Our Julian was born June 14, 2012. At that time, his little lungs decided not to work. He has been in the hospital ever since. At four weeks, he was diagnosed with ABCA3 Protein Deficiency. This is a very rare congenital lung disease with no known cure. Baby Julian was recently transported from Cincinnati Childrens to Nationwide Childrens in Columbus, Ohio for experimental treatment. We were told to say our goodbyes when they diagnosed him but Julian wasn't giving up and the experimental treatment has given us time to let him grow. Time that we were told we didn't have! The beginning of April 2013 Julian was placed as active on the double lung and heart transplant list. It is not a cure, there is actually only a 57% survival rate past 5 years for an infant with this surgery. We could get a call tomorrow that there is a donor or in a year. Right now we are just starting each day hopeful and happy that it's another day together as a family. Mom Mom and Dad have been at his side since the beginning. They spent the first 6 months at the Ronald McDonald house before moving here in March. Please pray that God's plan for Julian is fulfilled and that God gives his parents strength and wisdom. If you would like to contribute with either prayers or a monetary gift to help with the costs involved with Julian's care, we would greatly appreciate it!