Help Sara Continue Treatment!

$16,662 of $20,000 goal

Raised by 319 people in 30 months
My name is David, I am the husband of Sara, the subject of this fundraiser.

Sara has been suffering from late stage Lyme Disease (and at least 9 other confirmed tick borne diseases) for many years and she has been treating this since January 2015 by one of the worlds leading experts of tick borne illnesses, Dr Richard Horowitz in Hyde Park, NY. 

Due to the complicated nature of Sara's illness - she has strains of several of these tick borne diseases both from Europe and the U.S. - we wanted to get help from a doctor with a lot of experience in different international strains of these diseases. Dr.Horowitz is well known and has had much success in treating his patients.

Late stage Lyme disease is no picnic, it's no walk in the woods. You may contract it easily on a walk in the woods, but treating it is something modern medicine has yet to figure out completely. There are different opinions and different treatments. Some work for some patients, other work for other patients. We have chosen this path and we have had some success and some setbacks. 

One thing most people going through this illness agree on is that it is a very lonely disease. 
It's hard for people to understand you're sick, because most of the time, you may not look sick. But you are. Sara's reality is one of daily costant pain and cognitive struggle. The infections have caused bodywide arthritis and have become deeply rooted in her central nervous system. She is, for example, unable to drive a car. The fatigue is a constant presence in her life.   

We have worked really, really hard to make Sara better, more functional, more...normal, like everybody else. We have spent a lot of money on her treatment and we live an extremely frugal life, choosing every day between groceries / gas or other necessities. We have spent every penny we have trying to get her better. Sara has not been able to work since 2012, so we are two persons trying to get by on one persons salary. I would invite you to try that, but I'm not that cruel.

We are facing an imminent total financial collapse if we can't get help via this fundraiser. We can no longer afford medication. We can no longer afford supplements and blood draws and labwork that is a constant need. Every month we fall a little further behind on bills and we cut back more and more of everything that isn't absolutely neccessary to survive.

My plea is urgent.
My plea is real. 
We need your help to get through this.
I have set the goal for this fundraiser at $20,000. That amount may be adjusted as we go.  Over the past year and a half we have spent well over $50,000 on this. We spend hundreds and hundreds of dollars every month on supplements,medicines, labwork, blood draws etc etc. It is an ongoing, seemingly never ending process and we cannot do it alone.

Thank You for taking the time to read this. Your help is so very appreciated and so very needed.

Sincerely,

David
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This is the last post I’m writing for this fundraiser. The world has changed, circumstances have changed and we are moving into a future that is entirely unknown and quite frankly pretty scary.
Let me explain;

Those of you who have followed our efforts over the years are more than familiar with our struggle. We have tried our best to stay on top of things; to build a life, establish a home and work at improving Sara’s health and return to a more normal life. There have been ups and downs, that’s for damn sure. The past year was really rough on us and it ended with two broken wrists, a diagnosis of Osteopenia and a notice to move out from the duplex we’ve lived in for two years. 2019 started in the same spirit as 2018; Sara has been sick with the flue for a week now, coughing like her lungs are about to break up in little pieces, her right wrist, we were told today, will need surgery also as it has shifted and she is in a lot of pain tonight as they removed the cast this afternoon.

A couple of days ago we received a notice from the clinic in New York that has been treating Sara since the beginning. They have decided to end her treatment and discharge her as they feel that they are unable to help her. The main reason for this is that because we can’t afford to travel to the scheduled in office visits, they feel it is not safe for them to continue treating her without the proper supervision. Although we understand that, it is of course devastating news and we are now having to find another doctor to continue treatment.
There are a few clinics scattered around the US and most of them are accepting new patients. The problem, of course, is that it is expensive to start over; any first visit at a new clinic will cost hundreds of dollars...and then there’s the added cost of travel to get there...
I don’t really know how we will move forward at this point, but forward we have to move.

In just a few weeks, I will have to somehow find the strength to move our entire household by myself and get it to our future home in Albuquerque.
Oh, did I not mention that we have been unable to find a place here in Santa Fe? Well, we searched for a long time, but to no avail and now we are forced to relocate to the big neighbor an hour south of here. We’ve been able to get a house down there, a really nice house, so that’s the sliver of good news in this whole mess, but we moved to Santa Fe because we wanted to live in Santa Fe, be close to nature and to get away from the big city of Austin...but for now, Albuquerque it is. That is, if I can manage to get all our stuff down there...

