue chemo infusions on Saturday and Sunday. I will then have a 1-2 day break before I receive my T-Cells. The purpose of the chemo is to kill off any remaining T-cells to make room for my new, genetically engineered cells. Once I receive my new cells, I will be admitted at UW for overnight, close monitoring. They will continue to monitor me closely for the next 30 days. After 30 days, I will be allowed to move back home.
The science behind it all is quite remarkable and I am thrilled to have this opportunity. Regardless of the outcome, it is a huge step toward finding a cure for all types of cancer and I feel honored to participate in a trial of this magnitude. I’ve attached more information on CAR-T Cell Therapy, if interested. As always, I appreciate all of your love and support so much! ❤️❤️❤️ Kendall
With this news we were pushed into a whirlwind of doctors appointments prepping us for the trial but also addressed the extreme and debilitating pain I’ve had in my shoulder. The last few weeks I have been at appointments or bedridden due to this throbbing, nauseating pain. An MRI finally showed that I have a huge cancerous lymph node wedged in between my shoulder muscles which has inflamed everything around it. They also think the cancer has spread to the skin on my shoulder which biopsy results will confirm or deny early next week. Fortunately, I am starting immediate daily radiation to the area on Monday which will continue for the next 2 weeks. The radiation will bring us right up to “Day 0” which is the day I receive my new genetically engineered T-Cells for the trial. At this point I will be under 24/7 close watch for the next 35 days. This means the Moyle Family is moving to Seattle this Monday for the next 2 months.
The CAR T Cell Trial can be quite brutal on the patient, but has shown encouraging results so far. I will be the 6th patient with triple negative to receive this treatment. This last week I had a procedure performed where they inserted a Mahurkar catheter in my neck and then harvested my T cells using a centrifuge to separate the T cells from my blood. On average it takes 3 weeks to genetically modify and multiple the cells into the hundreds of millions before they are infused back into me to take over as my new and much improved immune system. This trial has significant risk, but with that comes great potential reward. I am forever indebted to the patients before me who have fearlessly risked their lives to participate in this trial, so that the doctors now are much more informed and able to reduce many of these risks. This will be a stressful time for all and our parents will be taking shifts living with us in Seattle in order to provide me the required 24/7 care. It is likely I’ll spend some time in the hospital where visitors may be limited.
I’ve posted an article below that helps explain the process. We are excited for what the next few weeks bring and as always, thank you all for your love and support! ❤️ Kendall
After experiencing consistent pain in my right cheekbone, I alarmed my care team and received an immediate Brain MRI the day after Christmas. The news was not good. A tumor had started growing in my cheek bone and was now invading the soft tissue of my cheek. I was in a lot of pain and immediately referred to a radiation oncologist at UW who specialized in tumors of the cranium, brain and spine. I also had additional imaging done that indicated the cancer had now spread to my bones, both lungs and several lymph nodes throughout my body. I started immediate radiation therapy to my face and just completed this treatment on Thursday. Although I’m extremely swollen, my pain is less and I’m feeling better everyday. I almost feel like I’m in the twilight zone where the doctors are showing me pictures of the cancer in my body, but I keep thinking, “that can’t be me, I don’t feel sick!”
The question I keep getting is, “How does this happen? You have Breast Cancer.” Well, we’ve known from day one that I had a very aggressive subtype of breast cancer, called Triple Negative, where there are few targeted or effective treatment options compared to other types of breast cancer. We knew mine was particularly aggressive since my tumor continued to grow through 5 different chemotherapy drugs. This is not a typical response to chemo, but we know now that I have several mutations that seem to be chemo resistant.
Because of this, I had continued treatment at the hopes of preventing a reoccurrence. Cancer cells from my breast were shed into my bloodstream and are now taking root in other areas of my body. This is now called Stage 4 Metastatic Breast Cancer and it is terminal. There is no cure for me. Because of the few effective treatment options available, the average life expectancy is 13 months. Living beyond 2 years is actually considered pretty remarkable for Metastatic TNBC. We are completely heartbroken by this news and have spent the last few weeks devastated, sad, angry...but getting back to hopeful.
We are determined to not sit in this sadness any longer and intend on spending the rest of our time together enjoying our beautiful life with our amazing little boys. Through the tears, there has also been a lot of love, joy, and laughter and an overall deep appreciation of each other and our boys, as well as our family and friends. We know we are so loved and thank you all for that!!
I have access to and will continue to receive some of the best treatment options available for TNBC through UW’s Seattle Cancer Care Alliance and Fred Hutchinson Research Center. I hope to extend my journey as long as possible and fight as hard as I can. I am currently receiving Keytruda, an immunotherapy drug, that has had some success at stabilizing metastasis in TNBC. It is too soon to tell, but we are hoping it is doing its job. I am also on standby to enroll in one of the most fascinating and promising trials for Stage 4 TNBC in the nation, called CAR-T Cell Therapy. CAR-T Cell Therapy has shown extreme success with blood cancers. The trial is now expanded to TNBC solid tumors. It is the only one of its kind in the nation, and I am extremely fortunate that it is based in Seattle and that my oncologist is heading the trial. I have an amazing care team who is doing everything in their power to get me the best treatment possible.
This is definitely not the update I wanted to give, but we are so incredibly thankful for everyone’s love and support. Throughout this journey I hope to raise awareness about Triple Negative Breast Cancer and encourage others to do the same. Please educate yourself and others and continue to spread the word - https://tnbcfoundation.org/why-support-tnbc-foundation/
With Love Always,
If there is anything I can do in any way please let me know. I can pick up groceries, run errands. If your son wants a day to play in a pool with some friends I can arrange that as well. Please let me know if there is anything I can do. You are a remarkable women! Your positive attitude is an incredible inspiration.
Hi Kendall. Read the info on t-cells. Truly amazing. Continuing to pray for you all and put you on several prayer chains. Love you, Aunt Mary. PS thanks for note about the quilt.