Matt's Medical Marijuana expense's

$14,625 of $50,000 goal

Raised by 142 people in 22 months
We are the parents of Matt Pottenburgh who is classified as  having Severe Tourette's Syndrome. We have been to some of the best doctors in the northeast
since he was 8 years old, he is now 26.  
  At age 24 , 2 years ago, he underwent DBS, Deep Brain 
Stimulation surgery at NYU.   This procedure has helped, but in some patients it takes 4-6 years to find the correct settings and control their tics.
  Matts has severe vocal and physical tics. This make it very difficult for Matt to function on a daily basis. Matt's physical tics has had him in the hospital twice this year. Once for punching himself so many times in the nose, he ended up with a hematoma around the septum and needed surgery, and then in July, Matt kept hitting his eyes and pushing on them that he ruptured the cornea's of both eyes and has been literally almost blind since then. Meanwhile Matt is home healing so the doctors can determine if he is a candidate for cornea transplant.
  In the meantime to stop the tics, of him pushing on his eyeballs, we are using traditional meds, the DBS and now Medical Marijuana, which is so costly, that it will 
require us to sell whatever to keep him suppled with the marijuana. We have seen progress and thats why we are pursuing help. The money raised here will be used for all future purchases of medical marijuana.
  Plus he needs 24/7 care to guide him and help him with his daily tasks and meds, plus watching that he does not reach for his eyes during a tic to further damage them.
  I just bought 4 bottles of liquid marijuana and at Matts present dosage, and each bottle costing 130.00 per bottle. The 4 bottles will last only 12 days, thats 3 days per bottle for 520.00.  We are at the point where we know the dose will keep increasing. This will be a big financial burden since the family already has tremendous amount of medical bills due to his dad having chronic lyme disease. 
  Your contribution would mean the world to us and helping our son who is so strong, and has overcome so many obstacles,  be able to function a normal, independent life once again.

We are forever thankful for your help for whatever you can do for us. We have no idea how long this battle will continue , it can be for life with medical marijuana. We know it definately is with tourettes.
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We would like to thank everyone for the donations to help Matt. Matt is doing better on the marijuana and his eye sight is 20/50 in the right eye w/ glass contacts, the left eye not so good, He returned to work Dec. 5th, a major accomplishment, He cannot drive , so that is an impairment for the time being. Till we see what the future brings. Many private donations did help us from touching the money raised here, We are still using 1500. for roughly 20 days. We are fortunate to have friends who care for matt and everything he has gone thru. Thank you very much .
Greg and Deb Pottenburgh
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Matts tics continue to be a problem, we are seeing progress and we are now trying a new combination of medical marijuana with both the CBD and THC combined. We saw the cornea specialist today. There is a slight change in vision but there is still swelling and will take time to heal before they can asses the damage. This may take up to 6-8 months and then the doctors can figure out what options there are for Matt. Worst case, cornea transplant. Not the news any of us wanted to hear, its going to be a long winter.
The new type of Medical marijuana is 220.00 per bottle and its the THC which we are mixing w/ TBD.
Time will tell as to how this combo works. Hopefully this will continue to calm his motor tics down so no more damage will be done. We will continue to keep you posted. Thanks for your continued support.
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Read a Previous Update
Marilyn Goold
18 months ago
1
1

a very blessed Holiday season to all of you and continued healing and recovery for Matt!

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$14,625 of $50,000 goal

Raised by 142 people in 22 months
Created August 22, 2016
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MS
$100
Margo Storey
20 months ago

Praying for brighter days ahead

DB
$100
Dawnmarie and Mike Blasl
21 months ago

Dear Debbie, Praying for your sweet son! Dawn- Marie and Mike Blasl

$25
Gingerlee Riley-Gibson
21 months ago

Prayers !

JF
$100
Jane Frederick
21 months ago

Continuing prayers for you.

NK
$100
Nancy Kleppel
21 months ago

We are pulling for all of you and hoping things improve ASAP.

Marilyn Goold
18 months ago
1
1

a very blessed Holiday season to all of you and continued healing and recovery for Matt!

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