NOTE: The PayPal account associated with this page is in my mother (Jazir's Nanny), Margaret Barton's name.
My name is Lara Marjerrison. I live in Toronto, Ontario, CANADA. I am the mother of a darling seven year old boy, named Jazir, who suffered a TMI (traumatic brain injury) at age 2.5 years. Initially he presented with Epilepsy only, which we have treated and successfully controlled. Recently, however, his revised and more accurate diagnosis of CVI (Cortical Visual Impairment) and Visual Agnosia has continued to mystify his Neurologist in that it continues to worsen and debilitate him further.
My son has regressed to the point that he is now legally blind. His eyes are completely healthy and functional but his brain does not process or recognize what he is looking at. He has lost all ability to see faces, including mine and his dads and relies wholly on the sound of our voices to identify us. He can no longer identify every day objects, has lost his ability to differentiate colours and now struggles to dress himself because he cannot recognize different articles of clothing nor determine what their function is. He is disoriented and gets lost or confused even at the simplest task, such as getting himself from his bedroom to his bathroom. He cannot be out in the world without holding the hand of an adult, it's not safe for him. He doesn't recognize where curbs become roads, where edges drop off. We must be on alert for his safety at all times. He is now beginning to struggle to eat properly. His condition is deteriorating rapidly and he is losing more and more of his independence. Every day offers a new challenge as we strive to adapt. He presents much like a little boy trapped inside an Alzheimer's riddled mind. He becomes more reclusive, frustrated and anxious as time passes.
His MRI is normal. He is intelligent, compassionate, loving, affectionate and musically talented. He lights up a room when he enters and everyone that meets him remarks, "There is something about that boy.. " Watching pieces of him slip away is torturous. His doctor believes that, based upon his normal MRI and other demonstrated abilities, we can HEAL this injury. We just need the right people and procedures to help.
There is an Institute in the US that can do just that. It's called the Institutes for Achievement in Human Potential. I need to attend their programs to learn how to heal his injury, detox him from his meds and get him thriving again.. to return him to himself and to us. Two years ago I had to give up my job in order to give Jazir the proper care and attention he needs and that his condition demands. We survive on next-to-no income and live very frugally.
I need your help. I require travel, tuition and living expenses for the programs that I must attend at www.iahp.org
to help my son. This is a critical next step in his healing process and the time to act is now. The program begins December 3rd, 2012. Please help me to get there.
I remain most humbly grateful for your compassion and consideration.