Stay Strong ANYA
Donation protected
Anya has cystic fibrosis, received a double lung transplant in 2008, and is currently waiting for a second transplant. Funds will be used to defray medical costs for Anya's care. Most recently she has been in the CCU at INOVA Fairfax since August 17th and when she is stong enough will transported via air ambulance to Houston Methodist Transplant Center for an evaluation for re-transplant.
More of Anya's Story:
http://anyasstory.com/about-me/
Anya Crum was diagnosed with Cystic Fibrosis (CF) when she was three months old. Throughout her life, she has needed close medical supervision. During her childhood and adolescence, she went through a 30 minute respiratory therapy three times a day.
Anya’s CF also affected the ability of her body to break down and absorb food, thus she has taken enzymes before each meal and snack for her entire life.
Throughout most of her life, Anya was very active and healthy and led a normal existence. In 2002, however, her health deteriorated rapidly. Anya was hospitalized for the first time since she was 6 months old. Over the next few years, she found herself in and out of the hospital nearly every 6 months due to pneumonia and other lung infections.
In 2004, because of the severity of the disease and its progressive nature, she was evaluated then placed on a lung transplant list.
On June 24, 2008, the call finally came that lungs were available from an anonymous donor. After 35 days in the hospital, Anya went home to Chantilly, VA with new lungs.
In the fall of 2010, she participated in the US Transplant Olympics in Madison, Wisconsin. She won silver in the 100 meter dash. A picture of her, with her medal, hangs inside the transplant clinic at Inova Fairfax Hospital still today.
In March of 2012, Anya noticed that she wasn’t able to run as far or as much as she had been running. After several months of declining lung function, numerous bronchoscopies, IV antibiotics, and a lengthy hospitalization for pneumonia, the Fairfax transplant team officially diagnosed her with chronic rejection, also known as bronchiolitis obliterans syndrome (BOS), a common condition with lung transplant patients.
Anya's lung function has continued to deteriortate over the past two years. She's been in the ICU twice over the past two months, and hospitalized three times in the past year with lung infections. Anya's currently in her window for retransplant.
More of Anya's Story:
http://anyasstory.com/about-me/
Anya Crum was diagnosed with Cystic Fibrosis (CF) when she was three months old. Throughout her life, she has needed close medical supervision. During her childhood and adolescence, she went through a 30 minute respiratory therapy three times a day.
Anya’s CF also affected the ability of her body to break down and absorb food, thus she has taken enzymes before each meal and snack for her entire life.
Throughout most of her life, Anya was very active and healthy and led a normal existence. In 2002, however, her health deteriorated rapidly. Anya was hospitalized for the first time since she was 6 months old. Over the next few years, she found herself in and out of the hospital nearly every 6 months due to pneumonia and other lung infections.
In 2004, because of the severity of the disease and its progressive nature, she was evaluated then placed on a lung transplant list.
On June 24, 2008, the call finally came that lungs were available from an anonymous donor. After 35 days in the hospital, Anya went home to Chantilly, VA with new lungs.
In the fall of 2010, she participated in the US Transplant Olympics in Madison, Wisconsin. She won silver in the 100 meter dash. A picture of her, with her medal, hangs inside the transplant clinic at Inova Fairfax Hospital still today.
In March of 2012, Anya noticed that she wasn’t able to run as far or as much as she had been running. After several months of declining lung function, numerous bronchoscopies, IV antibiotics, and a lengthy hospitalization for pneumonia, the Fairfax transplant team officially diagnosed her with chronic rejection, also known as bronchiolitis obliterans syndrome (BOS), a common condition with lung transplant patients.
Anya's lung function has continued to deteriortate over the past two years. She's been in the ICU twice over the past two months, and hospitalized three times in the past year with lung infections. Anya's currently in her window for retransplant.
Organizer
Anya Crum
Organizer
Cleveland, OH
