Kassidy's Kidney Transplant

$14,404 of $750k goal

Raised by 173 people in 40 months
Julia Fredericks Frevert   PHOENIXVILLE, PA
Kassidy Frevert was a normal healthy 6 year old girl who loved playing with her American Girl Dolls and going to school until she was somehow exposed to ecoli in November of 2012. Kassidy was on a trip to her grandmothers for a long weekend when she started to have symptoms of abdominal pain and bloody diarrhea. Kassidy was taken to Children's hospital and was admitted for these symptoms. A few days later the doctors diagnosed Kassidy with Hemolytic Uremic Syndrome also know as HUS. The doctors were able to isolate the type of ecoli that Kassidy was exposed to and unfortunately this kind of ecoli( 0157) releases a toxin know as shinga toxin that causes the HUS. As a result of the HUS, Kassidy became very ill causing her to need a breathing tube and her kidneys shut down. Shortly after Kassidy was hospitalized her 1 year old brother Kevin also started having symptoms of bloody diarrhea and was diagnosed with being exposed to ecoli as well. Thankfully Kevin never developed HUS and was released from the hospital a week later.
Kassidy spent a month in the ICU in critical condition and just before they were going to discharge her home still in kidney failure and needing dialysis, the doctors realized she had two holes in her colon and was rushed off for emergency surgery. Kassidy became very sick on the operating table and the doctors were unable to close up her body due to her unstable condition. Kassidy was once again was admitted to the ICU and put on a breathing tube while they tried to stabilize her condition. Kassidy was brought back into surgery the Friday after Thanksgiving and the surgeons were able to create a colostomy and close up her body after removing 90 percent of her large intestine. Kassidy remained in the hospital until the end of December struggling to recuperate from an extensive surgery and still in kidney failure requiring dialysis. When Kassidy left the hospital she was so weak and debilitated she could not stand up or even sit for long periods of time. Kassidy could not even return home to PA until January because she was too weak to withstand the car ride home. The Health department was never able to isolate what product Kassidy and her brother consumed that was contaminated with the ecoli.
Today Kassidy is still in kidney failure and recently had another surgery to reverse her colostomy. Kassidy's condition requires her to take more than 12 pills daily; being 6 years old she struggles with taking so much medication that often makes her feels sick to her stomach. Kassidy is walking today and able to play with her little brothers but is only able to go to Kindergarten a few hours a week due to her fragile condition and need for dialysis three days a week. Hopefully, this summer Kassidy will be able to get her fathers kidney to be transplanted. Kassidy and her family face many struggles each day due to her illness and need for so much medical care. Kassidy will unfortunately likely need more than one donated Kidney in her lifetime and we are trying to raise money for her as she will face a lifetime of medical expenses and needs. Hopefully, soon, Kassidy can return to being a normal 6 year old girl who just loves going to school and play with her dolls.




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Update 11
34 months ago
Kidney working but not completely functional yet- happens about 15 percent of the time with cadaver kidneys - urine out put picking up but potassium still high- thanks for all the prayers and well wishes!!
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Update 10
34 months ago
Kassidy got a Kidney!!!!!!
She is out- tough surgery but they are waking her up now
Kidney was big and her bowels were very swollen- they were not sure if they were gonna be able to close her but after a good deal of manipulation they were able to
She will have a NG tube to help decompress her tonight and hope to remove tomorrow- kidney transplant went well but they hope the urine production picks up in the next few hours
She will be very swollen for awhile
He told us she went nuclear on them during sedation - she is such a tough cookie- Tom says that's why she has made it this far
Hope to see her soon
Keep you posted
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Update 9
34 months ago
Still on home PD- things are still going ok!
We are so grateful for all the support everyone has given us!
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Update 8
35 months ago
Going to CHOP tomorrow to see how well this at home dialysis is really working. praying the Doctors think everything is still ok and we don't have to go back to hemodialysis three times a week in Philly again!!
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 837 total shares
Shannan Cook-Seynhaeve
34 months ago

My daughter, Bella is in Kassidy's class. We've been praying for her every night. So happy to hear she received her kidney. We wish Kassidy a speedy recovery. If there is anything we can do to help, please let us know.

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Denise Schmidt
37 months ago

Hi, I'm Erica's mom. She was diagnosed with aHUS at age 22. Much of what Kassidy has gone thru, Erica did too. Erica's aHUS is because of a genetic abnormality, but we did not know that for almost a year. If I can offer you any information or support, please contact me. We live in Royersford. deniseschmidt331@comcast.net

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Erica Schmidt
37 months ago

I was diagnoses with atypical HUS several years ago. I'm from Royersford and I would love to be able to help your family in any way I can. My email is ericajoanne@gmail.com. Please email me and I will pass on any information I have on the disease. There is a really good support community out there on the internet. I was on PD and also hemo for awhile but my kidneys were actually able to heal once I started taking a new drug called Soliris.

