Brantleys Big Battle (spina bifida)

$1,661 of $5,000 goal

Raised by 32 people in 44 months
ER
Emily Raines  EDEN, NC
I am almost 20 weeks pregnant and just found out my son Brantley will be born with Spina Bifida. I am a canidate for an in utero surgery where they do a Csection in the next few weeks (24-25) take my uterus out and operate on Brantley to close the lesion on his spine. This surgery greatly reduces his need for a shunt to drain the fluid off his brain and also reverses the damage being done by the swelling on his brain. The faster the lesion is closed the less the nerves are exposed to the amniotic fluid, therefore bettering his chances at a more normal life. I am 20 years old and this is my first child, doctors said it was just bad luck. The only hospital i can have this surgery at is 4 hours away. My husband just returned home from afghanistan and hes on unemployment...., i cant work. The traveling is going to be very hard on us financially. We are also just moving into a new house for the newly needed room, this all happened before we found out about Brantleys future. So anything you can give will help more than you know.
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Update 19
15 months ago

2
2
Brantley is doing great he is staring to sit in a four point crawl position for almost 25-30 seconds! He is learning more signs and words!!! He was diagnosed with a growth hormone deficiency. He will be seeing an endocrinologist for this. He is doing good and is getting so smart. We tried making him a custom wheelchair and it didn't work as planned so our next goal is to get him a wheelchair that fits him!!!!
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Update 18
20 months ago

Well for everyone who was waiting so impatiently for a surgery date.......we got it this morning... Feb 20th will start the road to probably the hardest day of my life thus far. Feb20th we have a urology appt...pray for good kidneys and no cathing. The 23rd is his pre-op appt to make sure he's healthy enough for surgery...... then the 24th is the day.... my life will change forever. I will officially be a Spina Bifida mom with one VERYYYYY large and VERYYYYY scary VERYYYYY serious surgery under my belt. And brantley will absolutely be the strongest little guy I know. Please pray for his safe and a steady hand for his Dr.
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Update 17
20 months ago

http://youtu.be/l8u4_wU69Io this is the the procedure they're going to do to brantley.
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Update 16
20 months ago

Well we have heard from his neurosurgeon.... he does for sure need surgery. They gave us an option for a procedure called an Endoscopic third vetriculostomy... what this means is, they will make a small incision in his head and drill a small hole in his skull the will insert an endoscope into his brain where they will make a small hole to release the fluid they will then cauterize the part of his brain responsible for makin this extra fluid in hopes it will keep they hydrocephalus under control. This procedure has a 75 percent success rate. But if it works he should not ever need another brain surgery. If it fails.... we will then have to go in AGAIN this time for a shunt. We have a disconnect notice for our power and our phones are due... not to mention rent. We are exploring all avenues for help but realistically we won't be able to pay the bills and travel/ stay for his appointments. Also his job opportunity in Mesa, AZ he got hired but we have no money to move there, so what good is a job. Please if you can help we are desperate. Share, pray, and repost this link to get our story out there. Thank you again.
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Margaret Coker Benchakroun
20 months ago

I am Khadijah and have Spina Bifida and a also Hydrocephalus, I have shunt to, my odds was not good but I have met most of the goals set for me, I am two now and very smart girl, my grammy is writing for me, we want you to know that this little son will be such a blessing to you as I am to my family, I can do most everything any other child can and now we are working on me walking, sense I have met most of my goals, there is a lot faith that I will walk to, as you can see from my picture I am also very beautiful baby

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Caitlin Cody
44 months ago

I'm Caitlin Cody Anne Cody's daughter and I'm 26 yrs and have had spina bifida all my life.So my prayers go out to you,your husband and your unborn son Bentley that they are able to do the surgery and he can live as normal a life as possible.

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$1,661 of $5,000 goal

Raised by 32 people in 44 months
Created January 19, 2013
ER
CM
$40
chelsea bem&stephen martseen
20 months ago

I love you guys so much I hope this helps a little bit

KH
$15
Karen Hossink
20 months ago

Wish I had more to give. Praying God will show you HIS power and faithfulness as you wait on HIM to provide everything you need.

$50
Anonymous
26 months ago
$10
Anonymous
27 months ago
$250
Anonymous
40 months ago
$150
Anonymous
41 months ago
TJ
$35
Theresa Jaynes
41 months ago

Our prayers will be for you and your son.

$175
Anonymous
42 months ago
AC
$50
Arlene Callaghan
42 months ago

Thank your your your service as well as your husbands and your moms. Glad to hear things are going well. God Bless you family. Women Supporting Women Veterans.

MA
$50
Ms Anonymous
43 months ago
Margaret Coker Benchakroun
20 months ago

I am Khadijah and have Spina Bifida and a also Hydrocephalus, I have shunt to, my odds was not good but I have met most of the goals set for me, I am two now and very smart girl, my grammy is writing for me, we want you to know that this little son will be such a blessing to you as I am to my family, I can do most everything any other child can and now we are working on me walking, sense I have met most of my goals, there is a lot faith that I will walk to, as you can see from my picture I am also very beautiful baby

+ Read More
Caitlin Cody
44 months ago

I'm Caitlin Cody Anne Cody's daughter and I'm 26 yrs and have had spina bifida all my life.So my prayers go out to you,your husband and your unborn son Bentley that they are able to do the surgery and he can live as normal a life as possible.

+ Read More
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