Vincent Grigoletti
Donation protected
Vincent Grigoletti has passed away Sunday, 9/29/19 after fighting medulloblastoma for 9 years. We are planning his funeral and are asking for help to have him laid to rest. He has gone through many clinical trials and research studies to further help doctors treat children with medulloblastoma in the future. For that, Vincent is a hero and a beacon of courage to everyone who wants to beat childhood cancer. We plan on paying any help we get forward through our future actions on behalf of Vincent's struggle.
Here is his Story:
Vincent Grigoletti, a beautiful and courageous young man, has been fighting medulloblastoma brain cancer since he was 10, in fall of 2010. He has been full of life and love for the 19 years he has been with us. He has gone through standard therapies for medulloblastoma as well as numerous research studies and clinical trials.
He has had several clinical trials to help doctors combat this terrible disease, including various chemotherapies and immunotherapies, personalized medicine, and while we were optimistic each time he received a new agent, it worked for awhile but eventually the tumor became resistant to the agents and progressed. He has gotten help from many hospitals and doctors in Chicago, IL and Grand Rapids, MI.
He has gone through three tumor resections: 2010 - the original medulloblastoma tumor at Chicago Children's/Lurie 2013 - the relapsed meduloblastoma tumor at Lurie 2019 - one of the tumor masses in his head, of which there are now many at DeVos All this time, he has hardly cried except in physical pain, and has never felt sorry for himself. He has experienced countless hospital stays, tests, infusions, needle sticks and devices being put into him. He has both an Ommaya catheter (to access CSF and administer agents) and a Shunt (to relieve pressure in his brain/CSF, draining into his abdomen, currently in his head, as well as a port in his chest for accessing blood.
Vincent has endured severe pain from the treatments and attempts be more mobile, causing a few falls over the years. He has lost over half of his hearing from the treatments, and has severe challenges to his vision. He has also had speech issues since the last tumor resection in May. We've had him utilize physical and occupational therapists at home. He has been amazing in how fiercely he has fought this terrible disease. We were overjoyed to see him complete grade school, complete high school and complete two online courses last year at a community college in Illinois, Triton College.
As the youngest of 4 boys, he has lived to see 19 of his birthdays, but now this may be his last. We are now receiving additional help for him from Loyola University Medical Center, where he received radiation and chemotherapy, but now is there with a brain hemorrhage and lost brain function.
We are looking for financial assistance to help Vincent through this final phase of this awful disease, which will likely take his life. We will be forever grateful for your love and support!
Here is his Story:
Vincent Grigoletti, a beautiful and courageous young man, has been fighting medulloblastoma brain cancer since he was 10, in fall of 2010. He has been full of life and love for the 19 years he has been with us. He has gone through standard therapies for medulloblastoma as well as numerous research studies and clinical trials.
He has had several clinical trials to help doctors combat this terrible disease, including various chemotherapies and immunotherapies, personalized medicine, and while we were optimistic each time he received a new agent, it worked for awhile but eventually the tumor became resistant to the agents and progressed. He has gotten help from many hospitals and doctors in Chicago, IL and Grand Rapids, MI.
He has gone through three tumor resections: 2010 - the original medulloblastoma tumor at Chicago Children's/Lurie 2013 - the relapsed meduloblastoma tumor at Lurie 2019 - one of the tumor masses in his head, of which there are now many at DeVos All this time, he has hardly cried except in physical pain, and has never felt sorry for himself. He has experienced countless hospital stays, tests, infusions, needle sticks and devices being put into him. He has both an Ommaya catheter (to access CSF and administer agents) and a Shunt (to relieve pressure in his brain/CSF, draining into his abdomen, currently in his head, as well as a port in his chest for accessing blood.
Vincent has endured severe pain from the treatments and attempts be more mobile, causing a few falls over the years. He has lost over half of his hearing from the treatments, and has severe challenges to his vision. He has also had speech issues since the last tumor resection in May. We've had him utilize physical and occupational therapists at home. He has been amazing in how fiercely he has fought this terrible disease. We were overjoyed to see him complete grade school, complete high school and complete two online courses last year at a community college in Illinois, Triton College.
As the youngest of 4 boys, he has lived to see 19 of his birthdays, but now this may be his last. We are now receiving additional help for him from Loyola University Medical Center, where he received radiation and chemotherapy, but now is there with a brain hemorrhage and lost brain function.
We are looking for financial assistance to help Vincent through this final phase of this awful disease, which will likely take his life. We will be forever grateful for your love and support!
Organizer
Dan Grigoletti
Organizer
Brookfield, IL