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Kim Malmstrom
37 months ago

Sending positive thoughts and prayers your way! My son's non profit- Kyle's Quillows would love to make a quillow for Kassidy. Please message me or Kyle's Quillows with your address and we will get it out ASAP. We are from Spring City. Kyle had a bone marrow transplant for Very severe aplastic anemia in 2011. Hugs

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Joan Manyeka
39 months ago

My son Jonathan is in Kassidy's class...he is really hopeful that Kassidy will be back in school soon. We are praying for her miracle. We are praying for your family.

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Staci McCullough
39 months ago

My son, Aidan McCullough, is in Kassidy's class. I ask Mrs. Comstock about how Kassidy's doing every time we meet for SLCs, and I get very excited when Aidan tells me that Kassidy was in school for a visit. I know you don't know me, but as a fellow RA parent, if I can be of any support to your family please know that we live in Pottstown and would be happy to assist. I can help run errands or babysit your boys if you want/need to get out for a few hours. Feel free to contact me through Facebook or my email is staci_mccullough@yahoo.com. Kassidy and your family are in my thoughts often.

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Shannan Cook-Seynhaeve
39 months ago

My daughter is also in kindergarten at Renaissance Academy. We just learned about Kassidy today through the school. We will keep her and your entire in our thoughts and prayers.

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$14,404 of $750k goal

Raised by 173 people in 40 months
Created April 24, 2013
Julia Fredericks Frevert     Medical   PHOENIXVILLE, PA
DS
$50
Donna and Joe Sorrentino
32 months ago (Monthly Donation)
FS
$100
Faisal and Lena Siddiqi
33 months ago

Congratulations George and Catherine. Sorry we missed the Wedding, hope to see the newly weds soon!

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DS
$50
Donna and Joe Sorrentino
33 months ago (Monthly Donation)
$100
Anonymous
33 months ago
DJ
$500
Dr. and Mrs. George Thomas, Jr.
33 months ago

In honor of our marriage celebration. Thank you to all for celebrating with us. We are truly blessed, and continue to pray for Kassidy's continued recovery.

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$100
Anonymous
33 months ago
AW
$150
Abigail Wilson
33 months ago
$100
Anonymous
33 months ago
$150
Anonymous
33 months ago
$150
Anonymous
33 months ago
Shannan Cook-Seynhaeve
34 months ago

My daughter, Bella is in Kassidy's class. We've been praying for her every night. So happy to hear she received her kidney. We wish Kassidy a speedy recovery. If there is anything we can do to help, please let us know.

+ Read More
Denise Schmidt
37 months ago

Hi, I'm Erica's mom. She was diagnosed with aHUS at age 22. Much of what Kassidy has gone thru, Erica did too. Erica's aHUS is because of a genetic abnormality, but we did not know that for almost a year. If I can offer you any information or support, please contact me. We live in Royersford. deniseschmidt331@comcast.net

+ Read More
Erica Schmidt
37 months ago

I was diagnoses with atypical HUS several years ago. I'm from Royersford and I would love to be able to help your family in any way I can. My email is ericajoanne@gmail.com. Please email me and I will pass on any information I have on the disease. There is a really good support community out there on the internet. I was on PD and also hemo for awhile but my kidneys were actually able to heal once I started taking a new drug called Soliris.

+ Read More
Kim Malmstrom
37 months ago

Sending positive thoughts and prayers your way! My son's non profit- Kyle's Quillows would love to make a quillow for Kassidy. Please message me or Kyle's Quillows with your address and we will get it out ASAP. We are from Spring City. Kyle had a bone marrow transplant for Very severe aplastic anemia in 2011. Hugs

+ Read More
Joan Manyeka
39 months ago

My son Jonathan is in Kassidy's class...he is really hopeful that Kassidy will be back in school soon. We are praying for her miracle. We are praying for your family.

+ Read More
Staci McCullough
39 months ago

My son, Aidan McCullough, is in Kassidy's class. I ask Mrs. Comstock about how Kassidy's doing every time we meet for SLCs, and I get very excited when Aidan tells me that Kassidy was in school for a visit. I know you don't know me, but as a fellow RA parent, if I can be of any support to your family please know that we live in Pottstown and would be happy to assist. I can help run errands or babysit your boys if you want/need to get out for a few hours. Feel free to contact me through Facebook or my email is staci_mccullough@yahoo.com. Kassidy and your family are in my thoughts often.

+ Read More
Shannan Cook-Seynhaeve
39 months ago

My daughter is also in kindergarten at Renaissance Academy. We just learned about Kassidy today through the school. We will keep her and your entire in our thoughts and prayers.

+ Read More
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