Help Save Suzu Fund
We contacted the Kanedas and felt compelled to help because our own daughter was hospitalized when she was just 3 months old. Her viens were so small that the nurses needed multiple punctures just to get blood samples. But the worst was that she needed a spinal puncture. There's nothing worse than not being able to help your child when they're in pain crying for you. We can't even imagine what the Kaneda's have been through. We just had to support them after our own experience.
Words will never be enough to express our gratitude to those who help the Kanedas. But thank you from the bottom of our hearts.
The Kaneda's are also fundraising in Japan, we won't have any visibility on their site, but they do update us everyday. Here is Suzu's page in Japan. Click on English on the top menu to see the English pages. They are also accepting donations on their page as well. We will be updating our totals with their totals and vice versa. http://suzukachan.com/en
Suzu's English Facebook page:
This video is Suzu's story.
From Children'shospital.org - Pulmonary vein stenosis is a rare and serious condition in which there is an obstruction (blockage) in the blood vessels that bring oxygen-rich blood from the lungs back to the heart. It can be isolated to a single pulmonary vein, but most often occurs in multiple veins simultaneously.
Around 11am on December 28, we received an announcement from Suzu’s parents that Suzu “returned to heaven” at Cincinnati Children Hospital.
It was caused by unexplainable “sudden drop of blood pressure.” It is unknown what caused the drop. Suzu was examined from head to toe for possible causes, but none of the tests indicated abnormalities. The greatest concerns were the condition of her heart and lungs and infection and rejections, but they were all normal. The only remaining possible cause could be her severely worsened condition before the transplantation surgery. However, it does not directly explain this incident, and the direct cause of her death has not been identified.
Even by gathering the skills and intelligence of the worlds best lung transplantation team at the world renowned children’s hospital, her conditions were not curable… The hospital has done its best. According to the hospital, the treatments and the amount of medicines provided to her exceeded the level normally given to their patients: this was because the hospital really wanted to save Suzu’s little life, who had bravely overcame numerous crises and because of the parents strong love praying to save her.
Suzu achieved “the world first case of traveling and transplantation overseas with and for her conditions.” This was a “miracle” brought by all of strong support from everyone. The hospital told us that it was a true miracle that Suzu could come to the U.S. with such severe conditions and there has been no prior example. She was the first child that had overcome the surgeries to wear the artificial lung and the heart assisting device. She also had overcome cardiopulmonary arrest and had survived the most difficult surgery that the hospital has ever done. All these were the world first cases and are miracles from a medical point of view. The hospital told us, “she, coming here all the way from the other side of the earth, was very strong and brave. Everyone who supported her challenge is brave and has greatly contributed to the future medical development. The experience from Suzu’s case will be a bridge to the future and contribute greatly towards saving suffering children all over the world.”
According to Suzu’s parents, her life was sustained for the night. In the morning, all of her doctors arrived and surrounded her. At the very final moment of her life, her body, which had numerous scars, was gently wrapped. Then, she was held in the most loving mom’s arms, besides dad. Then, she peacefully departed for the forever sleep.
Her body will be examined to contribute to study to find clues to understand this rare disease. Doctors will see if any organs can be donated too.
Please pardon us for providing such a quick report on behalf of her parents. Her parents have been in the midst of great sorrow.
All of you have shown Suzu that she was loved and supported by so many people. All of your support has caused so many miracles. To name a few, those miracles are achieving the target amount from our fund-raising activities within the very short time limit, surviving the very high risk flight to the United States and having become the very first case in Japan, overcoming the numerous hardships until being registered on a donor list, the miracle to be matched with her angel donor, surviving the 16-hour transplantation surgery, which was the most difficult case for the doctors, and the great medical teams who managed her conditions until now. Every single aspect of these miracles were created by all of the supporters like you. Thank you very, very much.
Please, please be proud of Suzu. And, please pray that she is now happy re-joined with her loving twin sister, Saya.
Greetings and reports from her parents and our future activities will be announced in the near future.
We deeply regret that we could not achieve the best results we longed for. However, we are grateful to all of you for your support of and prayers for Suzu. Thank you very, very much.
Please pardon us for such a quick report in writing.
Members of Suzu’s Support Group
SUCCESS OF THE LUNG TRANSPLANT OPERATION – September 11, 2016
This is the Office of Suzu’s Support Group. We would like to announce that Suzu’s operation for the Double Lung Transplantation was successfully completed!
She safely returned to her parents at about 5 p.m. (EDT) on September 10.
She and her parents have finally achieved the Success of the Double-Lung Transplantation, by overcoming various and numerous emergencies and crises. They had been told so many times that their challenge was risky, unprecedented and would definitely be the very and the most difficult case of all the overseas transplantation cases in the Japanese history. But, they never, ever gave up!
Also importantly, this miracle was enabled by all of Suzu’s supporters. The huge support and strong and warm prayers from all of you have given Suzu the power to live.
Today, the operation itself has successfully completed. However, the real success of the transplantation can be claimed when no rejection is confirmed after the next 72 hours. This is the next big challenge for Suzu. Suzu is striving to live together with the very precious lungs gifted by the precious donor and his/her loving and merciful family. This is the relay for life; the baton of life was passed to Suzu from the precious angel.
We strongly believe that the lives of Suzu, the donor, and Saya will all connect and strive towards bright future together.
We remind everyone that Suzu’s heart’s right ventricle still needs to function well. This is another critical factor for the transplantation to be successful.
We sincerely ask everyone to continue to pray that no major rejection will occur, and the function of the right ventricle will function well for the next 72 hours.
Finally, we must admit that our heart breaks when we think of the little precious donor and his/her family who lost their dearangel. We truly respect their courageous decision to pass on the baton of life to others, and deeply pray from the bottom of our heart that a peace will be brought to them. We strongly pray that the little angel will continue to live with Suzu. Our hearts are with them.
We will report Suzu’s parents’ message in a separate post. Today, we wanted to let everyone know of the success of the operation of the double lung transplant as soon as possible.
We, all members of Suzu’s Support Group, thank everyone from the bottom of our hearts for your warm thoughts for Suzu. We would appreciate it very much if you would continue to support us until Suzu comes home with a big smile.
Members of Suzu’s Support Group
Suzu made it successfully through the operation yesterday! However, the next 72 hours after the operation are critical as they monitor for signs of rejection and for any bleeding. She's not out of the woods yet, but she's come so far. She can still use our prayers.
Sorry for the delays with the translations this weekend. We'll get the family's posts translated as soon as we can. Thank you for everyone's patience.
To Suzu's Parents, My hearts grieves along with yours and I am very sorry for your loss. I am very grateful to you you for making me a part of Suzu's struggles, and for letting me walk in your journey with her. Suzu was indeed very brave, and as you say, she now rests with her sister in heaven. You are also as brave and strong as Suzu was, and you have my admiration for that. I pray that with time your heart will receive comfort aand peace, and wish that your life together will be filled with many blessings. If you are ever in need, or any other form of help, please know that I feel I have become a part of your family in this world. Let me know how could I continue to help. I am thankful that you chose to make me a part of such a significant and difficult moment in your life. For that I say to you... Domo Arigatoo Gozaimasu! May God's peace be with you.