Angel Sunshine's AVM Support

$6,635 of $25k goal

Raised by 78 people in 45 months
Delores Gang   COLUMBUS, OH

I am Delores (on the right), Angel Sunshine's (on the left) mother and caretaker ("Momager" as she calls me).  Angel was diagnosed as having an AVM on her brainstem in September of 2011.  Due to the location and "eloquency" of this AVM it is inoperable.  Numerous angiograms have shown that embolization is not an option as they are unable to embolize the full AVM and to only get part could cause this to go off balance and rupture and bleed on her brain which could cause seizures, stroke, and even death.  She had stereotactical radiosurgery in March of this year and this caused hair loss and hot flashes and all the basic post-radiation symptoms.  I, as her caretaker, have had to put my job "'on hold" mainly sice her diagnosis and at this point am lucky to be able to put in 10 to 12 hours a week.  Needless to say, as a single mother, all our financial resources have been exhausted.  Friends and family have helped to the extent that they have been able but we are now a month behind on rent, overdrawn at the bank, less than $20 in cash on hand and electric, phone, and all household bills adding up daily.  I was able to get advanced annual and sick leave and am also on the "leave donor" program at work but all the leave that has been donated up to this time has been used.  My vehicle is on the repossesion list and now my car insurance has been discontinued as I was unable to make last month's payment.  I have pawned all the jewelry I had and will lose that to the pawn shop this coming weekend.  We have reached our catastrophic coverage limit on insurance so, thankfully, all medical bills and prescription medications will be covered in full through the end of this year.  Will I have the money for gas/transportation to get her back and forth to medical appointments etc?  That remains to be seen.  Her vision is extremely limited at this time due to the pressure on the occipital nerve, she blacks out multiple times daily and has even fallen down stairs multiple times due to this as she now has no advance warning feelings when a blackout is coming on.

Please, if you are in any position that you can help in any way, donate.  If, however, you are reading this and are unable to help financially, send positive energy, prayers, and good thoughts her way.  Thank you from the bottom of my heart...

+ Read More
Update 77
16 days ago
Time for a long overdue update...
Three years ago today my beautiful daughter, Angel, had a stroke and lost most functional use of her (dominant) right side.
Life, as we knew it, completely changed. Things had been scary since her diagnosis of the AVM in her brain in September of 2011 (just prior to her 21st birthday in November) but we were not at all prepared for this, as if there would be any way anyone could prepare for such a traumatic event!

Upcoming appointments are as follows, please think of her and send good thoughts our way that these go well, 15 July is her scheduled follow-up with the Neurology team at OSU to go over the most pressing issues she has been dealing with over the past few months (the additional areas of pain in her head, the marked increase in aphasia, the return of the "waterfall" noise, the focal seizure activity, and the increase of dizziness and balance issues), her next imaging (Cerebral MRI under full sedation) is scheduled for August 1st (I know, it seems that it would make more sense to have the imaging first and then the appointment to follow but we take what we can get when it comes to getting an appointment with Neurology!), and the next 5-day Ketamine infusion at Cleveland Clinic is scheduled for September (exact week will be provided sometime in August).
Since my last update there have been numerous hospitalizations, all a week or less, for tendonitis flare-ups of her left Achilles and heel, for unmanageable pain due to the radiation necrosis damage and Thalamic Pain Syndrome, and the latest being to have her gall bladder removed on a Wednesday and then stones removed from her bile duct the next day.

She still falls numerous times weekly but, in her words, she "knows how to fall gracefully" so thankful for the years of gymnastics classes she took at the Rec Center when she was young!!! Unfortunately, this doesn't help much when she takes a tumble down the stairs but I am diligently searching to find a ranch style rental to move to as it's become rather dangerous for her and I'm always worried that I'll come home from work one day to her unconscious at the bottom of the stairs...

She's been fairly stable lately, trying her best to stay out of the hospital and home with her beloved Bernie! That dog truly earns his "Saint" title as he really does intuitively know when she's not very stable and either lays on top of her to keep her in bed or right next to her so that he'll keep her from falling onto the floor! You couldn't ask for a better therapy dog! He's very protective of his "Mama" and "Grammy" too!

I've been able to put in more hours at work lately and it's really nice to not have to struggle so much to pay the bills and keep food in the house without having to beg for donations and visit the food bank.
We're still having a hard time coming up with the extra $1,000 (plus) that it will take to have the lift for her powerchair installed in the car and a dear friend has been diligently trying to get information from the company that makes the lift so that he and another friend can do the install correctly and only charge for necessary parts. Still fighting this battle as it would definitely make getting out of the house so much easier for her and me!

