Hartford Cystic Fibrosis Fund
Accomplishments of the board include :
*-launched a Facebook group for adults with CF - "CF in the CT"
*-made improvements to CF inpatient visits including self management of care
*-advised clinic staff on improvements to new clinic space in the Brownstone Building
*-started a mentoring program for patients and parents called "CF Listeners Program"
In 2015, the Board decided to go full blast and launch a new 501(c)3 charity group to assist CF patients and their families during inpatient hospital stays, both at Hartford Hospital and Connecticut Childrens Medical Center.
The purpose of the Fund is for donations to go towards giving a little extra to CF patients of all ages while they are hospitilized. Donations will be used by the Adult Advisory Board to purchase items such as FitBits, iTunes cards, birthday cakes, holiday baskets, books, home spirometers and much more!
The members of the Board hope these"gifts of compassion" will provide support and encouragement to CF children, their families and CF adults, knowing that there are other people with CF who are thriving and actively involved with care provided to CF patients. This kind of "bridge building" between adult and pediatric CF programs will support the transition of CF children to adult care and will build contacts among adults with CF who are isolated while inpatient due to infection control guidelines.*
For more information about the advisory board, facebook group or mentoring groups, contact
Amy Mueller, LCSW (860)972-4353 email: Amy.Mueller@hhchealth.org
Sarah Cabahug, LCSW (860)545-9876 email: Scabahug@connecticutchildrens.org
Hartford CF Inpatient Fund
Avon CT 06001
-reciept avail. upon request (tax id) 47-5445790
The purpose of the Inpatient Fund is to bring a little cheer to Cystic Fibrosis pediatric and adult patients whilst hospitalized.