Maximus' Medical Trip and Expenses

Maximus is my 13 year old son who was diagnosed with a rare, fatal Persoxisomal disorder called Infantile Refsum Disease at the age of one year.  There was no treatment in the US and we had yearly benefits to take him to Spain to a researcher who gave him a much better quality of life with the oil, DHA-ethyl ester. This beloved doctor, Dra. Manuela Martinez,  passed away in 2010. We have been able to obtain the oil, but have recently found a doctor much closer in South Carolina who has started following the patients on DHA-ethyl ester. Thankfully, this doctor is not far away, but the trip is too much for me financially at this time.  I am set to bring Maximus the week of September 12th of this year, so I am hoping to raise enough money for the gas, the appointment and other expenses while we are there. We would be so greatful for any help to get Maximus to Dr. Corbier in SC because we would finally be able to get a better clinical picture of how he is doing. Local specialists here are able to track the symptoms of the disorder, but they are unable to tell us why certain things are happening or how to better help Maximus. This would also allow Maximus to continue to be a part of an important study which has great potential to help children with Peroxisomal disorders in the future. You can read more about Maximus' story at the website: http://www.mawulf.com/families/manciu-family/maximus-manciu-case-history/   Thank you for your support!