Right now, it appears that I will have to wait another 13 1/2 months to retire with full benefits as, even though I reached my 30 year mark on March 24th of this year, I have to be 56 which won't happen until August 13th 2017...still hoping an early out offer with voluntary separation incentive pay will come my way before then as that would really make things much easier for us both!

For those of you who continue to call and stop by when you can, you have my utmost respect and neverending gratitude! This is what true friendship is, being there and never giving up when you know she wishes she could go and do like she used to but only has a limited amount of energy (look up the "spoons" story, that explains it way better than I can). Continuing to invite her in hope that one day she can say yes and have the energy to go and do if only for a little while gives her goals to look forward to even if it's just a movie and pizza night at home catching up! These are so necessary as the feeling of being all alone in this is not a burden she should carry without help. THANK YOU, you know who you are, and we love you like family!

I'm still researching and even have help on that here and there (Thank You Sis!) and have found a promising study being conducted primarily at Stanford but with an outreach also in Pittsburgh that is getting ramped up for phase 2 that I hope she might be accepted into where they implant stem cells into the brain and it has helped former stroke survivors regain mobility years after being affected by stroke. Such promising research being done and it can't happen soon enough! Will post here as soon as I get the call/e-mail that she may be accepted as a patient.

Please, if you are in a position to donate, do so in whatever form best suits you and know that we appreciate any and all donations as they do make it easier for us to keep moving in the right direction.
Those of you unable to donate financially, we understand and still need all the good thoughts, prayers, positive energy, and time shared together you can provide. Life is way too short and hard to face alone, know that even in the roughest storm we will be there for you too.
Please share this on FB, sharing is caring too!
Hugs and love to you all!

Delores, Angel, and Bernie
+ Read More
Update 76
16 days ago
Time for a long overdue update...
Three years ago today my beautiful daughter, Angel, had a stroke and lost most functional use of her (dominant) right side.
Life, as we knew it, completely changed. Things had been scary since her diagnosis of the AVM in her brain in September of 2011 (just prior to her 21st birthday in November) but we were not at all prepared for this, as if there would be any way anyone could prepare for such a traumatic event!

Upcoming appointments are as follows, please think of her and send good thoughts our way that these go well, 15 July is her scheduled follow-up with the Neurology team at OSU to go over the most pressing issues she has been dealing with over the past few months (the additional areas of pain in her head, the marked increase in aphasia, the return of the "waterfall" noise, the focal seizure activity, and the increase of dizziness and balance issues), her next imaging (Cerebral MRI under full sedation) is scheduled for August 1st (I know, it seems that it would make more sense to have the imaging first and then the appointment to follow but we take what we can get when it comes to getting an appointment with Neurology!), and the next 5-day Ketamine infusion at Cleveland Clinic is scheduled for September (exact week will be provided sometime in August).
Since my last update there have been numerous hospitalizations, all a week or less, for tendonitis flare-ups of her left Achilles and heel, for unmanageable pain due to the radiation necrosis damage and Thalamic Pain Syndrome, and the latest being to have her gall bladder removed on a Wednesday and then stones removed from her bile duct the next day.

She still falls numerous times weekly but, in her words, she "knows how to fall gracefully" so thankful for the years of gymnastics classes she took at the Rec Center when she was young!!! Unfortunately, this doesn't help much when she takes a tumble down the stairs but I am diligently searching to find a ranch style rental to move to as it's become rather dangerous for her and I'm always worried that I'll come home from work one day to her unconscious at the bottom of the stairs...

She's been fairly stable lately, trying her best to stay out of the hospital and home with her beloved Bernie! That dog truly earns his "Saint" title as he really does intuitively know when she's not very stable and either lays on top of her to keep her in bed or right next to her so that he'll keep her from falling onto the floor! You couldn't ask for a better therapy dog! He's very protective of his "Mama" and "Grammy" too!

I've been able to put in more hours at work lately and it's really nice to not have to struggle so much to pay the bills and keep food in the house without having to beg for donations and visit the food bank.
We're still having a hard time coming up with the extra $1,000 (plus) that it will take to have the lift for her powerchair installed in the car and a dear friend has been diligently trying to get information from the company that makes the lift so that he and another friend can do the install correctly and only charge for necessary parts. Still fighting this battle as it would definitely make getting out of the house so much easier for her and me!

Right now, it appears that I will have to wait another 13 1/2 months to retire with full benefits as, even though I reached my 30 year mark on March 24th of this year, I have to be 56 which won't happen until August 13th 2017...still hoping an early out offer with voluntary separation incentive pay will come my way before then as that would really make things much easier for us both!

