Meagan's Medical Expenses

$1,425 of $10k goal

Raised by 22 people in 11 months
Danielle Buccellato-Nietrzeba  YAKIMA, WA
Hi all.... As you know our dear friend Meagan has been very sick for 8 months now, She has been in and out of the hospitals/Dr offices in both Yakima & Seattle. She has not been able to work in a year and we all know that medical bills can add up rather quickly not to mention her daily expense for her self & Abby. They are still working to find the right diagnosis and treatment plan to help her. We are reaching out to our family & friends to try to bring some financial relief to her & her family as her mom is unable to work at this time since she has be come Meagans full time caregiver. We know that times are hard anything helps. Thank you for any & all support & prayers.
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Update 6
Posted by Danielle Buccellato-Nietrzeba
8 months ago
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Meagan's Update Written Herself:
I've been diagnosed with Stage 4 Liver Disease - Specifically Cryptogenic Decompensated Cirrhosis, with Primary Ascites. The Cryptogenic means that they are unsure what caused it. No Hepatitis, no Hemochromotosis or Wilsons Disease (both of which I'd been previously diagnosed with) and not alcohol related. The liver biopsy sometimes shows the "why," but mine only rules things out, gives no answers. The Decompensated means I've moved to the more advanced part of cirrhosis, and have complications like ascites, hepatic encephalopathy, etc.

I also have Peripheral Neuropathy, causing major pain in my hands and feet. Which is a problem - in addition to it hurting, and causing problems with daily things, the pain pills I take are bad for my liver.

I also have some problems with my adrenal gland and pituitary gland. My cortisol production is way low, and I'm making wrong amounts of other hormones. I haven't had a period in a year and a half, am producing very little estrogen, and need a bone scan to look at exactly how much bone loss I have. I just started seeing the endocrinologists, so there's more testing needed to figure this part out.

I'm under the care of: A hepatologist, endocrinologist, neurologist, hemotologist, rheumatologist, gastroenterologist, pain management specialist, hopefully soon a dietician, and my primary care doctor. The majority are in Seattle, so I have to take the shuttle.

I'm not ever going to "get better," I can just hope to slow the progression, and keep some of the bad side effects under control. There's really not much for treatment of cirrhosis - and a lot of things that can go badly wrong, very quickly. My best hope is a new liver... I'm not on the transplant list yet, but eventually will be. You have to be sick enough to make it to the top of the list, but not too sick that they won't take you.

I've been able to keep a positive attitude all year. But lately, it's become harder. As I get real disgnosis, and more Drs, and more symptoms... I realize that this is for life now. I'm trying to learn to adjust, and make a new life for my 6 year old daughter and I.

Any donations are used just to pay our basic bills, cover meds and procedures insurance doesn't cover, and trips to Seattle for appointments. And once in awhile, something fun for Abby, like going for ice cream. I live a very frugal life - canceled cable, Hulu, Netflix, etc. Canceled cell service and switched to cheap Boost mobile. I don't buy new clothes or things for me - just school clothes and supplies for Abby. I'm hoping to adjust better, get all of the medical problems sorted out, and maybe fix some things so I'm not so exhausted and confused all of the time. That way I can work just enough to at least cover my bills myself. Huge thank you'd from the bottom of my heart to those who have helped us - you have no idea what a difference it makes!

Super long, I just wrote it all in a hurry - going to take Abby to the park, it's hopfest weekend. Very different for me now!!! We're going with my mom at 1, then to get some groceries. After that I'll be home, and am home all day tomorrow I'll call ya or you call me if I forget - and feel free to change anything in that, add or delete, whatever. I haven't read over it so I'm sure some is rambly and doesn't make sense, lol.

Anyway, love you guys!!
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Update 5
Posted by Danielle Buccellato-Nietrzeba
8 months ago
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Meagan's Update Written By Her:

I've been diagnosed with Stage 4 Liver Disease - Specifically Cryptogenic Decompensated Cirrhosis, with Primary Ascites. The Cryptogenic means that they are unsure what caused it. No Hepatitis, no Hemochromotosis or Wilsons Disease (both of which I'd been previously diagnosed with) and not alcohol related. The liver biopsy sometimes shows the "why," but mine only rules things out, gives no answers. The Decompensated means I've moved to the more advanced part of cirrhosis, and have complications like ascites, hepatic encephalopathy, etc.

I also have Peripheral Neuropathy, causing major pain in my hands and feet. Which is a problem - in addition to it hurting, and causing problems with daily things, the pain pills I take are bad for my liver.

I also have some problems with my adrenal gland and pituitary gland. My cortisol production is way low, and I'm making wrong amounts of other hormones. I haven't had a period in a year and a half, am producing very little estrogen, and need a bone scan to look at exactly how much bone loss I have. I just started seeing the endocrinologists, so there's more testing needed to figure this part out.

I'm under the care of: A hepatologist, endocrinologist, neurologist, hemotologist, rheumatologist, gastroenterologist, pain management specialist, hopefully soon a dietician, and my primary care doctor. The majority are in Seattle, so I have to take the shuttle.

I'm not ever going to "get better," I can just hope to slow the progression, and keep some of the bad side effects under control. There's really not much for treatment of cirrhosis - and a lot of things that can go badly wrong, very quickly. My best hope is a new liver... I'm not on the transplant list yet, but eventually will be. You have to be sick enough to make it to the top of the list, but not too sick that they won't take you.

I've been able to keep a positive attitude all year. But lately, it's become harder. As I get real disgnosis, and more Drs, and more symptoms... I realize that this is for life now. I'm trying to learn to adjust, and make a new life for my 6 year old daughter and I.

