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Lisa Parker and Family MND fund

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My wife Lisa was diagnosed with Motor Neurone Disease (ALS) on January 26th 2015.   That day, the whole world fell out of our little family and everything changed forever.  Life expectancy with MND is considered to be between two to five years from the onset of symptoms.  It is just a little over a year now since Lisa was diagnosed and her symptoms probably started to surface a good six to eight months before that.  Time has never felt so precious or so short.  

This disease is so vile and destructive.  To witness someone suffering from MND and watch their daily struggle as their body litterally gives up on them, day by day, bit by bit is simply heartbreaking.   

We have a little boy called Zack who is 7 now.  He knows that mummy is very very sick although he dosn't fully understand the enormity of  what is happening. But he sees his mummy getting weaker and less able to do the things she could before and he sees her struggling more and more.  He has already witnesed some upsetting events.  Lisa has had some falls and suffered from choking attacks from aspirating food and muscle spasms due to her respiritory system becoming impared by the disease.  

Lisa has dealt with everything with such dignity and strength.  It is beyond comprehension how hard it is for her to have her body fail her in this way.  As her husband,  it makes me feel so helpless and powerless wathching this happen to her knowing there is no way I can protect her or our son from having to go through this. 

A beautiful and telented, strong woman is loosing her life and all the things she should be looking forward to, watching her child grow up, growing old with her husband and enjoying life.  A husband is loosing his wife and best friend, growing old and enjoying life together watching their family grow.  And no child should loose their mother so young.

There are a lot of things that we need to help us right now.   Our main focus is on just living and celebrating every day that we spend together.  We moved a few months back which hasn't worked out and now we need to move again, back to a place where we can all be happy.  We want to take a holiday somewhere.  Lisa's dad and brother live in America.  Lisa hasn't seen them for a long time and Zack and I have never met her brother and his family.  So that is something that we want to make happen soon, if it is at all possible.  Air travel will be very difficult for Lisa and less likely to be possible at all as her health deteriorates.    There are also a lot of things that Lisa will need such as equipment to help her quality of life.

Anything that you can help with will be greatly apreciated and any funds we receive will go towards helping Lisa to enjoy life to the full in comfort and help us all as a family to enjoy the time we have left together and share precious moments and continue to make memories.

Thank you.
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Donations 

  • karen spencer
    • £100 
    • 8 yrs
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Organizer

Anthony Parker
Organizer

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