Eli's fight 4 life from snake bite
Long story short: Eli is one of my sons playmates and is the only other toddler that lives on our street here in rural Queensland. My wife Loulita and Eli's mum Brittany are good friends and our families have many similarities. I work in emergency services and hearing of the ordeal sent a shockwave through our small, tight-knit community. It hit really close to home for me as I have 2 young sons and another on the way. Eli's mother is also pregnant and due to give birth early next year around the same time as my wife. It is a situation that could of easily happened to my family or any other young families that live in rural Australia.
The situation has caused Eli's family to have to drop everything to be by his side at the hospital which is almost 500 kilometers away.
All funds raised will go to Eli's medical bills along with his hopeful recovery. Funds will be directly deposited into the family's bank account.
Eli's parents have said that they want any excess funds raised to be donated to one of the multiple organisations who've helped them along the way like CareFlight etc.
Please donate and share this campaign
I will write a quick update on Eli's recover below:
Thank you for enquiring about Eli's recovery, as you know the situation with Eli is quite complicated due to his brain injury and the resultant epilepsy. Eli was doing well with his recovery until he became sick with a virus 2 weeks ago which led to quite a severe seizure requiring hospitalisation again. He is now recovering from the seizure although the effects are still somewhat apparent.
It seems that sickness is a major trigger for Eli's epilepsy so we are trying to keep him infection free as much as possible as his seizures seem to be prolonged and a little hazardous.
Despite all of this he is still showing signs of recovery, he is walking with better balance now and is speaking and playing with some currently minor speech and cognitive delays.
Each year of his life will tell us more about his condition, we of course hope for the best and do everything we can to give him encouragement and joy.
Brittany, Giles, Eli and Lucas
Since posting the videos of Eli walking both Brittany and Giles have been told by neurology doctors that he has epilepsy from the brain injury, after being told for 2 months his eeg was fine they suddenly decided it's not.
This must be the most traumatic, rollercoaster of emotional torture that parents could go through. Going from seeing your son die in front of you, to being critically ill and fighting for life. From having to drop there whole life in Agnes Water, to living at the hospital by Eli's side. To seeing Eli's unbelievable improvements like walking again, to being told he has cortical visual issues which means he sees things but might not understand them. I don't think that there is anyone out there that could even understand what they are going through.
Yes Eli is a little super kid for being where he's at and it was absolutely amazing to see him walking again, but it has been an incredibly difficult process to get there. A week before the videos of him walking were taken Eli had prolonged seizure. From what Brittany and Giles told me it was like going 3 steps forward and 2 steps back.
To be honest, no one really knows what the future holds for him, not even the doctors.
Hopefully everyone can try and understand what this family is going through and respect there privacy now that they have left the hospital. They have to stay close to the hospital for rehabilitation purposes for at least the next 6 months and quite possibly have to move permanently depending on what happens with his conditions.
We are asking everyone to please stay positive and hope that Eli's conditions improve and fingers crossed he grows out of any issues that may occur moving forward. We would also like to thank everyone who has donated and supported Eli's cause during this challenging time.
Thank you to everyone for your continued well wishes and prayers. It is such a wonderful thing to know how many
people are thinking of Eli on a daily basis.
We just realized its been 3 weeks since we have written an update on Eli's progress. To be honest, we were just trying to keep up with him! The past 3 weeks have been a roller coaster, seeing Eli sit on his own and stand up, to having an unexpected seizure, to now watching him walk on his own. What has surprised us the most is his ability to be able to see and recognize certain objects around him.
Although the seizure was a minor setback, he has recovered quickly and is back to his energetic self. Since the seizure he has gained more control of his right hand which was previously lacking compared to his left. He also seemed to be more interested in speaking, repeating words he was hearing around him. Goes to show there can sometimes be positives in what seems like a very negative situation.
Eli took his first unassisted steps 2 weeks ago. He is currently sitting, standing and walking (a little awkwardly) on his own. The next step is to master the stairs again. Eli spends time in his custom fitted AFO boots (Ankle Foot Orthosis) for a bit more stability in his lower leg and ankles, which helps him to use proper trunk muscles and increases his ability to use his arms and hands to do other tasks while standing.
Eli is beginning to develop his vocabulary again, using some words and phrases he used prior to the incident but also lots of new words hes never even attempted before. He is starting to use short, multiple word phrases and making word associations (cow->moo). An amazing moment for Giles and I was while walking along the Brisbane River at South Bank, Eli looked at the water and said "ocean" (Ocean is what he used to call most bodies of water before the incident). We just looked at each other with teary eyes and said "he can see".
Now for the best news we could hear as parents, Eli passed an eye test for any standard 2 year old, brain-injured or not. That puts him in the classification as "independent", next would be "driving" and then "careers". He was able to demonstrate fixing on an object and following it with both eyes and with each eye individually. He was also able to pick up very small objects placed in front of him. We still don't know if he is able to see in color, that will be something that can be assessed later.