For those of you who continue to call and stop by when you can, you have my utmost respect and neverending gratitude! This is what true friendship is, being there and never giving up when you know she wishes she could go and do like she used to but only has a limited amount of energy (look up the "spoons" story, that explains it way better than I can). Continuing to invite her in hope that one day she can say yes and have the energy to go and do if only for a little while gives her goals to look forward to even if it's just a movie and pizza night at home catching up! These are so necessary as the feeling of being all alone in this is not a burden she should carry without help. THANK YOU, you know who you are, and we love you like family!

I'm still researching and even have help on that here and there (Thank You Sis!) and have found a promising study being conducted primarily at Stanford but with an outreach also in Pittsburgh that is getting ramped up for phase 2 that I hope she might be accepted into where they implant stem cells into the brain and it has helped former stroke survivors regain mobility years after being affected by stroke. Such promising research being done and it can't happen soon enough! Will post here as soon as I get the call/e-mail that she may be accepted as a patient.

Please, if you are in a position to donate, do so in whatever form best suits you and know that we appreciate any and all donations as they do make it easier for us to keep moving in the right direction.
Those of you unable to donate financially, we understand and still need all the good thoughts, prayers, positive energy, and time shared together you can provide. Life is way too short and hard to face alone, know that even in the roughest storm we will be there for you too.
Please share this on FB, sharing is caring too!
Hugs and love to you all!

Delores, Angel, and Bernie
+ Read More
Update 75
10 months ago
Update time, long overdue...
For those of you that aren't aware, Angel spent Monday thru Thursday in the hospital last week (OSU Main). She was having excrutiating pain under her lower right ribcage and they found out that her liver enzymes are extremely elevated and her liver is quite inflamed. Not sure exactly why but the numbers are slowly coming down now. The lab results from her bloodwork showed her numbers to be almost 2,000 and almost 3,000 where they're supposed to be around 20 and around 30, respectively. She is still trying to regain an appetite but is drinking as much water as she can to flush out the toxins.
I was only able to get 3 hours of work in on Friday of last week and that's for the whole week. Trying to do better this week but had to take off yesterday for the Nurse Practitioner's visit and will also have to take her for bloodwork before the end of the week as they were unable to find a good vein yesterday.
Such a struggle but nothing has been easy for a few years now so why should I expect anything different?! I'm in this for the long haul and will never give up on getting her a better quality of life.
Was hoping that some of her long lost "friends" would stop by to cheer her up but it seems only the few of you that have been in her corner since day one are the only ones she can truly count on.
Doesn't seem that long ago that my house was full of teenagers...where have you all gone? I understand that life goes on and know firsthand what "busy" means but I also know that if the shoe were on the other foot she'd be there for you without hesitation.
She really feels alone in this and there's not much I can do to change that which makes me very sad.
We have been struggling for so long now that it's become the new normal.
Her needs are many (glasses, lift for her powerchair just to name a couple) and my paychecks have been regularly less than half what they used to be. Without the help of friends, family, and even kind strangers I don't know where we'd be right now. My paycheck last week was enough to cover rent, part of the water bill, part of the electric bill, and the phone bill with very little left for groceries and gas and now the cable is off again until next payday (if I get enough to cover it). This is her only entertainment and I feel like I'm constantly letting her down...
Please, if you are in any position to help in any way: groceries (Fresh fruit, meat, vegetables), cleaning supplies (paper towels, toilet paper, Clorox wipes), dog supplies (Kibbles and bits, any variety, and treats), gas cards, dinner out/carry out cards (from anywhere), donations to help cover bills. We would be forever grateful.
I see other fundraisers making the news but have had no luck in getting even a "no" to my e-mails to the local news stations...if anyone has an "in" there or even knows of places I can post flyers please let me know. Angel needs your help now, more than ever.
I know, short and not so sweet this time, please forgive my bluntness am feeling really stressed and depressed with the whole situation.
Please share on your FB page if you're feeling generous and caring today.
Thanks!
Delores
Angel
Bow Wow
and Bernie
+ Read More
Update 74
12 months ago
Update Time!!!
We've been home almost a week now since Angel's latest 5-day Ketamine infusion at the Cleveland Clinic. The Ronald McDonald House allowed us to stay there again (home away from home :), thankfully!

They are trying to schedule her next infusion before the end of December, please cross your fingers for this to happen.

She's healed from the latest surgery to her left eye but is seeing spots again...not sure what the Retina Specialist will want to do next, we'll know more after her appointment next Wednesday.

Another extremely short paycheck this week due to being out of town all last week...thankful we've hit catastrophic on insurance so I won't have to stress over the copays for her meds again until January.

Hoping to get the eye issue taken care of quickly so that she can go to inpatient rehab for a few weeks to see if they can get her to a better functioning level.

Still trying to put the hours in at work around her appointment schedule but am just barely less than part time which makes juggling bills etc rather tough.