I have started a new fundraiser, I thought was appropriate to end this chapter and move forward in another setting. I invite you all to follow us at
https://www.gofundme.com/life-is-crumbling-all-around-us
where the struggle will continue.

As always, your donations are very welcome, very needed (more so now than ever before) and very, very much appreciated.

Thank You, thank You,

David
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Merry (almost) Christmas!

Ho ho ho...in the true spirit of Christmas (and my birthday on 12/17) I am asking you to open your heart and wallet to help us out a little - and a little goes a long way!

Apart from the regular dealings with Sara's ongoing treatment, we are also dealing with her broken wrist - yes, she fell a few weeks ago and broke her wrist and she is trying to heal and get through all that comes with it...

On top of that, we are being kicked out of our apartment because our landlord's son is moving to town and needs a place to live.. so; out we go!

Trying to balance all this is really hard and stressful, especially since we have no savings for any deposits for apartments and so on...

We are quickly running out of a lot of supplements and you can very easily help out by checking this amazon wish list; https://www.amazon.com/hz/wishlist/dl/invite/7JrfmiJ

Thank You for your support.

David & Sara
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Happy December, friends and family!
I hope you are all well.
As you may or may not have heard (insert sarcasm here), Sara has been going through a medical treatment for years. Due to this, our financial situation is a constant disaster and we are struggling to make ends meet.
To add to insult, Sara fell and broke her wrist a couple of days ago...it is a simpler problem than her chronic illness, nonetheless it is still a problem and something that adds to an already long list of problems...

If you have the means and want to help us out, we really, really appreciate your help!


David
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I’m beginning to wonder if Sara was a really bad person in her previous life, because I’ve never seen anyone have so much bad luck; cancer twice, broken leg with a resulting blood clot, Lyme and all other co infections and now, after a fall on a hike yesterday she fell and broke her wrist really bad...
Went to the emergency room and had it set straight and put in a sling... now she’s got weeks and months of recovery to get through.
I have taken a couple of days off work to be able to help her out best I can.
Hopefully Medicaid will cover the cost for this adventure, but we won’t know until the bill comes in the mail...
I can’t believe her bad luck...
The fact that Sara has untreated osteoporosis could be part of why she was injured,we don’t know as we have not been able to confirm that diagnosis and follow up/ treat...

Any and all donations are very much needed and appreciated...

One more obstacle to get over...
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Read a Previous Update
Bonnie
1 month ago
1
1

David Is Sara on Medicare/Medicaid. She should me. It is a life saver and would provide treatment at little or no cost.

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David
29 days ago

Bonnie - yes Sara is on Medicaid and it does cover a lot of the medications, it does not cover her thyroid medications which is a big cost every month (for the rest of her life). Ever so often, Medicaid decides to pull a medication from her and it's been one of the biggest problems. Every time they do that, she's had a serious relapse and have had to pretty much start over since losing meds sets her back. Every single time!

+ Read More

$16,662 of $20,000 goal

Raised by 319 people in 30 months
Created August 27, 2016
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$20
Anonymous
1 month ago
SL
$100
Simon Leijnse
2 months ago
1
1

Just because... And something för a birthday. Take care!

JD
$11
Jeanette Dahlkvist
2 months ago
1
1

❤❤❤

GT
$500
GoFundMe Team
2 months ago
2
2

Happy #GivingTuesday! GoFundMe is honored to donate to our campaigns as part of our Gives Back program. Thanks for being a part of our community. - The GoFundMe Team

Bonnie
1 month ago
1
1

David Is Sara on Medicare/Medicaid. She should me. It is a life saver and would provide treatment at little or no cost.

+ Read More
David
29 days ago

Bonnie - yes Sara is on Medicaid and it does cover a lot of the medications, it does not cover her thyroid medications which is a big cost every month (for the rest of her life). Ever so often, Medicaid decides to pull a medication from her and it's been one of the biggest problems. Every time they do that, she's had a serious relapse and have had to pretty much start over since losing meds sets her back. Every single time!

+ Read More
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