With the talking and seeing, we are still noticing things being more transient, not necessarily consistent as of yet. That was one of the effects listed for the area of his brain injured, he could have trouble interpreting what he sees or that his ability to recognize things could come and go. He has impressed us thus far with how far he has come, completely exceeding our exceptions in a short amount of time. Therapists have mentioned that Eli has exceeded his prognosis and they really can't say where Eli's progress will end. We are so so thankful that our boy is fighting, not giving up, and showing no signs of slowing down.
We are looking at a discharge date Friday of next week. Giles and I have rented an apartment down the street from the hospital which we intend to be in for at least the next 6 months so Eli can still access the best care in the area and his brother will also be born in the hospital next door to the Lady Cilento. It will be amazing to have our boy at "home" with us so we can start to rebuild our lives together again.
We wanted to thank the amazing community of Agnes Water/ 1770 for all they have done for us. To the people around the world that have been touched by Eli's story and have donated to the GO Fund Me account, and to the floods of messages we personally receive from family, friends and strangers just letting us know we are in their thoughts.
And a big thank you to Blake and his family, who says his efforts were no big deal but to us have been mountainous.
You are a quality human being.
With love from Giles, Britt and Eli.
If you need a place to stay in Brisbane you are most welcome to stay with us for free. We have a self-contained lower section of our home. which is quite separate. 2 full bedrooms, lounge, kitchenette and bathroom. It is close to the CBD. We have it on air bnb but you can use it for as long as you need for no cost. We have family who work at Lady Cilento Hospital and you are welcome to check us out to make sure we are not nut jobs. My husband and I have 6 sons between us and I am a grandma of 1. Just private message me on facebook if we can help you at all. All the very best with your little man.
Goodnes what a terrifying moment for you all. My son 5 trs ago was bitten by a snake thankfully no venom in his bite. After my emergency transfer I realised the need for support for those so far from home. I now run a program here in Brisbane and would love to help you reduce the day to day expense of staying here. I can help you with organizing subsidised accommodation via the patient trsvel subsidy, help with home cooked meals and other things you may need while you are my page - https://www.facebook.com/ruralpatientscityhospital/ Feel free to message me if you would like to discuss further how we can assist you. All the best for a speedy and full recovery xx
Hi Blake, we are so happy to have helped support your campaign, as a father who lost a child, and a newly pregnant wife we were filled with emotion to help beautiful Eli, God speed on his recovery and a happy family reunion. It's so nice to be proud of all the Aussies and the love we all share to kick in when it's needed. Bless us all everybody. Alexander
I pray that Eli will make a full recovery from this dreadful experience, and you have your sweet little boy home with you in time for the baby to arrive. It must have been the scariest moment of a mother's life watching that awful reptile attacking someone so small. I'm sending you all much love and many hugs. ♥ ♥ xxx
Giles, Brittany and Eli... Forever remember Eli's abilities and what he can do as you take this journey into the future. If we can do anything to help you please let me know at the café. You have a whole community here in Agnes that hopes you make it back here one day so we can support your family. Leisa
Please get the family to contact Justine from the Facebook page 'Breaking down the barriers for rural patients in city hospitals - Brisbane' She has a wealth of knowledge to help families and is sometimes able to help by dropping off home cooked meals for parents
thank you for the update so happy to here he is out of ICU. I really feel ELI will make a great recovery in time. when his little body can process it all. with the love of the family and all that have prayed for this child. I will continue to send healing to him. If you can put a Rose Quartz near him this will help. its a powerful Crystal for LOVE'. Go ELI you are a little fighter. blessing to you all
My 2 year old son was bitten by a snake a couple of days before your beautiful boy Eli was bitten. (we are on the sunshine coast)Thankfully the snake released no venom. I feel for you and I cry every time I read updates. I have been following your son's progress and am praying for him. My little boy use to collect eggs also but since his bite, I won't let him which is so sad, as like your property, we have lots of snake encounters. I really hope Eli makes a full recovery which is very possible. He is such a beautiful boy.
So sorry to hear of the latest update, so much to understand and accept and of course plan ahead. I just wanted to let you know that if you did want to consider a 6 -12mth private rental while here, as required to be her for medical reasons you are able to arrange for your local hospital to pay upto $500 per week via ptss. It is a subsidy so it means you pay it up front but ptss will refund it each week or fortnight. As long as you still have a permanent address at home you can apply for this. I know many who have decided private rental was a better option for longer term stays. . I am happy to help with further info about this my web page www.ruralpatientsupport.com All the best as you process such life changing diagnosis
The Gospel of your Savior Jesus Christ says in Matthew 18:19 Again I say unto you, That if two of you shall agree on earth as touching any thing that they shall ask, it shall be done for them of my Father which is in heaven. My friend Duane and I have agreed that this little boy shall be completely healed and leave hospital fine.We have made that agreement in the name of Jesus Christ and it will be done.
Wonderful news! Thanks for the update! Wishing you all a very safe and healthy 2017, sending best wishes for a steady and speedy recovery!!
Thanks for the update Blake. Wishing Eli's family a time of peace at Christmas and hoping for a full recovery over time. God bless them as they negotiate this difficult journey, Our heart is with you. Barb x x
Thankyou for the update Blake. It brought me to tears to understand what you are all going through. My heart and prayers go to you all. Eli is a little fighter and we remain positive. xxx