Baby Mia's Heart Surgery

$4,580 of $5,000 goal

Raised by 59 people in 20 months
Fran Lundstrom
on behalf of Genevieve Lundstrom
 BOWIE, MD
Hope for Mia
Genne and Maynor are expecting their little girl, Mia Rose Sofia, in February 2017.  Recently, they received devastating news that Mia’s heart is not developing properly. Her condition is called Hypoplastic Left Heart Syndrome, or HLHS.

Hypoplastic Left Heart Syndrome
The left side of Mia’s heart is not growing, which pumps blood everywhere in her body, except to her lungs - that’s the job of the right side of her heart, which is developing normally.  It is a rare disease (affecting 4 out of 10,000 children), but there is hope for her with the miracle of modern medicine. 

She will need three heart surgeries in her first 5 years of life.  Her first surgery will be within 1 week of being born.  Essentially, the surgeries will insert a device to allow the right side of her heart to also do the work of the left side.

Exciting Therapies
Genne has been doing her homework.  She has contacted doctors across the country, including the Mayo Clinic, Boston General Hospital, Johns Hopkins and the Children’s Hospital of Philadelphia, to learn about her condition and the best course of action.  The most exciting option at this time, based on her diagnosis and preliminary testing, involves the injection of stem cells to strengthen the left side of her heart.  Stem cell therapy is a very new approach and experimental in nature, but promising, nonetheless. 

How can we help Genne, Maynor and Mia?
We hope insurance covers the cost of Mia’s surgeries and treatment.  However, Genne and Maynor will have a lot of expenses to travel to and stay in another city as well as miss work to be with her in the hospital, which could be a month or more after she is born.

Any donation to help with these expenses is so appreciated by Genne, Maynor and both of their families.  It will go a long way to allow them to focus on Mia’s health and reduce stress associated with financial difficulties.

Lots of children with HLHS have great outcomes.  They can run, play on sports teams and grow up to adulthood.  We hope and pray that will be Mia’s story!

God has given us the miracle of Mia.  We know he will give us the strength and love to do the hard work that will be required for her to be a Heart Hero!
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Mia's Funeral Service was beautiful.Thanks to all who came and helped us celebrate. All the children formed a procession line , then each placed a Rose next to her urn. All of the speeches were inspiring,and,even some of the hospital Nurses showed up to pay their respects. The speeches were all inspiring. Our beautiful Mia Rose is now resting in peace gently in the arms of God.
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Mia Rose's Funeral Service will be held at Robert E.Evanss Funeral Home in Bowie,Md.20715.It will be on Wednesday,Feb.15th,2017 at 1pm. thanks to all who have helped to support us and given us strength throughout this trying time in our lives. We feel Blessed by all the support we have received. Peace be with you all. Be blessed.
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We are sorry to say that Baby Mia Rose has passed.Genne and Maynor wish to make sure that everyone knows that there donations will go to help pay for her funeral.Thanks for all of your prayers,support,donations,and,strength to help us move forward. Blessings to all.
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Mia Rose is 11 days old today.She was able t o come off of ventilator for thirty minutes yesterday , but then suddenly went into cardiac arrest again, and,was put back on the ventilator.We are still praying for her.Today the doctors will go back in to run some tests to try and figure out what may have happened.We are remaining strong in God's Faith that our little princess warrior will battle thru this latest setback.?Pray with us.
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Read a Previous Update
Adele Liebermann Richardson
19 months ago

Thank you for the update!

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$4,580 of $5,000 goal

Raised by 59 people in 20 months
Created October 7, 2016
Fran Lundstrom
on behalf of Genevieve Lundstrom
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CE
$50
Carol Evans
16 months ago

Friend of Aimee's from work

FM

Our thoughts and prayers are with you.

$25
Anonymous
16 months ago
$100
Anonymous
16 months ago
$75
Anonymous
16 months ago
RB
$50
Ron Sr & Ginnie Barbagallo
16 months ago

We are so sorry Genne and Maynor. Baby Mia Rose is surely with God as she waits for you both.

$20
Wua N Barbara Zawolo
16 months ago

May the Lord send speedy healing and restoration for your little one in Jesus' name, amen!

Adele Liebermann Richardson
19 months ago

Thank you for the update!

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