HELP Jess's (Ehlers Danlos type 6 )

$128,513 of $60,000 goal

Raised by 3,201 people in 29 months



Hello My name is Jessica I’m 23 years old I I have a rare disease called Ehlers Danlos syndrome type 6 with  cardiovascular issues interlocking with EDS, autism , moderate intellectual disability , scoliosis , kyphosis, lordosis , intestinal failure  and many more diagnoses 34 to be exact , but I need your help see with my rare condition EDS it causes a lot of medical issues which needs me to have surgeries , specialized  medications and treatments  there is no cure but Doctors can make my life comfortable but to do that I need to travel to the only clinic that knows enough knowledge about my disease in Baltimore USA to be able to treat me appropriately as doctors in Australia do not know much about type 6 EDS and simply can not help me this is my only option left to live a comfortable life as I have tried many treatments here in Australia and none have worked .  I will also need equipment such as wheelchair van, hoist as my condition will continue to detariate as I get older and my life expectancy is about 40 years old. my mum is a single parent of 2 including myself and it is hard financially for us so please if you can help me out I would be forever grateful. thank you for taking the time to read this message.

From Jessica
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hi everyone i have done my first P.O box opening
if you would like to send me fan mail send it to:
address to
JessEDS P.O BOX 181
CRAIGIEBURN 3064
thanks for all the support that you give me
+ Read More
hi everyone this is the fun time that we had in the U.S.A when me and mum went it was a video i had in the making for a while and had forgot to upload it please enjoy and remember i have a P.O BOX now also if you haven't subscribed to my youtube channel please do and remember to turn on post notifications on so you don't miss a video . :)
+ Read More
Hi everybody EXCITING news i now have a P.O BOX the address is down below i have also done a new youtube video please check it out thanks everyone :)
address to
JessEDS P.O BOX 181
CRAIGIEBURN 3064
+ Read More
hi everybody good news i now have a P.O BOX the address is down below i have also done a new youtube video please check it out thanks everyone :)
address to
JessEDS P.O BOX 181
CRAIGIEBURN 3064
+ Read More
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$128,513 of $60,000 goal

Raised by 3,201 people in 29 months
Created May 28, 2016
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EQ
$50
Ellyse Quelch
18 days ago

You’re so very inspiring and I wish you and your mum all the best x

GF
$50
Greg Forno
23 days ago

Very inspired by your story Jess and glad to see you and your Mum had a fun time at Disneyland!

$50
Anonymous
1 month ago
JS
$50
Jessica Scotford
1 month ago

Happy to donate again, hope this helps ☺

$100
Anonymous
1 month ago
TK
$30
Tihana Kealley
1 month ago

Stay strong - stay positive

$50
Anonymous
1 month ago
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