Amy Faulconer-stem cell treatment
"I was 17 when I was admitted to the hospital and underwent multiple tests until I was diagnosed with multiple sclerosis after misdiagnosing me with a stroke , Lyme disease and other things.
I went on Copaxone and on multiple occasions had the rare side effect that caused my tongue to swell and breathing to be difficult. So I quit that and tried the bee venom , multiple natural remedies and then avonex which caused flu symptoms for the whole next day after taking the weekly shot. Most recently I did the newer drug tecfidera , that caused horrible side effects as well, but doable in the beginning. I didn't have it for 2 days which caused horrendous side effects so I got off of that. Throughout all the years I have eaten very well / healthy. When I have a relapse it is usually brought on by extreme stress such as my dad dying (lost vision in one eye), a hard time after having Kalen (vertigo and temporarily loss of vision in the other eye) and the worst was when my ex husband and I seperated(Severe vertigo-bed ridden for over a month) Due to the unending stress currently, I'm having a very difficult time walking and getting around.
The multiple doctors / neurologists that I have seen all want me to get on more Ms meds. The problem is I always seem to get the side effects. The side effects range from feeling like you have the flu, to seizures and dying. The meds that they have now don't fix you they just hopefully lessen the amount of relapses.
One morning I saw on my Facebook feed a story about a woman that had a stem cell transplant and how it has helped her so much. I knew right then that it had to be good news. I spent many days researching it and found almost all good things. It was expensive so I stopped thinking about it for a while but then I kept hearing on TV and Facebook and a few friends contacted me. I decided to call them (stemgenex) and at first they weren't sure if I was a candidate. Then about a week later they called and are so excited for me. Ist's only a three day procedure and they do it in La Jolla California. You first go in and meet with the doctors and get some fat taken out. They put it through a machine and pull the stem cells out. The next day you come back and they put those stem cells into individual areas that need work in your body. They put you in a hyperbaric chamber the third day and give you a plan of what vitamins to be on. Then for months they follow up consistently. I believe it is over 90% effective in some way. They don't guarantee anything and you never know what it is going to help but the main problem right now is walking and that is what seems to have been helped in all the stories that are out there. And also energy levels in Ms are low and stem cell treatment helps a great deal with that."
As you can see Amy has gone through so much in her young life and she is a fighter! She is the nicest lady you'll ever meet and the Mom we all dream to be! Please, if you can help her out in some way.. Financial, prayer or good vibes! We all would appreciate it! We love you Amy and want to see you walking and running after those kiddos of yours!
Let's do this everybody..every dollar counts! Let's get her that stem cell treatment she so deserves!￼
I want to thank my friends, Katherine Dumont, Karen Grant, Nancy and Rich, and Rebecca and David. You all are so wonderful. We are going to see this happen, because of people like you!
Way to go Ashley You are a true friend to Amy and my Friend also. Thanks again for starting this drive. This will Help Amy to get some help for Her Pain We are almost there Yipppppppeeeeeeee
i just finished reading your update glad you made the reservation Thanks to everyone for all your help and support we will get you through this. think good thoughts I LOVE YOU AMY BIG HUG
I cannot even believe that I am here and this is happening! It was just months ago that I was sitting on the couch reading about the stem cell treatments and how they have helped so many people. After reading it I was super-excited that there was hope for my future, however I did not think it was even close to being in reach. Now I am so extremely excited, happy, nervous and so very thankful to tell you that it is booked... They had an opening for the last week in September and so I took it :-) The past few years have been an absolute Whirlwind of emotions, both good and bad and great to go along with all that I have had quite a bit of scary and surprising MS fun it's been a very long time since I've been able to run and I have had a difficult time walking especially in the past few weeks or months maybe. As the day goes on and I become weaker and more tired it's harder to talk. My voice just isn't steady and the best way I can describe it, if you haven't heard it... Is it kind of sounds like I'm extremely worn out like I just ran a mile. I wake up and I'm super shaky, it's pretty depressing when I can't even carry my cup of coffee to the table without spilling it all over myself. Texting is difficult at times and I am extrmely thankful for the talk text button. I can do a lot for the first few hours in the morning , I can do dishes and laundry and tidy up. I will sit down and watch my show at 9 o'clock and then get up and do as much as I can before taking breaks. It's not the kind of tired most people feel. It has gotten so hard to do anything once I feel that extreme exhaustion set in. Example, last night I was reading a book to the boys and at one point I told them I just had to go to bed because I couldn't even read another page. There was a day I kept getting a tickle in my throat and I didn't even have the strength to cough to get it to go away. My walking has gone downhill so fast. I try and go to some kind of store once a day just for exercise because holding onto a cart and walking around I can do for about 20 to 30 minutes. The boys don't feel comfortable with me using a cane quite yet so Kalen has been so very helpful, he walks right next to me so that I can hold on to his shoulder . . That is unless Tony is there to hold onto ❤ Someone very special to me(Julie) took me out and bought me two canes. I had a really hard time using one for a long time , just me being ridiculous and caring too much about what others think I suppose. The heat just takes everything out of me and makes me feel like I can't move. The boys started football this summer and of course every time I took them to practice it was a very hot day and so I was more unsteady the normal. I think what brought the last relapse I was this one day that was very stressful. One of the coaches told me I could leave for the practice and come back and get them when it was over(over 2 hours). It was the first time and the last time that I did that. The boys got in the car and they were very upset. A police officer who helps coach as well took the boys individually and asked them if I drink and drive. He asked them if I was drunk and so when they got in the car they told me that. He was in his police uniform and I wanted to go talk to him but the boys would not let me. They freaked out and told me he had a gun and he might shoot me. It is a long stupid story but I will not be letting them watch the news anytime soon if I can help it. Long story short, some of the parents saw me and said something about thinking I was drunk. I totally understand where they're coming from and I know that many people have thought that. So anyway that was very awkward and embarrassing. That is about the time that this whole stemcell thing started. My amazing friend Ashley said she wanted to do something to help and then she started the go fund me page. I honestly didn't think I would raise so much money so fast. The first day when I saw it for the first time I was extremely stressed out , I hate to ask anybody for anything and it made me extremely uncomfortable. Then as I started reading the very sweet- kind words that many of you posted I started to relax and just be so grateful. It is all happening so fast....... I can never explain the pure gratitude and thankfulness for ALL the support. From friends, friends of friends and family and strangers....... It absolutely is completely shocking!! So now that my treatment is booked for the last week of this month, I am feeling so excited my mom is coming with me to San Diego. As soon as I get back I will send anotber update. I am hoping for an amazing road to relief.