Serenity

$13,520 of $25k goal

Raised by 96 people in 42 months
Marie Green  DE PERE, WI

Serenity Luedke is married to Brian Luedke. She is a mother of 11 children, 6 of which were adopted. Prior to her illness she worked as a pediatric nurse practitioner in the ICU department of Nebraska Medical Center.She was hospitalized with a virus back in December, released briefly followed by another two month hospitalization that began in January until March. The virus attacked parts of her inner ear and brain affecting her vision, hearing, equilibrium and ability to stand or walk. It has been a learning curve for everyone especially the youngest children who are 3, 4, 5, 9, 10 and 13 years old. She faints with any loud noises including basic daily sounds like a flushing toilet, sneeze, cough, or vacuum cleaner. It makes talking on the phone or in person very hard as she hears 1000x louder than what we hear in one ear, and is completely deaf in the other. She uses circles on the wall in order to re-train her brain and eyes to focus so that she does not pass out. Serenity has not been able to handle visits with her children for increments of longer than 20 minutes without feeling very nauseous, dizzy or fainting but is constantly trying to stretch herself to be around her family more and more and misses them dearly. Currently Serenity is in constant rehab, and primarily wheel chair bound unless assisted with a person and a walker. We are all very hopeful she will walk again one day but many tests are still being ran to determine her prognosis. Although, the family is considering a second opinion ~the most recent round of testing has revealed that there are a possibility of three things going on with her. A new CT scan is showing that she has Superior Semi-Circular Canal Dehiscence better know as SSCD syndrome in both ears, along with the viral labrynthitis which is the initial virus they thought started the damage and she probably also had a perilymph fistula (a hole in the inner ear system) which drained out all the fluids causing the severe dizziness and nausea.

In this difficult time for the Luedke family we are reaching out to friends, family and the wider community for financial support. Although they have insurance , there are many medical expenses that are not covered along with huge deductibles. With the rarity of this condition and having to seek a second opinion and possible brain surgery outside of the state of Nebraska these expenses continue to rise.
We would all be so grateful if you could please help with a contribution. Any amount would be a big help as they go through this life changing journey. Please feel free to pass along to your contacts and networks as well, I know it would greatly be appreciated as Serenity has always been someone I have known to be the first person to step up and help others. It really feels like it's our turn now to help her.

Thank you for your help and support


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Update 3
40 months ago

Serenity has returned from Louisiana following the surgery. The surgeon found a hole in the temporal bone on the left side (SSCD) and several holes in her inner ear as well. He went in and patched two of the holes, hoping to get the best result. Although we will not know the full success of the surgery for several weeks to months they are positive glimpses that it was very successful. Serenity is no longer fainting to loud noises and has been able to go places without her ear plug. The loud sounds she use to hear in her left ear are at a normal pitch now, and no longer hears strange sounds in her other ear. The surgeon did state that Serenity will never regain hearing in her right ear so she will have to be very careful to not damage her only remaining ear. Serenity has been able to take a few steps on her own, although everyone stays close because she leans over and is quite wobbly. The doctor says that people recover up to 85% within 6 to 12 months and we are hoping Serenity will beat all the odds and have a fully recovery. Serenity will return to Louisiana in June for her post-op visit, further testing and possible procedures.
Serenity and her family are thankful to everyone who helped make the surgery possible.
Thank you for your continued prayers and donations.
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Update 2
41 months ago

Good News!!
Serenity has found a specialist in Louisiana by the name of Dr. Gianoli who can do the delicate brain surgery necessary to hopefully correct her condition.
Surgery is scheduled for may 9th, 2013.
Unfortunately they ask for $25,000.00 upfront before seeing her.
We are humbly asking for everyone's help to please donate. We need to reach this goal of $25,000.00 to give to the Dr. by May 5th.
Thank you for your support, your continued prayers and your generous donations.
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Update 1
42 months ago

This has been a tough week for Serenity. Please keep her and family in your thoughts and prayers.
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$13,520 of $25k goal

Raised by 96 people in 42 months
Created April 4, 2013
M
$100
M.Deleo
40 months ago

Wishing you all the best and a speedy recovery

$1,000
Anonymous
41 months ago
MF
$25
Marie FitzGerald
41 months ago

God bless you.

MP
$25
MJ Pollard
41 months ago

Godspeed on your recovery Serenity!!! :-)

AL
$25
Amanda Loeck
41 months ago

You are always in my thoughts, Serenity

LP
$50
Linda Popovich
41 months ago

I am heartbroken for this family.

KB
$50
Katherine G. Budusky
41 months ago
MB
$30
Marie Bowen
41 months ago

Hello, I do not know Serenity though am a co-worker of her brother, Mike Mays. Wishing happiness for your family.

$25
Anonymous
41 months ago
PH
$50
Phil Haake
41 months ago

Thoughts and prayers with you and your family.

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