August 21st, 2014 Sarah was discharged from Riley pediatric rehab to go home to continue her healing. She has shown some progress, slow but sure and her mother and therapists will continue to work with her now that she has returned home.
She no longer has a trach but still receives all her nourishment and medications through her g-tube. Sarah continues to require total care from her mother as well as continued rehab with physical, occupational and speech therapists.
Since returning home, the family has been faced with more obstacles to make modifications to accommodate Sarah. With Sarah's mother not currently working, she does not have the funds to finance the things needed for her such as a wheelchair accessible van to transport Sarah to upcoming medical and outpatient therapy appointments, a ramp system to get Sarah to and from the house (to the driveway), and a roll in shower system to make bathing easier for Sarah.
Any amount donated all goes towards Sarah's past and current medical care and accessibility. No amount is too small and all donations are greatly appreciated by the family.
Sarah was moved to Riley Children's Hospital on July 7th to the pediatric rehab unit. She has shown some progress, small steps, and we continue to work with her to get her to become fully awake/aware - she continues to have a long road to recovery!
Please follow her page on facebook, When Sarah Smiles for more frequent updates and information on how to contact Sarah's mother if needed.
Thank you for your continued support!
An update from Sarah's Mother:
Monday, June 30th - I thought I would take a moment to try to update y'all on my little bug-a-boo. It is difficult to accurately describe little miss Sarah today. There really hasn't been much change in her condition, but there has been some changes in some of the things she has been showing us. Since Friday we have seen increase in the storming, so she is back on some of the sedatives and pain meds to help her relax physically as well as try to calm the storms. Her posturing has increased despite the increase in meds. She does continue to be on trach collar and only on oxygen support during the day. She still opens her eyes, blinks, yawns, etc but still not responding when we ask her to do things (thumbs up, stick out tongue, wiggle toes, etc). That's about it for now....will keep everyone posted...
As always, thanks for the prayers, thoughts, meals, gifts....thank you Becky for dropping off more bracelets, sorry I was unable to come out at the moment...but it was definitely appreciated!
Also....there is a benefit motorcycle ride in the works for Sarah scheduled for Saturday, October 18th...."When Sarah Smiles" ride...please watch for details.
Thank you all again...you're all in my thoughts and prayers
Friday, June 27th - Sarah has had a bit of a rough day this afternoon. She has been experiencing more frequent central/ sympathetic storms - posturing, more intense, more prolonged, so she has been given meds to calm and relax her. A blood clot has also been found in her neck so that is being watched and treated to make sure it hopefully does not reach her lungs. So, room is quiet, lights are off, I'm sitting holding her hand, listening to her breath and catching up on things. Again, thanks to everyone for the prayers, thoughts, well wishes, offers, etc...I cannot express how grateful I am for each and every one of you
Tuesday, June 24 - This is an undate from Bobbi , Sarah's Mom.
Please continue your Payers
Been a bit of a busy day...emotional...Sarah has acquired another slight, yet common "hospital" type infection (seems as though she gets over one and another one attacks)...bladder infection which we were aware could happen due to the foley (catheter) - new antibiotic to treat YAY. Tomorrow Sarah is scheduled for a procedure to place a trach in her airway to remove the vent tube from her mouth - she has had some recent issues with grinding her teeth, clenching her jaw and her poor little tongue is getting caught in the midst...she has actually exceeded the time frame typically allowed for the vent, but due to her young age, the medical team wanted to allow her extra time on it - so, tomorrow is the turning of another page. The trach will actually cut down her chances of wear, ulcerations, infections, etc...if needed this can be something that is long term, or, ultimately can be something she could be weaned off of. There was also discussion of placing a feeding tube (PEG)...both of these procedures will eliminate all the tubes etc going into her mouth and nose, down her throat, etc. Both of these procedures have benefits that will again optimize Sarah's chances for recovery. To say I'm not scared, nervous, anxious or excited all at the same time would be a lie....difficult to describe accurately how I feel other than I do feel confident in the fact that she is getting the best care and that I am being guided honestly by her medical team and my faith. We also discussed today the probability of Sarah going to a rehab facility where intensive occupational and physical therapy can begin to hopefully stimulate her brain, nerves, etc...research has shown the sooner this can begin, the better chances for recovery...that is something I will have to update as soon as I have more insight and knowledge on. Some may ask why are they even talking about a rehab center if she is still in a coma? 1 reason is because the risk for infection in a hospital, let a lone an ICU is crazy high...and 2 is because she will get better and more attention focusing on therapy/ rehab in an extremely intense manner...that is what they specialize in is rehab - something that the trauma (adult critical care unit) doesn't.
I hope this update makes some sort of sense - sometimes difficult to update with information that may sometimes be misleading or misconstrued especially through social media...and particularly to those not familiar with brain injury (as they are unpredictable and individualized).
Tomorrow will probably not be the best day for visitors with these procedures going on, I do sincerely appreciate the visits, the prayers, the food, the thoughts, the sharing, the LOVE, the photos...
Have a restful, blessed night y'all.
Sarah's Mother Bobbi said had what she consider a good day today...no real big changes...white cell count up some...we were able to put her in a chair for awhile this afternoon...still experiencing the "storms" but managing...her gorgeous eyes were open bigger and for longer periods of time today but not yet tracking or doing anything by command. We've been rocking out to classic rock all day (little Manfred Man...Rush...Pink Floyd...Skynrd...Golden Earring...Bon Jovi...Zz Top...and everything in between) and looking at live camera view to a beautiful ocean beach somewhere thanks to her awesome nurse Casey today (they've all been awesome, but was just was Casey's day today!)
God Bless...thanks for the prayers...comments...messages and everything else y'all do!
Bobbi Sanow Hubbard 9:31pm Jun 16
Sarah's update: we were able to remove a couple arterial (central)lines today...she is experiencing sympathetic(central) storms yet but is manageable with the beta blocker. Otherwise about same as yesterday. We spent most of morning and early afternoon listening to music...reading posts and watching an adorable little red head share his hopes for Sarah ;-) thank you again for that Megan Marie Hoff ♥
I pray all have a safe and restful night!
Sarah is fighting for her life right now in the citical care unit at Methodist Hospital in Indianapolis,IN and has been since that fateful day. On June 6th, 2014 Sarah suffered a brain injury after drowning when she was swept over the dam in the Big Blue River in Edinburgh, Indiana while swimming with friends.
As each day passes Sarah shows signs for a hopeful recovery. Sarah and her sister have been raised by their Mom on her own as she is the sole provider.
Everyone's primary focus is on Sarah's recovery, however, we know financially she and her family will need some help with the ever expanding burden of the cost of care for Sarah both now and in the future.
Sarah's mom is currently on unpaid leave from work to be by Sarah's side as much as possible to aid and assist in her recovery. With long hospital stays, meals for family, gas for traveling, parking fees, lodging fees, not to mention mounting hospital bills, home (rent and utilities), Sarah's Family will NEED ALL THE HELP WE CAN PROVIDE!
So in an effort to help Sarah and her family though this most difficult time, I'm asking for any amount that you can give, even just a dollar,no amount is to small
All funds will go directly to the family.
Please check out the facebook When Sarah
Smiles. https://www.facebook.com/photo.php?v=795052403851775&permPage=1Thank you for all your Prayers and support.
May God bless you