Help Carlos Survive Protoporphyria!

$8,523 of $50,000 goal

Raised by 120 people in 1 month
Hi! I am Nathalie and this is my brother Carlos, 39 years old, an Electrical Engineer, married and father of two beautiful girls, Ivian 5 and Avril 3. Carlos suffers from a very rare genetic disease called Erythropoietic Protoporphyria (EPP), from the group of metabolic disorders of Porphyrias. A disease that makes him suffer with severe photosensitivity to sunlight that directly affects his liver and other main organs. Last month Carlos moved to Medellin, Colombia, in search of a new horizon for his family. Just a month after he immigrated, Carlos’ health started to worsen. After some medical testing was conducted in that country, it was confirmed that because of this rare disease his health was seriously compromised. Unable to continue a normal life, Carlos managed to travel back home to get the immediate medical care with his family by his side. He went through an emergency surgery and since then he remains in a critical condition, with kidney and liver failure as well as other complications. Even though there is no cure for this disease, it can be managed. At this point we remain hopeful and our hearts and prayers go to him for his speedy recovery. Carlos now needs a liver transplant which is very difficult given the complications. He is currently hospitalized, and the cost of his treatment is topping his financial capability. We, his sisters, are actively working with family members and friends along with appropriate organizations to help him get the needed treatment. We have also organized this fund-raising campaign to support him during this difficult time. He and his wife will both have to put working on hold for a long time. There will be a range of medical expenses and other financial challenges to face. We are asking for your help so our dear brother can survive this disease. Every prayer, every positive thought, every donation, and every gesture of support is greatly appreciated. Any amount will count and make a difference.

Thank you and please check back here for updates!

To learn more about this desease, please visit:

https://rarediseases.org/rare-diseases/erythropoietic-protoporphyria/

Nathalie
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Dear friends and donors:
Today it has been confirmed that Carlos needs a liver transplant. Please keep him in your prayers and continue to share our campaign. Send your good vibes his way.

Thank you!
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On behalf of my family, Carlos and I, we want to thank you for the outpouring of love and support you all have sent his way. My brother is thankful for your donations and messages of love. He feels more hopeful even though the path ahead is long and difficult. Let’s continue to keep cheering him up when his strength fails at times. He will soon see an expert to talk about options. We will update in days to come.

God bless you all! ....Please share!

Nathalie
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Hi/ Hola!
I have created this campaign to help my brother. He really needs our support. Please read his story and help us to reach our goal. I am very hopeful that with your support we will help him survive Protoporphyria. Thank you!

He creado esta campaña para ayudar a mi hermano. El realmente necesita nuestro apoyo. Por favor lee su historia y ayudanos alcanzar nuestro objetivo. Yo estoy muy esperanzada en que con tu ayuda vamos ayudarlo a sobrevivir su Protoporfiria. Gracias!!
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$8,523 of $50,000 goal

Raised by 120 people in 1 month
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CM
$20
Carbrella Miller
1 day ago
NS
$50
Natalia Sanchez
6 days ago
$10
Liberty Delima
13 days ago
VS
$10
Vilma Seijas
13 days ago
V
$200
Volkan Lala Irgit Irgit
13 days ago
LS
$200
Lola Sanchez
13 days ago
$25
Anonymous
16 days ago
$50
Anonymous
17 days ago
RO
$100
RAFAEL ORELLANA
17 days ago
$8
Patricia Berlioz
18 days ago
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