Two Cancers, One Goal
Robert is early in his battle against metastatic melanoma and prostate cancer. He has endured one surgery already and is facing another, in addition to treatments and recovery. Robert is seeing many different doctors in an attempt to cure these terrible cancers. Despite medical insurance, the medical bills are beginning to overwhelm our family. Any donation will help us defray the costs of our seemingly endless doctor and hospital visits and costs. Thanks so much for taking the time to read our story.
Take care everyone. :)
Kathi and Robert
Robert's appointment with dermatology/oncology resulted in a biopsy (small punch biopsy). He's been concerned about a few spots but this one he couldn't see on the back of his left arm. Results arrived today: squamous cell carcinoma. Robert now has three cancers. Luckily I was home when the call came in to him. His reaction was different than mine, yet both demonstrating extreme distress, sadness, frustration...and any other reactions one might have when discovering you/your spouse has another cancer. This follows a weekend of some immoral individual (s) that decided to hack Robert's debit card and drain our bank account. We figured it out with $10 left in our account. Needless to say, it has been on hell of a prior week. I can deal with the bank and recover the money eventually. However, cancer doesn't go away. A painful lesson we've learned over the past 5 years.
We are now awaiting a call to schedule surgery to do a wide excision of the area where the cancer is located. Hopefully this will occur within the next week or so. I will post again after the next round of appointments and this procedure. As difficult as this is to live each day, I'm still grateful Robert is still fighting and trying to persevere. The difficult task that awaits is telling our daughter. We may wait until the surgery is done and we have results from that. No need to worry her right now...I hope that's the correct decision.
If you wish to help, anything would be most appreciated. I hate even typing the above sentence but my salary has not increased but our health insurance premiums have, including copays and medications. Insurance is roughly 1/4 of my paycheck each month. At any rate, no pressure to our dear family and friends. Your love and support help more than you know. Thank you for thinking of us and continuing to follow our journey. Just ask for my Venmo account if anyone wishes to do that instead of a GoFundMe donation.
Love and peace to all. :)
Kathi and Robert
I hope everyone had a safe and happy holiday and new year. Our family spent a quiet week at home with a few trips out since the weather has been mild. It's nice to have light traffic and no students on campus; only a few more days of that before the craziness begins again.
Robert had his quarterly oncology appointment on Monday, just in time to add it to the 2018 insurance coverage. All of the copays and deductibles began again on Tuesday. At any rate, everything went smoothly since it was New Year's Eve day; little traffic in Indy and the cancer center wasn't busy. Nothing new to report on the CT scans from Monday, meaning no changes since the end of September. However, his bloodwork is showing a drop in kidney function again. Robert had a 6 month mild recovery period where his kidney function experienced a slight rebound. No explanation as to why but now it seems to be decreasing again. His creatinine levels are the highest they've ever been and the overall function is back to the low point of about a year ago. He is not at severe loss of function for dialysis but the numbers are showing a drastic enough change that his oncologist will notify his kidney doc for further information. Robert will see her again in February.
Overall, Robert has been feeling extremely fatigued and the neuropathy is worsening. The fatigue may be a combo of the constant pain and decreasing kidney function. He tries to remain in good spirits but he has many days where it's difficult to stay positive. Robert struggles to get out of bed some days but at least the pets provide him some motivation to get up and move. I must admit, it continues to take its toll on me and it can be emotionally crushing watching him slowly decline each day/week/month. After 5.5 years, I'm truly exhausted. I can tell Angeline struggles with it some days, too. No child should have to watch his/her parent struggle like this. She's an amazing kid and I can only hope this experience makes her a strong, confident adult.
Right now we are just enjoying the last few days of the holiday break and preparing for Angeline's birthday. Something positive to look forward to in a week or so. The kiddo wants to do an escape room with a few friends and I'm all for a fun experience where they can learn yet have fun. The party/escape room will have to wait until payday since the holidays wiped us clean. We are lucky our daughter is an understanding and caring kiddo...not something often seen in a 12 year old. :)
Wishing everyone a wonderful and safe new year! Enjoy the pic of our cat JoJo admiring the Xmas tree. It's due to come down this weekend. Peace and love to all!
Kathi and Robert
Robert has two appointments, one this week and one on the 31st. He is struggling with the neuropathy, which is worsening. There just isn't much else that can be done. He continues to feel useless and tells me he feels like a ghost, an entity that can make noises and open doors and drawers. I do my best to keep him upbeat but I think the kiddo and the dog keep him going more than anything. I'm just his cheerleader, a role that suits me well.
Weird news this week:
Mice have overthrown our couch. Our cats have failed Essential Cat 101; I told them so and "fired" them as cats. I love them anyway but perplexed they didn't figure out mice were trooping in and out of the house taking away parts of the couch and probably some of their food. The couch is now in the garage and I'm rocking a cool lawn chair until we can afford another couch.
I learned late this week I have COPD...talk about a sudden turn, I didn't expect that diagnosis at all. I was told it is most likely due to untreated asthma. Okay. All I have is a mild, chronic cough...no breathing issues yet. I see a pulmonologist soon for more tests and to find out the severity of the disease. At least I take comfort that it is easily treated in most cases. Just what this family needs is more doctors, tests, and medications. Oh well...I think I'm just tired of being a grown-up right now.
At any rate, we hope everyone has a happy and safe holiday season! We continue to be filled with gratitude for such wonderful family and friends. Thank you all for your love and support. :)
Peace and love to all!
Kathi, Robert, and Angeline
I love the "Gotcha Day". What a great idea. I should celebrate that with my 2 brothers. I came via stork - they got to ride a 747 from Korea. Awesome!
Sorry Cathy for all these illness comes to Robert. Hope the surgery go smoothly. I am Hongyu from Ann Arbor. Taking care yourself.