RESULTS: today we received the best news possible for Isabella, there is only slight growth in the tumour and the pressure is still the same as it was 9 weeks ago, so the risks are all still there but we have been given the glimmer of hope today. Isabella is doing amazing as always and I can look forward and plan her birthday (30th sep) her dr doesn't think it's unrealistic to arrange the celebrations for her 4th birthday.
Isabella's doctor did tell me "I'm going to confuse you more, this is the best I have ever seen Isabella"
A very proud mummy!
Please understand we do have the negative stuff holding over our heads still, because the tumour is wrapped around the main blood steam in the middle of Isabella's brain this could get squashed at any time and the pressure can get worse and burst at any time but with hope in our heart and an amazing little girl in our lives, were going to live life to the full. Next scan will be just before Isabella's 4th birthday. Come in little lion we have life to live! I love you so much always.
I'm hoping to raise the money to take Isabella on holiday with her sisters to build more happy memories and to celebrate the good news.
All donations as always are welcome, thank you for your support xx
Thank you to everyone that had donated at some point without your support we wouldn't be able to give Isabella so many life experiences in such a short time and support little lions den for other families with children with cancer to have a free holiday a little escape xx
Scan Results on 30-4-14: the tumour has grown a substantial amount although the doctor believes it to be at a slow rate, the bad news is the growth from the tumour has now caused pressure on the ventricles which its now expanding, this was explained to be as a balloon, if you was to fill a balloon with fluid it will burst this is what is happening in Isabella's brain right now and as the tumour grows (which it is) the ventricles will busts causing a coma, we are now at higher risk of Isabella going into a coma at any given time, because of the added pressure in the brain we are also at higher risk of Isabella having a brain haemorrhage, this can be at any given time so were told to take one day at a time and make the most of the time we have got.
First thing is first and get the christening all sorted to happened as soon as possible, it will be a very special day for Isabella and her sisters, I will be having all 3 girls christened at the same time so Isabella's sisters don't grow up thinking they have to be dying to be christened and it will be a special day for all 3 of them.
so not great results but we and everyone following Isabella's journey knew it was coming. we live in fear each day that it will be Isabella's last xxx
from the heart I feel like I have failed as a parent, ive failed my daughter I couldn't protect her when needed most, all I can do is hold her hand and snuggle her, hold her up when needed and try my best to keep her pain free xxx
Please help me by donating to make this christening as special and wonderful as possible xxx
Instead of holidays and special days I need to put things in place for what's to come, a question was asked the other day would Isabella need to be christened to be buried in consecrated grounds? So with this in mind now we are going to have Isabella christened along with her sisters so it will be an extra special day for all of them, I'm with understanding there won't be a cost to the service but to celebrate such a special time in there lives will cost, so fundraising from now until the service and celebration has taken place will go towards this. If you would like to donate to help please do.
update on Isabella......
Isabella has had 5 whole days of knickers and no accidents, I'm so proud of Isabella and how well she is doing we was told she would never have the feeling of wanting the toilet register in her brain but she's gone and done it. Something else she's proven the medical profession wrong. Never say never with my daughter, you said she would never walk I got her walking you said she wouldn't speak that well she speaks very well, you said she would never grow up, well she really is a little lady now who's had a great life and nothing like a cancerous brain tumour is standing in her way at enjoying what life she got. I love you with all my heart Isabella and together we stand proud.
Donations towards Isabella's christening would be gratefully received.
Thank you to everyone that donated to make Blackpool happen xx
Please note there have been other pages set up by other people in Isabella's name where the money collected in wasn't paid to Isabella, this is the only page where donations go direct to Isabella and little lions den so please if you would like to donate to help Isabella live life to the full whilst still here please donate in this page only, this page is also connected to her Facebook page Isabella Coomber & little lions den. Money raised and donated go towards building memories and living life, whilst supporting the holiday home for children with cancer under 3 & their siblings xx
firstly I would like to thank everyone who has taken the time to follow Isabella's journey and found it in their hearts to donate.
As many know it is my wish to take Isabella along with her sisters to Blackpool, I have booked a haven site for 31st march for a week of fun, as Isabella loves the wind if anyone has ever seen the wind blow on her face you would remember the giggle and laughter from Isabella ringing through your ears, then comes the but and now I find myself asking those that have supported and follow Isabella's journey for help, this is hard to ask for help after the text message I received but I cant do this without your help this time, I need to raise the funds to hire a car to get us up there and back for the week, I would also like to take Isabella to the pleasure beach, a ride on the horses and cart, Blackpool zoo and on the tram this all mounts up and has me worried so if anyone would like to help and donate towards the trip donations would be gratefully received.
