Donation Page for McGee Family

$4,355 of $10k goal

Raised by 40 people in 43 months
Crystal Bowron  ANTIOCH, TN


My 20 year old brother, Ryan McGee, passed away unexpectedly on August 11, 2013 from a rare brain condition called Chiari Malformation. Ryan was a huge advocate of organ donation and had signed his donor card when getting his drivers license. Our mother was diagnosed with IGA Nephropothy, a genetic form of kidney disease, 20 years ago and has been on the transplant waiting list for the last several years. When Ryan passed she was encouraged to undergo testing to find out if Ryan might be a match for her. Lo and behold he was and so she went in for her transplant the day after his death. She is now doing well and in recovery. During the three months that my brother was sick my dad lost his business and my mom was forced to move in with my husband and I after losing their townhome. Due to the unexpected nature of these events, there was nothing set aside for funeral costs, etc. Any help you can give would be greatly appreciated! All money past family expenses will go to the Chiari Warriors Foundation and the Donate Life Foundation.




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Update 8
Posted by Crystal Bowron
39 months ago
1
1
Good news Chiarians!! My mother will be going on the television show, The Doctors in September to discuss Chiari Malformation and the importance of further research and better treatment. She will also be discussing the importance of organ donation and the effect it has on people's lives. Mom is extremely nervous, but she is committed to doing whatever necessary to shed light on Chiari Malformation and organ donation. Every little bit helps!! If you are a Chiarian, what things would you like to see her talk about on the show?
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Update 7
Posted by Crystal Bowron
39 months ago
You all are so amazingly generous!! I can't believe we're almost half way to our goal. If you've already donated, would you please consider sharing our donation page on your Facebook or Twitter account? We are so appreciative of all of the love and support we've received over the past week. We can never thank you guys enough!
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Update 6
Posted by Crystal Bowron
39 months ago
Today I said a final goodbye to my baby brother. After the funeral service we came home and released 20 purple balloons in honor of his struggle with Chiari Malformation. He will no longer be in pain. No more hospital stays, no more MRIs, no more doctors who won't listen or medications being pushed on you. Fly home Ryan, Sissy loves you!
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Update 5
Posted by Crystal Bowron
39 months ago
September is Chiari Malformation awareness month!
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Read a Previous Update
Help spread the word!
 375 total shares
Zona McRee Mcgee
31 months ago

Ryan McGee chiari angel facebook .com

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Zona McRee Mcgee
31 months ago

https://m.facebook.com/RyanMcgeechiariangel?_rdr#!/sharer.php?sid=403988456390038&refid=17 Please visit Ryan's facebook page to learn more about Chiari and our fight for justice in the death of my son.

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Sean Cuellar
31 months ago

I am Sean Cuellar's mom and my son recently had surgery for Chiari at Children's Hospital in Oakland, Ca. After 4 x=rays and 3rd & 4th opinions, we chose Dr. Kurtis Aguste, and we're glad we did. Sean recovered quickly, & can now play any sport he chooses; he no longer has to worry about becoming paralyzed if he has a concussion or his head begins to bleed because of the C. Malformation.

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Amanda Favors
40 months ago

Wish I had money to donate but sadly I don't. Just wanted to let you know I definitely understand CHIARI. My oldest has CHIARI. He was dx at 4 years old & now is 14. He just had brain surgery in December. So sorry for your loss. This is why I fight so hard to get word about CHIARI out. Our page is www.facebook.com/JosephDevinMichael

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Crystal Bowron
40 months ago

Wow! Thank you Ashley! It aired tonight, but you can see the interview here:http://www.wkrn.com/story/23174243/mother-receives-life-saving-kidney-after-sons-death

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Ashley Vadner
40 months ago

Do you know when they are going to broadcast it on the news? I, infortunately, am not able to donate right now but....I emailed the storey to The Ellen show and also posted it on my fb page and Instagram. I hope you reach your goal and then some!

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Crystal Bowron
43 months ago

Thank you Aunt Squeen!!! :)

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$4,355 of $10k goal

Raised by 40 people in 43 months
Created May 17, 2013
JB
$100
Jennifer Bailey
39 months ago

Thank you Ryan for always reminding us it is the little things in life that mean the most.

$50
Anonymous
39 months ago
$25
Anonymous
39 months ago
SL
$50
Stella Lochmiller
39 months ago

May God Bless this incredible family. I pray that a cure is found soon for this horrible disease. Please make sure to be a donor.

$25
Tammie Reynolds
39 months ago

I was just diagnosed with this.. So very sorry.. Praying for your family.

PM
$100
Patricia Myers
39 months ago (Offline Donation)
CW
$1,000
Christopher & Ansley Wells
39 months ago (Offline Donation)
CW
$100
Cliff and Andree Wells
39 months ago (Offline Donation)
JM
$100
Judy Marshall
39 months ago

My prayers to you and your family... I am a fellow Chiarian and my heart breaks for you.. May your mom heal fast and always know that her son is with her..

RG
$75
Rebecca & Brian Del Giudice
39 months ago
Zona McRee Mcgee
31 months ago

Ryan McGee chiari angel facebook .com

+ Read More
Zona McRee Mcgee
31 months ago

https://m.facebook.com/RyanMcgeechiariangel?_rdr#!/sharer.php?sid=403988456390038&refid=17 Please visit Ryan's facebook page to learn more about Chiari and our fight for justice in the death of my son.

+ Read More
Sean Cuellar
31 months ago

I am Sean Cuellar's mom and my son recently had surgery for Chiari at Children's Hospital in Oakland, Ca. After 4 x=rays and 3rd & 4th opinions, we chose Dr. Kurtis Aguste, and we're glad we did. Sean recovered quickly, & can now play any sport he chooses; he no longer has to worry about becoming paralyzed if he has a concussion or his head begins to bleed because of the C. Malformation.

+ Read More
Amanda Favors
40 months ago

Wish I had money to donate but sadly I don't. Just wanted to let you know I definitely understand CHIARI. My oldest has CHIARI. He was dx at 4 years old & now is 14. He just had brain surgery in December. So sorry for your loss. This is why I fight so hard to get word about CHIARI out. Our page is www.facebook.com/JosephDevinMichael

+ Read More
Crystal Bowron
40 months ago

Wow! Thank you Ashley! It aired tonight, but you can see the interview here:http://www.wkrn.com/story/23174243/mother-receives-life-saving-kidney-after-sons-death

+ Read More
Ashley Vadner
40 months ago

Do you know when they are going to broadcast it on the news? I, infortunately, am not able to donate right now but....I emailed the storey to The Ellen show and also posted it on my fb page and Instagram. I hope you reach your goal and then some!

+ Read More
Crystal Bowron
43 months ago

Thank you Aunt Squeen!!! :)

+ Read More
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