Any donations are used just to pay our basic bills, cover meds and procedures insurance doesn't cover, and trips to Seattle for appointments. And once in awhile, something fun for Abby, like going for ice cream. I live a very frugal life - canceled cable, Hulu, Netflix, etc. Canceled cell service and switched to cheap Boost mobile. I don't buy new clothes or things for me - just school clothes and supplies for Abby. I'm hoping to adjust better, get all of the medical problems sorted out, and maybe fix some things so I'm not so exhausted and confused all of the time. That way I can work just enough to at least cover my bills myself. Huge thank you'd from the bottom of my heart to those who have helped us - you have no idea what a difference it makes!

Super long, I just wrote it all in a hurry - going to take Abby to the park, it's hopfest weekend. Very different for me now!!! We're going with my mom at 1, then to get some groceries. After that I'll be home, and am home all day tomorrow I'll call ya or you call me if I forget - and feel free to change anything in that, add or delete, whatever. I haven't read over it so I'm sure some is rambly and doesn't make sense, lol.

Does it let you add pictures?

Anyway, love you guys!!
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Update 4
Posted by Danielle Buccellato-Nietrzeba
10 months ago
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In case you missed it yesterday Meagan Wrote on Facebook:

Seriously, I am so grateful, and so humbled and just amazed at the support everyone has shown. I was really embarrassed when I first found out this was set up, because I've always been able to take care of things myself. But right now I'm so overwhelmed. Just knowing I can keep the power on and stuff is a huge relief when I'm not able to work, and dealing with all of these super scary tests and diagnosis's. My mom was looking forward to her first summer of retirement, to play all season in her gardens... Instead she took on extra jobs the past few months to pay my bills, took care of Abby and I, and now it's too late to do a lot of her planting :( Plus, she was working as a substitute teacher at East Valley - now that schools out there's no more work. And our savings was gone awhile ago. I'm hoping to gradually ramp up to start working again, and start taking care of Abby and I myself. But I just hope everyone knows how very much this means to me, to have a little room to breath and pay bills. I love you all!!! <3
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Update 3
Posted by Danielle Buccellato-Nietrzeba
10 months ago
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Hi everyone, again I'd like to thank everyone who has not only take the time to donate to Meagan but taken your own money to do so! This morning I was able to transfer $1,000 into Meagan's account and the rest will be sent tomorrow morning. I know Meagan & her mom will be forever grateful to all of you.
As for Meagan her self she is still the joking happy person we've all come to know and love, how she does it everyday with a smile on her face is beyond me.
If you haven't seen Meagan's medical update on her Facebook page here it is:

Because of my liver disease, I developed ascitis. It causes a ton of fluid to build up in my abdomen - right now, I honesty, no eggageration, look 8 months pregnant. Twice before it's gotten this big, they've had to drain it - they numb my belly, stick in a big 'ol tube, and I sit for around 30 minutes and watch them fill up jars of fluid. Gross and creepy but not painful, and afterwards I feel SO much better. Last time they weighed me before and after - they'd drained 19 lbs of fluid!!
Well, it's about time to do one again. I have to try to wait as long as I can since the procedure has risks too. Yesterday I was SO miserable. BUT, I'm super happy to say that I feel a ton better today! How I feel changes day to day, but I think this nice cool weather made a huuuuuge difference. I just feel so much more comfortable. My central air has a leak and needs to be filled with Freon again to work (we have to do it every year.) So you can imagine what yesterday felt like in that heat, no ac, with a big fake baby in my belly.
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Read a Previous Update
Misty Lowe
11 months ago
1
1

please if your not helping and have something great to say to her don't comment DHS doesn't help with med bills . She is a singlemom now and this is to help with her med and travel costs .

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Raquel Acosta
11 months ago

Have u tried taking the bills to dshs? Over a certain amount they help. Some hospitals have a charity account they can deduct a percentage of the bill if qualify. If that can help?

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$1,425 of $10k goal

Raised by 22 people in 11 months
Created May 20, 2016
Danielle Buccellato-Nietrzeba  
MK
$100
Misty Kearns
9 months ago
1
1

Meagan, I had no idea about all your health issues, I'm not in a lot of the blog circles or on on my personal FB as much and hadn't seen any of your posts about it. Sending prayers and positive thoughts for healing and happiness!

$100
Angela Sellari
10 months ago
1
1

I am so sad for all you have been going through, and am glad to come across this fund. Hang in there. Hugs.

$100
Elayne Frank
10 months ago
2
2

Sending love, hugs and prayers from California!

$50
Anonymous
10 months ago
2
2
NW
$100
Nicole Williams
10 months ago
2
2

I'm so glad a fund has been set up for you! Sending you hugs and prayers. We only met once, but you were so sweet with such a big smile and even bigger spirit. Keep fighting concentrate on getting better! Xoxoxox

$15
Anonymous
10 months ago
2
2
KH
$40
Kelly Holland
11 months ago
2
2
$100
Anonymous
11 months ago
2
2
BM
$50
Brian McDonough
11 months ago
2
2
RM
$50
Rosemarie Mendez
11 months ago
2
2
Misty Lowe
11 months ago
1
1

please if your not helping and have something great to say to her don't comment DHS doesn't help with med bills . She is a singlemom now and this is to help with her med and travel costs .

+ Read More
Raquel Acosta
11 months ago

Have u tried taking the bills to dshs? Over a certain amount they help. Some hospitals have a charity account they can deduct a percentage of the bill if qualify. If that can help?

+ Read More
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