Thank you all for your support, building a rainbow of memories xxx
This is my wish as a Isabella's mum to take her to Blackpool as I took Isabella's older sister when she was younger and always thought I'd take Isabella but with time running out I don't have time to save for a trip and admit I need all the help I can get.
thank you to everyone for all your support xxx
As many of you have guessed as it has taken me forever to write the results from today, it really wasn't the news we wanted to hear but knew this day was coming.
I just needed time to let family no and to take it in first.
so here goes.......the tumour has grown and will now continue to do so because of the growth and how dangerous it is the doctor has given Isabella a week to 3 months left to enjoy life. As the tumour has grown it can bleed at any time costing life or Isabella could start having fits leading to a coma the side effects will become worse and quickly, were told that it will be quick, so we hope Isabella does not suffer anymore.
we have to take one day at a time and still we have hope, hope we can build more memories and hang on for as long as time allows, but most of all to keep Isabella as pain free as possible.
my world as I knew it changed for the worse today time is running out and fast, we are all trying to get our heads round it, 3 months is like 5 fucking minutes we will fill it with life love and laughter. thank you everyone for all ur support xxx
First things first come Monday we WILL fulfil the wish of a beach holiday which will be Isabella's last holiday abroad. Then try and hang on til Sophia's birthday followed by her school trip. I want to take her to Blackpool for my birthday but that's the end of april think I might just be thinking to far ahead xxx
my Little lion I love you with all my heart and we have done every single step of this together, I thought you would prove the doctors wrong and beat it, never did I think only one of us would come out of it, you have made me a better person im lucky you are mine and we will always walk together thank you for being mine you always make me so proud xxxxxx
we are due at the royal Marsden in Sutton tomorrow for Isabella's mri scan, a very worrying time for us all as the doctors did warn us that by this scan and 5 months off treatment the tumour would have grown, we get the results on Wednesday so will keep everyone updated.
sending huge thank you's to everyone that has helped fill the good days with lasting memories we hope with your help we will be able to fill the rest of Isabella's life (how ever short) with fun and laughter and a simple smile every day xxx
Isabella's hair has grown and she wanted hers done to, mummy prefers the curls xx
Isabella's long hair x
Huge thank you to everyone who donated to help Isabella's wish to go to Disney world come true, she meet her favourite princess Cinderella.
Isabella has been complaining her legs get tired and hurt her, next scan is 24ry feb with results being a few days later.
As we don't no if Isabella will get to get 4th birthday (doctors don't think she will) so we ate planning an Easter party for Isabella to be able to invite all her friends to, you have all been amazing with support making wishes and life experiences come true so I have every hope that you will help make it a party of all parties not only for Isabella but to make all her friends smile to, I hope that everyone that meets befriends and follow Isabella never forget what an amazing little girl she is and how she inspires many.
Isabella has been well over Christmas she was at her best and in Florida the few days of sunshine we had seen to give her another boost but we came back with a but if a bump as Isabella has been unwell this week and we now need her blood levels to recover so she can return to nursery next week to enjoy more fun & experiences with her friends.
Your support means so much to Isabella and her family as your support means we are able to make her wishes come true and build many life time memories for us all and filling Isabella's life with many experiences that you would normally fit in in a life time xxx
Isabella in Florida x
huge thank you to everyone at Faversham that donated items and time to make winter wonderland for Isabella and her family so magical x
beautiful day at winter wonderland xx
just a quick update...... Isabella had an amazing Christmas and huge thank yous go to everyone who helped denise bell make over her church, all those that attend the day and made is so magical for Isabella and her sisters, we see the new year in at little lion's den as Isabella loves spending time there xxx
we are still fund raising for the up keep of little lions den and hope to have other families with under 3's suffering with cancer using it for a little run away from march.
At the moment all donations received are going towards making a school trip for Isabella and her nursery friends possible, as Isabella can't use public transport and is the only disabled child in her nursery, just for Isabella's benefit we would have to get them a coach. so thank you to everyone that has donated so far to make dreams and the little things more possible.
