Zerricks medical expenses

My name is James Lesh, and I have a child named Zerrick and he was diagnosed with a 1:1,000,000 rare bone disease called CRMO (Chronic Recurrent Multilocal Osteomyelitis). The disease eats holes in his bones and causes him pain and swelling in the affected area. The treatment he has to undergo is an infusion with a medication that is called Pamidronate and has to have an iv in his hand for 3 days. Each treatment last 5 hours a day and our insurance doesnt cover his infusion or medication. His other medications are Naproxson and a calcium supplement to try to regrow his bones. This disease affects any bone he has in his body including his spine, jaw, and neck. He is three years old and we have to travel 3 hours out of town to the childrens hospital and usually end up staying 1-2 nights there as they run their battery of tests in attempts to ease his pain and also gather more information on this disease as well. The nights that we travel up there and stay we both miss work. HIs medications are expensive costing us 130 each a month and we dont know how much the infusion is going to cost just yet. His first treatment is 5/4/15 and from there we will know how much this is going to cost. Any donations will greatly appreciated. Iwill post pictures and updates as aliments are treated.