Our miracle Madden came into this world crying and screaming, which is normal for most babies, but this is something we were told Madden would never do. Just like his brother Jake, we were told Madden would not live long after he was born because of a very rare genetic condition. Well, Madden has a way of proving doctors wrong and on May 25th, did just that. Madden has a rare condition called Jeunes Syndrome http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/jeune-syndrome/ and due to its rarity the doctors are unable to treat him at our local hospital. He likely needs multiple chest expansion surgeries called the VEPTR procedure. The specialist that has agreed to see him is located at Children's Hospital of Philadelphia (CHOP) and we will be traveling there very soon so he can finally be evaluated by the experts. The costs associated with having a child with special needs are extraordinary. Many people have asked how they can help and for now this is the best way to help Madden and our family get to the doctors who can help him. We appreciate all of the amazing support we have received from friends and family. Thank you so much in advance for helping our little guy get the help he needs to continue the fight!
We have been so fortunate to receive such amazing support and we can never be thankful enough.
Also, if you are on facebook, Madden's page with daily updates on his progress: is www.facebook.com/goteammadman
Thank you all again! We love and appreciate you,
The Sheridans (Mandy, Chris, Bailey and of course Madman)
From a fellow gofundme user dealing with recurrent loss, I wish you all the best of luck with your little Madden. He's absolutely precious!
Hi mandy congratulations to baby miracle madden for so many supporters. its such a blessing. My wife has an illness and she will be dealing with this life long illness for the rest of her life. If u please could help me on giving me some tips to help get my wife's page out there to help support her page and donations. she has yet to recieve one donation but we still have much hope. god bless baby miracle madden and your family gofundme.com/1d2py0
I am Madden's grandmother (Meme) and I appreciate all the support everyone has given to Madden, Mandy, Chris and Bailey. I wanted to let everyone know that another great way to make a donation is by donating airline points/miles. There will be a lot of trips back and forth to Philadelphia and this would help a lot. Thanks again to everyone that has donated and to everyone for keeping Madden in their prayers.
Words cannot explain how amazing all of our friends and family are!!! We are so thankful for each of you :) we should know more later today about the timing of all of this. Madden requires a medical plane staffed with a doctor so he cannot fly commercial, so we are still coordinating things. We will update everyone as we know more! Thank you all again!!
Mandy and Chris, Thinking about you and Madden every day. (btw, LOVE his name...) I follow Mandy on FB and read her posts daily about Madden. You already have a little miracle, and I am praying for a bigger one! Love you you all...