Isabella continues to live life as much as possible and is ticking so many things on the life experience list, sometimes its just the small things that mean the world to us xxxx
wishing everyone a very happy new year and all the best of health always xxx
Before the recent news from the doctor, Isabella asked me to go to Disneyland, I pushed this thought to the back of my head not believing its something I could make come true now, but with the news from the doctor being that Isabella doesn't have long left with us I don't want to live with the regret of never taking her back to meet the princess, so I plea to you all for your help in making one last wish come true for a truly inspirational little princess.
on top of all this we are trying to make Christmas special for her last with all 3 of my daughters together. A very close friend is making over her church at Christmas for a winter wonderland for Isabella and her sister, close friends and family and for those that supported us, please get in touch if you can help donate lights Christmas decorations party food or small gifts for santa to give out to bring a smile to each and every child this Christmas time xx
Recent update on Isabella,
Firstly Isabella is still an amazing little girl and made it to 3 years old, to us (her family) it shows how truly amazing she is to have fought for so long. It will be two years next month.
Next Wednesday will be Isabella's last ever chemo treatment as all the treatment she has received is starting to take its toll on Isabella's body, we was hoping to do 12 months of prolonging but that isn't meant to be, Isabella suffers a lot so we have decided as a family it is in Isabella's best interest to stop after next weeks cycle. (we would have then done ten)
The doctors lead us to believe that we have Isabella until next June but by stopping the treatment this time may come before then, we hope and pray that Isabella will fight to live many more months, which ever its meant to be we will deal with it as a family and always put Isabella first.
we wont win the battle but were trying to win the fight, our fight now being to keep Isabella as pain free as we possibly can and to give her a wonderful life, with amazing memories so her sisters will be able to look back and over look the bad times with smiles and fond memories of there very much loved sister.
On a much brighter note we are now the proud owners of little lions den (a very fitting name chosen by Isabella's uncle for our little lion), as of the 1st march 2014 a new season it will be open for under 3's suffering with cancer and there siblings to run away to, if you know of anyone that would benefit from a little ''runaway'' please do get in touch to see if we can help.
Thank you to everyone who has supported us to get to this far, I hope you can find a small place in your heart to continue to support Isabella and little lions den, we will continue to fund raise to make little lions den possible as we no only to well a break is sometimes all you need to carry on the battle.
If you would like to follow Isabella's fight daily or when possible to update please like her facebook page called ''Isabella coomber and little lions den''
lots of love and wishing you all good health always xxxxxxxxx
We have been told by 2 different radiologist that specialist in brain tumours that there is NO cure for Isabella's cancerous brain tumour and to enjoy what time we have left with her. The words came as "Isabella will never grow up" all we can do us try and prolong Isabella's life and give her the best possible quality of life.
After speaking to her neurologist we believe the time Isabella has left could only be 10 months.
As a family we have decided to give Isabella everything possible in sure a short amount of time and to builds amazing memories as her siblings are so young we don't ever want them to forget her.
We are also bring the plans for a holiday home for children under 3 years old suffering with any type if cancer and there siblings forward and will continue to fund raise for this and to give Isabella the world or as much as we can and for as long as time allows, please follow Isabella's journey on Facebook for daily updates. Thank you all for your support in this nightmare battle.
Life is for living doesn't matter how long or short that may be, make the most of every moment xxx
We have a fantastic festival planned for Sunday 19th may at shooterhillians sports and social club mayday gardens eltham from midday come along and join us if you can, loads for all the family live bands singers dancers, stools and games. Raffles and bar be que and fantastic cakes. Please check out Isabella Coomber on fb to follow her story more up to date. Thank u for all ur support.
Just to remind everyone we have a fund raising event on Saturday 16th feb at The Rochester way social club, 366 Rochester way Eltham SE9. Valentine's disco 7.30 til late tickets £10 an adult children free and most welcome, buffet and disco also sweet cart and a selling table including roses and jewellery, if you can make it please come along and support Isabella's treatment fund.
thank you to everyone that turned up on Thursday to enjoy a game of bowling whilst raising much needed funds for Isabella's treatment, A fantastic £100 was raised on the evening. Huge thanks goes to Isabella's granddad jim for arranging the evening.
we have £545. towards isabellas treatment in the us, we have a huge way to go and have plan some events for fund raising please come along on these to support us, x
Isabella, Rebecca and Sophia had an amazing Christmas in Disney, thank you to everyone that has supported us fullfill the dream, all donations now are going towards trying to give Isabella a cure in the united states, wishing all our supporters a happy new year and we wish you all the very best of health for 2013. x
we are now collecting donations towards Isabella's treatment in the united states, any donations made from today will go towards try to give Isabella a cure.
