Our Rae of Sunshine Medical Expense
We (Parsons Family) recently found out that our Miracle "Rae of Sunshine”, Rae, our Goddaughter, is critically ill. She is 3 years old and has a tough road ahead of her. She needs long term treatment for multiple medical complications. Some of this treatment will be recieved out of state. The family will be going to National Jewish Hospital in Denver, CO during the month of September to participate in their long term treatment program, with follow-up visits to the same facility. The family hopes that NJH can also provide a more detailed cause of illness and symptoms, and narrow down the exact diagnosis of her serious lung complications, and other critical health issues. This treatment program will assess her immune complications, CVID, her recurrent pneumonia caused by thickened mucous lining her lungs, her recurrent episodes of anaphylactic shock, her gastro complications, that will require future complicated surgery, and her lung complications brought on by aspiration of fluids, and aspiration of intestinal fluids. All of these critical issues have caused serious damage to her lungs, stomach, esophagus, and other areas. She is in need of medical equipment to assist with her breathing, immune, & gastric complications. Many of these medical items are not fully covered, such as, specialized feeding supplies that assist with minimizing her aspiration, a specialized vest to clear collected mucous from her lungs, and an elevated medical bed to minimize the damage being done internally by the aspiration of her gastric fluids, and feeding therapies, are not always covered by insurance. Rae, has had multiple critical ambulance rides that have been denied by insurance, as well as high cost related to 5 surgeries, and more surgical procedures are planned. These have had high out of pocket cost. These high medical costs do not include the emergency visits, and long hospital stays her family has had to endure. Her family is going to need a lot of help with expenses from medical needs to travel cost during their time at National Jewish Hospital. Her mommy and daddy have been thru so much and are two of the most selfless people we know. They will help out anyone who is in need no matter what. Her mother, had to leave work for multiple months to care for Rae. We love them more than words can ever say. Rae, her brother, and her parents need all the help they can get. We are so thankful that you took the time to read this. Any amount that you can give will definitely be appreciated. We are incredibly grateful to all of you! Please help us help our beautiful Miracle Goddaughter that is our "Rae Of Sunshine" and her wonderful parents Celeste & Ben.
Her medical team has prepared the family for Rae to get very sick this winter with the new environment. With the travel for medical teams, and the unknown of the future, Rae's mommy will not be working in their new state.
Rae just started ballet class last week as her parents believe letting her do things that make her happy is important, even if hard. She becomes tired easily on some days.
The family continues to try new medications, new treatments, and seek new solutions for Rae's comfort. She continues to be treated on a CF protocol. This all comes at a large out of pocket cost.
This miracle baby has struggled since she was six months old with 10+ surgeries, many many hospitalizations, long stays away from home for treatment, and does it all with a bravery and personality that is amazing. Thank you for all your continued support of the family! We are beyond grateful for your kindness.
Rae, her mommy and daddy leave on the 9th of September to head to Jewish National in Denver. This is quite an intensive hospital stay with surgery, testing etc. Please pray for wisdom of the doctors and steady hands. Please pray that we get more answers and that Rae is healed. Please pray for strength, and faith for CC and Ben.
Thank you all for all the love, support and prayers you having given to Miss Rae and her amazing family.
Please keep sharing this campaign and give if you are able.
God bless you all!
The hospital requires $5400 before they will admit Raewynn.
Hello everyone, I was notified that a few things were unclear to some. First I would like to tell everyone who I am and how I am related to Rae. Fortunately 3 years ago my husband I were asked to be Rae's Godparents. We accepted with honor and lots of happy tears. CC is my best friend, more like a sister. The whole Bales family are apart of my heart. Secondly I would like to clarify that all money raised go directly to the Bales family. They are using this money to pay medical bills that Rae has accumulated and continues to accumulate. The money will also be used to help with out of state expenses, i.e. hotel, food, etc. while the family is in Denver. Again we are so very humbled by everyone's kindness and generosity. Please keep sharing this campaign, as every little bit helps this amazing family! God bless.
Hi everybody. We are completely humbled by the generous people that have donated so far. As you may have read on CC's post a lot of Rae's expenses are niw being denied by insurance. I wont even go into how upset this makes me. Please if you can help my beautiful Goddaughter and her family please do! It takes a village.