Fund for Mom of 12 Fighting Cancer
This past November we made the unfortunate discovery that my Mom, Amy, has a rare form of cancer called Cholangiocarcinoma, or cancer of the bile ducts. This is a rare and aggressive form of cancer, and there are fewer than 20,000 cases in the U.S per year. At this point, she has undergone 7 rounds of chemotherapy (with Cisplatin and Gemcitabin for those of you who are medically-saavy) which was obviously very tough on her physically. However, she has handled the last 7 months beautifully, with the utmost grace and humility, and is ready to take the next step in this battle.
With the most recent MRI, we know that the tumor has neither regressed nor grown, which is both good and bad news. Her care thus far has been with Johns Hopkins but because of the rarity of the cancer, the physicians there thought it would be best to send her to Massachusetts General Hospital in Boston for further treatment by experts in the field. Just today they decided the next course of action would be to start high dose radiation which is due to start July 14. Obviously, we are very happy that they are throwing everything they've got at this cancer, but being in Boston, the cost of radiation will be out of network for Mom's insurance resulting in having to pay 20% of the approximately $250,000 that the radiation will cost.
This is where we humbly ask for your help. Mom and Dad have done a great job balancing medical costs with the costs of 8 kids still at home (and college loan payments, thanks Mom and Dad) but this exorbitant additional expense will be too much for them to handle on their own. I would pay the lot of it myself if I could but I'm in Medical School and rumor has it that we are broke (spoiler alert, the rumor is true).
People have been so very good to our family between the meals and prayers, and even financial help for trips to Boston to set up radiation. THANK YOU! We love and appreciate every gesture, none more important or helpful than the other.
Please feel free to share this page on any forum you feel would be beneficial. God bless you all and thank you from the bottom of my heart.
I wanted to write and give you all a quick update on Mom's battle with Metastatic Intrahepatic Cholangiocarcinoma. The past few months have been difficult from a pain stand-point. Mom underwent a repeat celiac plexus block without as much success as the first one offered, and with no real explanation for the pain on repeat imaging. With the poorly controlled pain comes nausea, and with the nausea comes weight loss. Due to all of this, we got Hospice care involved a couple of weeks ago, and they have at least been a good ancillary resource (and do cool things like music therapy with the kids). The journey continues to be exactly that. We all have our ups and downs, our feelings of total trust in God and of peace, but we (at least I) also experience periods of pain, frustration, and sadness. I say that not to evoke sympathy, but simply to normalize the process of grief and grieving and the wide array of emotions that come with it. Thank you all for being part of this journey. Please continue to keep my awesome, amazing, beautiful, wonderful, STRONG Mom in your prayers, as well as the rest of the family. God love and bless you all!
With the utmost sincerity,
For all those who think of me and say a prayer, I say KEEP IT UP and THANKS BE TO GOD!! I am so blessed to have your continued thoughts, prayers, and positive vibes. My most recent CT has shown stability in my condition, which is GREAT news. I am doing my very best to live life to the fullest, a priority that often forms after receiving a poor prognosis attached to a much lower life-expectancy than anyone would want. I am feeling fairly well and enjoying so many wonderful days and making fantastic memories with my loved ones... stability equals the precious gift of time. Pain and digestive malfunction are my primary challenges, but I am scheduled for another celiac plexus block for pain management- and it is nothing your prayers can’t handle ☺. The metal stent in the left lobe has been working very well, too. God bless each and every one of you <3
It has been a little over a year since I heard that I have a rare and aggressive cancer called Intrahepatic Cholangiocarcinoma…and that I should expect to survive for 6 months to 3 years- and the latter only if I was very lucky. Well, as one who believes in a power higher than Lady Luck, I find myself one year into a battle that continues. Yes, this is a formidable beast to deal with. And I would be dishonest if I didn’t admit that it is a difficult fight to wage day in and day out. But with the continuous love, care, support, and prayer that I am blessed with, I soldier on, with an army of good people walking beside me to bring me relief, inspiration, and access to the weapons that give me a fighting chance to remain on this life’s journey for as long as possible. I have discovered some of the greatest keys to loving and living because of this condition and count myself as one who is blessed in great abundance. YOU have enabled me to keep going. YOU have demonstrated how wondrously we are made in the image and likeness of God, reflected so beautifully by your selflessness and compassion. Words will never suffice, so we simply pray for each and every one of you. The fight continues as the cancer has slowly progressed, but has not prevented me from experiencing immeasurable joy, such as the arrival of my first grandchild. God is good- ALWAYS. Thank you for your generous support and continued prayers. Onward!
Bless your brave heart Amy. Love from the Websters across the pond! xx
As Amy's mother, I am overwhelmed with gratitude at the love and generosity shown to my daughter and her family. I hope you all know how grateful we are. There really are no words that can express our gratitude. Thank you from the bottom of our hearts. God bless you all.
May God be with you all and help you in this struggle to bring health to your mom. prayers from my family to yours.
Words are failing me ...just please know I continue to hold your Mom and all of you in my heart and prayers. Love you all so much.
Thanks for the update! Give your mom my best. I think about and pray for all of you every time I drive by your house.
You are my hero and my inspiration. When I think of grace I picture you. I will keep you in my prayers. Love you.
I think of you every day and keep you in prayer every night. I am so happy to hear that things are stable and that you are enjoying life with your family. Stay strong Amy and I'll keep the prayers coming
Stay strong lady - I know it has to be hard. I am so inspired by your faith and strength. Remember to call me if I can ever be of help Karen Pundersen just found out about you and she sends her love and prayers for you. Love, Loretta
Amy, I am saddened to hear the tumor grew some - but still optimistic that prayers can work miracles and I will continue to pray hard as I know all of your friends and family will as well. Sending much love and hugs to you. And the fifer still stands - if you need anything please call. Loretta Becker
I have been monitoring and it is wonderful that so many have contributed and the goal has exceeded 50%. We will keep you all in prayer as you embark on this radiation journey. Amy keep the Faith and your optimism and remember so many are with you in love and support
Prayers for all of you!