thank you to everyone who has donated and supported us in making this dream come true, I can happily say that we have enough to take the girls for Christmas. Rebecca's wish for Isabella fulfilled. xxx in January we have the huge task of raising the money for Isabella's proton treatment in the United states. I hope you will all be able to continue to support us xxx
On the 15th dec 2012 we will be holding a christmas ball in aid of rebecca's wish for isabella at the rochester way social club from 7.30pm til late tickets are £10 an adult and will include a buffet and christmas disco, children are free and most welcome. ALL WELCOME. please ring 07974 070 762 for tickets.
hi all, we got isabella's mri results on monday 5th nov, the tumour is still the same size as it was reduced to last decemeber, come january the chemo will stop and isabella will just have the oral chemo in the hope she will make it to 3 years for more treatment, although we have been told the tumour is likley to grow whilst on oral chemo because of the aggressiveness of the tumour.
her dr is mention that isabella's best bet at treatment is only aviable in the US and at a huge cost to us but we still have to get her to 3 for that. More surgery has nolonger become an option.
thank you to everyone who has found it in there heart to donate to help full fill this wish.
On friday 19th Isabella had to have a blood transfusion and is now feeling a bit better on monday Isabella had her mri scan under ga we now have to wait until the 5th november for the latest results due to the doctors having to have a meeting.
Monday's chat with isabella dr's resulted in us finding out that her life expentacy was just 20 months. Wednesday she wasnt doing to well, Thursday was a trip to the marsden then transfered to kings to check her shunt, which was all ok. Today was the day isabella's doctors had 3 meetings to talk about her, due to the signs that isabella had been showing her dr said he was really worried that isabellas tumour is now growing, chemo had worked to the extent that it had stopped it from growing but if it has growen it will become a grade 4 tumour, we now have to wait until the 22nd for mri scans and for all her dr's to have another meeting to see what our options will be, he has warned us that the opions are all likely to be life threating but what else can we do, i am selfish enough that i will never give up hope on my daughter and we will continue to fight strong as a family, thank you to Carol Hale Colin Hale Christopher Coomber for holding it all together love you all so much xxxx our family rule has become ''no tears please there be plenty of time for that at a later date'' xxx
thank you to the people that took the time to donate to our fund today, it means so much as at the moment isabella is now in kings college hosptial after not feeling to well and a visit to the royal marsden they transfered her to kings to have her shunt cheecked, after a ct scan and xrays its ok, (thank god other wise it would have ment more surgery) they are keeping her in for a bit to see how she goes and hopefully get her back to her normal self. As her mum it is the worse thing to see your child have to go through tests and being so ill. praying hard tonight that 2mra will be a much better day for isabella xxxx
On sunday is Isabella's 2nd birthday, over the past year we have realised you have to take one day at a time and live life while you still have it. Thank you to everyone that has been so kind to find it in there hearts to help rebecca's wish for isabella come true we still have a long way to go to our target so please tell your friends and family and come along to future events that we have planned.
As of recent news and events and signs that things are getting worse and Isabella's Heath is no longer at its best, I worry about how on earth am I going to be able to give Isabella the send of she is so going to deserve, so now with this in mind I will be fundraising to give her the best, I'm not going to be able to do this alone so all the support I get would be great fully recieved, some may think I should of thought of this before but there was a life to live and I tryed with help to fulfil it as best as possible. Xx
Please take 5 mins to read our story.
We are very proud parents to 3 Beautiful girls, Rebecca 6 years old, Isabella 2 years old and Sophia 11 months. We live with grandma in her house in plumstead, royal borough of Greenwich. London.
This is Isabella's story...........
When Isabella was 9 months old we was worried about Isabella as she was not sitting up, the doctors told us to take her home and wait for her to develop.
When Isabella was 10 months old she still wasn't sitting up and had no balance as any mother knows this is not right at at this age it really is a worry so after another visit to the doctors she was referred to the royal London hospital to see if she had clicky hip. Isabella passed all these tests and x-rays showed nothing.
So after going straight back to the doctors she was then referred to Kings college hospital. After ringing every day we finally got an appointment, think they had had enough of the phone calls by then.
After 3 months we see a paediatrician and she thought from Isabella's signs she had cerebral palsy, she we had to wait for another appointment for a brain scan.
On the 16th Dec 2011 we went for Isabella's mri scan to be told while she was still under so they could take more pictures that they had found a very large brain tumour, 7cm big. This was the Friday
we was told that we would have to take her in the following Wednesday for them to operate on Thursday. Also being told we would not be home for xmas. We then went home and had xmas with all the family on the sunday, had xmas really come early???
