Logan's Lyme Disease Battle

$11,823 of $11,548 goal

Raised by 89 people in 32 months
Hi, my name is Anita Nikora and I've set up this campaign to raise funds to get treatment for my 13 year old son Logan.  He contracted Lyme Disease whilst on a holiday in December 2014.  He's been sick for 18 months now and  having treatment for the past 9 months. It took 10 months to get a diagnosis, which was valuable treating time lost, hence he is now considered to be a chronic Lyme sufferer. 

Some of his symptoms are brain "fevers", extreme weakness and fatigue, severe insomnia, difficulty putting sentences together, anxiety, depression, joint pain at times, nausea, diarrhea, sometimes difficulty walking straight, sensitivity to light and more.

 The treatment he's had access to in Australia has helped a little bit, and it has already cost in excess of $12,000.  But all this treatment still hasn't gotten him his life back i.e. being able to go to school, learn any school work, play his trumpet, play basketball, go out with friends and family etc. Logan explains his symptoms and everything he's lost since he got sick in the video attached.  I had to write out what he wanted to say as he can't think and process very well due to the Lyme bacteria affecting his brain.  This is a photo of Logan when he won age champion at school, he was such a great athlete. This is also the smile we miss seeing.

He really needs to get to a facility in America for intense and specialised treatment so that he can start living again.  With the treatment protocols, expertise and experience with Lyme disease in the States, Logan will get better quickly. It is breaking my heart to see my child who was once full of life, energy and humour, now live a daily life where he literally just wants his life to end.

The money raised will go to getting myself and Logan to The States and back, 6-8 weeks of treatment, our basic living expenses whilst there and any medication they send us home with.  The facility we want to go to is called Sierra Integrative Medical Centre and they will look after every aspect of Logan's health including physical rehabilitation to regain his muscle strength and co-ordination. I have had excellent feedback about this facility both from a friend in America and a fellow Lyme sufferer who went there and her life is now back to normal and she hasn't regressed.

We are hoping that everyone that sees our campaign can donate and then share this with everyone they know. We will be incredibly grateful for any assistance given to us to reach the goal of getting Logan well and happy again, living and loving life - as a kid should - with his family/whanau and friends.

When we are well on our way to reaching our goal and we get to go to the treatment centre, I will be keeping everyone updated regularly each step of our journey.  Logan and I thank you in advance for all your efforts on our behalf.
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So we've reached then end of our journey and are waiting to fly back to Oz. The treatment has wrought huge changes in Logan and he is feeling very well but exhausted. We've had the most incredible journey, meeting phenomenal patients at the clinic. The staff were incredible and the treatment is so comprehensive attacking Lyme from multiple angles. After the first 4 weeks of treatment Logan was able to stand and walk around for a few hours at a time playing with his remote controlled car on the weekends. His brain has gotten clear and he's communicating really well with his old cheekiness back in spades. So it's a huge thank you to everyone who helped us get to the States and get Logan the treatment he needed.
Going thru treatment.
Able to play by end of weeks 4 & 5
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Yay!! I've been able to bring down the amount of money we need to raise for Logan's treatment and journey!! My cousin is donating our flights, the treatment centre in the States will discount some of the treatments by 30% if we pay $5000 upfront once we arrive. We have 2 weeks of paid accommodation thanks to a lovely lady from W.A who is going back for a 2 week top-up treatment. It's all coming together, my stress levels can go down somewhat and I'm so happy right now.
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We have a date now for taking Logan to Sierra Integrative Medical Ctr in Reno, Nevada. His treatment starts 10th October 2016. We've had an awesome start to Logan's fund raising campaign. Can we please keep the momentum going, so we can get there!
Sierra Integrative Medical Ctr, Nevada
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Hi Everyone, what an awesome start to our quest to help Logan beat Lyme disease by getting to the States for treatment. Our campaign has only been live for 1 week but so much kindness and generosity has been shown thus far. We hope you can all keep sharing so anyone who's missed it in their news feeds will get a chance to help. Thank you all so much. Love Anita, Logan and Noah.
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Read a Previous Update
Josephine Ferguson
31 months ago
1
1

I'm embarrassed to admin my faux pas - in my comment I meant to refer specifically to Logan, and mentioned Noah instead. My excuse is that it was after midnight - sorry about that! Anyhow, we are looking forward to spending time with all of you of course, now and once this nightmare is over!! Love to you all xxx

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Mandy Farnsworth
32 months ago
1
1

So sorry to hear this i really hope use get the money needed ..best of luck xx

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Josephine Ferguson
27 months ago

So looking forward to welcoming you back.... and doing some socialising with all three of you!

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Josephine Ferguson
30 months ago

that's all great news Anita - pleased to hear it and I'm sure it must lift Logan's spirits too : )

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$11,823 of $11,548 goal

Raised by 89 people in 32 months
Created July 6, 2016
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$200
Ingrid Seger-Woznicki
25 months ago

Love and hugs

BD
$25
Brendan Devitt
25 months ago

I also was just diagnosed with chronic Lyme after 3 years of major health decline. I also have b-12 deficiency as a result. 11 months of B-12 hydroxocobalamin shots daily (i self inject) plus 5-10 mg methyl folate (b-12 deficiency protocol) have given me my life back and kept me out of a wheelchair. Now I've added Lyme protocol and am hoping for the best. I wish the best for you and your son that he gets his life back. There's no question that Lyme changes us for good, but hopefully we can get back to forging on with our lives ♥.

$25
Anonymous
28 months ago
$50
Anonymous
29 months ago
$200
Anonymous
29 months ago
$50
Anonymous
29 months ago
$50
Anonymous
29 months ago
MF
$95
Mel Barber and Family Fundraising
29 months ago (Offline Donation)
Josephine Ferguson
31 months ago
1
1

I'm embarrassed to admin my faux pas - in my comment I meant to refer specifically to Logan, and mentioned Noah instead. My excuse is that it was after midnight - sorry about that! Anyhow, we are looking forward to spending time with all of you of course, now and once this nightmare is over!! Love to you all xxx

+ Read More
Mandy Farnsworth
32 months ago
1
1

So sorry to hear this i really hope use get the money needed ..best of luck xx

+ Read More
Josephine Ferguson
27 months ago

So looking forward to welcoming you back.... and doing some socialising with all three of you!

+ Read More
Josephine Ferguson
30 months ago

that's all great news Anita - pleased to hear it and I'm sure it must lift Logan's spirits too : )

+ Read More
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