She'll be needing a new pair of glasses and we still need a ramp/lift to help get the powerchair in and out of the car, not sure how/when I'll be able to finance those...

Bernie celebrated his 4th birthday yesterday with lots of belly rubs, hugs, kisses, and special treats. I'm very thankful he's been there for her through this nightmare. He's definitely her rock!

Our phones will be off again until next paycheck (at least), had to choose between paying rent or the cell bill and rent won out...hoping to keep the electric and cable on but that will take some creative financing if it can be done...all she has is the TV right now to keep her company and entertained and I'm doing the best I can.

Please forgive my overdue on the updates, it's wearing on me and I'm fighting the depression hard right now, this too shall pass :)

We're awaiting scheduling of cognitive testing through OSU Neuro Dept so that they might be able to come up with a plan to help with the (lack of) memory issues. Always a fight but I'm in it for the long haul!

Please keep her in your thoughts and prayers and if you can assist in any way, our needs are many and resources are few, gas cards, grocery cards, dinner out cards, groceries, dog food (Kibbles and bits) and treats, to name the basics. Any amount that you can donate (including the leave share program for my fellow feds) will help and no amount is too small.
I have started putting up gofundme flyers at local businesses that allow this and hope to see some response there. I've heard nothing back from the local news channels, was hoping to get some publicity there but no such luck.
Would LOVE to get a benefit set up but my time and resources are both in short supply...
PLEASE, she needs friends to stop by and visit if any of you can spare the time...
You can also help by sharing this on your FB page as the wider the range the more possibility of finding additional help and hope to keep us going.
Hugs and love to all of you and high fives from Bow Wow and slobbery kisses from Bernie.
I'll post again soon, hoping for good news that we're long overdue to hear and share.
Thank you all!!!
Sincerely,
Delores M. Gang aka "Mama G"
+ Read More
Read a Previous Update
Help spread the word!
Be the first to share this campaign on Facebook
A BensFriends.org campaign
Nicole Smith
44 months ago

You are in our thoughts and prayers and will plan to see you within the next week. xoxo

+ Read More
Delores Gang
44 months ago

One more day of hyperbarics this week, off Thursday and Friday, trying to work some decent hours Friday hopefully that will work out. Please keep this circulating I want it to go around the world!!!

+ Read More
Angel Sunshine
44 months ago

Thank you to all of those who have shared/kept us in your thoughts/donated. I'm at a loss of words for the outpouring of love and support from you all.

+ Read More

$6,635 of $25k goal

Raised by 78 people in 45 months
Created November 8, 2012
DL
$25
Dean Ling
2 months ago

God Bless You

+ Read More
DL
$25
Dean Ling
5 months ago

God bless you

+ Read More
$10
Shelli Johnson
7 months ago
$25
Anonymous
7 months ago
BR
$100
Brookly Rosen
9 months ago

Hi, my son had a brain tumor and had almost all the same side effects that your daughter now has. If I can help, please let me know. You can reach me by my e-mail, brooklyrosen@yahoo.com My heart and prayers are with you both, Brookly Rosen

+ Read More
SB
$15
susan broadhurst
9 months ago

Good Bless wish it was more.

+ Read More
TS
$100
Trisha Swickard
9 months ago

We will keep you in our prayers!

+ Read More
$75
Anonymous
9 months ago
AW
$500
All Tails R Waggin'
9 months ago

I only just met Angel and her mom Delores this week. We were contacted by one of her sole friends still by her side to help them with her dog. Normally we are contacted if people want to surrender a pet, but even though they struggle every day, her dog is her strength and her best friend. Her mom Said, "there was no way I could take her dog from her life, she's lost so much!" These people are good souls- PLEASE GIVE ANYTHING YOU CAN!! Renee Nichols

+ Read More
DL
$200
Don & Mary Jane Latta
9 months ago

Dear Friends When we find someone like Angel and her mom, who need our help, we need to respond. For those of us who God has blessed with abundance, it's times like these that we need to share Gods blessings with those in need. Please help!!!

+ Read More
Nicole Smith
44 months ago

You are in our thoughts and prayers and will plan to see you within the next week. xoxo

+ Read More
Delores Gang
44 months ago

One more day of hyperbarics this week, off Thursday and Friday, trying to work some decent hours Friday hopefully that will work out. Please keep this circulating I want it to go around the world!!!

+ Read More
Angel Sunshine
44 months ago

Thank you to all of those who have shared/kept us in your thoughts/donated. I'm at a loss of words for the outpouring of love and support from you all.

+ Read More
  Use My Facebook Account
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
https://gofundme.com/Angel-Sunshine-s-A
or
 Send a Text Message
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now
 Share on Facebook