After waiting over 8 hours for Isabella to come back from brain surgery we was told we still couldn't see her while they made her stable. After a long day and so many hours we finally got to see our princess.
Then to be told they couldn't remove it all as it had wrapped itself around one of the main blood vessels in the brain and we would have lost her if they had tried. We were just so grateful that they had looked after our princess and brought her back to us a life.
We was in kings for 9 days while Isabella recovered and while we waited the results of what sort of tumour it was.
On the 30th December we was told the tumour was cancerous and would need to meet the dr from the royal marsden he was coming the next day.
After meeting her cancer doctor the first thing he told us was that most children with this tumour do not survive, i added that was until he had meet mine, she was given 60 % chance of beating it, but 50% chance of it coming back at a later date once it was beaten. Only 1 in every 900,000 children get this, we was told she had a high grade tumour, which meant it grows fast. And her treatment plan. 12 months of chemo followed by more brain surgery, they were hoping with chemo it would shrink the tumour back from the blood vessel.
in January 2012 Isabella had to have a shunt and drain fitted which she would have for life because the tumour had cause damage to the fluid chamber and block it, which means the brain fluid cannot drain itself and collects, hence the bump that comes up and down on the side of her head.
this in turn put the chemo treatment off till a later date.
In February after a short illness Isabella was fitted with a portacath which is a line that runs straight to the heart, for blood to be drawn or for chemo and medication to be given.
In Febuary after a lot of worry and some complications we started her chemo treatment at the royal marsden in sutton, we have 6 different types of chemo, every 3 weeks.
we was also told of some of the size effects these including kidney damage, hearing loss, hair loss sickness weight loss and the treatment Isabella is having can cause leukaemia later in life. There is more but we can't be worrying about all of them at once.
When we got to the ward at the royal marsden Isabella was the youngest they don't normally have children of her ages and this tells as they have a brilliant play room there but no toys for Isabella's age so we now take lots and lots of her own.
Isabella has been so brave battling through having chemo, being separated from family days sometimes weeks at a time.
The worst case was mother's day 2012, Sophia only being 5 days old, Isabella was rushed to hospital by ambulance because she was fitting. The paramedic had to take over Isabella's breathing on the way. The managed to stabilise Isabella and she spent the next 7 days in king's college hospital getting better all caused by a common viral infection. These are very common in children suffering with cancer but what a scary time for everyone in the family including Rebecca who was 5 at the time watching from the side lines. The siblings often are forgotten when a family has a sick child, so we try and keep our days normal building lots of memories of fun times. Our family enjoy spending time together laughing and having fun.
On the !4th January 2013 Isabella completed her 12 months of chemo. The last mri scan showed that the chemo has only worked to the extent of keeping the tumour stable and had not done what the doctors at kings or the royal Marsden has planned would happen. In turn this means the tumour is still in-operable.
On Monday 11th February we was given 3 options of which way to go next, all 3 options being life threatening to Isabella and all treatment plans ending in radiotherapy. Isabella's chances of survival have now gone down to 50%.
Firstly we have to get Isabella to 3 years old to be able to have radiotherapy as the brain is not fully developed until then.
If Isabella has the standard radiotherapy in the uk this will leave her with very poor quality of life effecting her long and short term memory leaving her with none, she will not have any iq meaning she will never become an independent adult. It will also affect her speech her motor skills and mobility.
We have chosen to try oral chemo which is not intense like she was having before, the doctors have warned us that the tumour is likely to grow, but as parents we feel it's the best option we have at giving Isabella time. Time to get to 3 years old for proton beam treatment.
Isabella has just learnt to walk at the age of 28 months. But treatment will take this away from her.
We have found Proton beam therapy is available in the United States but it would come at a cost which we would have to cover, the cost being £150,000. Isabella does not qualify for NHS funding.
As a family we are trying to fund raise to raise the amount needed to give our little girl some quality of live.
We have had a Christmas ball, valentines disco. We have a funday, photo shoots, jumble sales and a ladies night all planned but really need some help.
If there is anything you can do to help raise some funds towards Isabella's treatment we would be very grateful. Or if you have anything you could donate towards raffles we hold at each and every event as we found these great money makers to help boost funds then please get in touch with us.
Isabella's story can be found on Facebook Isabella Coomber & little lion's den (Isabella's story).
Thank you for taking the time to read our daughter story