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Cincinnati Children's Hospital Trip

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The Allen family has been managing a complex genetic disorder for many years in their home state of Oregon called Ehlers Danlos. Ehlers Danlos is a connective tissue disorder that affects the structure of the entire body. There is no cure, but with good medical care their quality of life can be improved.

Emma (1st grade) has extreme sleep apnea, and is making little progress in school due to fatigue and attention challenges attributed to lack of sleep. Sophie (5th grade) is suffering from the effects of a blood vessel abnormality in her brain that may be the cause of migraines she’s experienced for the last few years.  Abbigail (9th grade) has a hole in her heart that will need to be monitored and may need to have her aorta repaired. Jessie (11th grade) has heart problems as well as back issues that may require c-spine fusion.

All the children suffer from abnormal sleep patterns, GI issues, and loose joints which have resulted in several injuries that take longer than normal to heal. These are only a few of the things from which they are suffering and seeking relief from specialists who are located across country at the Cincinnati Children's Hospital in Ohio.

After being on the waiting list, the girls are excited to finally be seeing doctors who specialize in this rare genetic disorder.  Every weekday in the month of July is booked with appointments, and they have found an apartment to rent.  We just need to help them get there and afford this second residence for a month!  They can't fly, and the family's vehicle is unreliable. We are seeking to raise $10,000 to make this trip possible for them by June 20, 2015.

The Allen family is in perpetual survival mode.  Any kind of donation will be a blessing. Thank you for your generosity and prayers. God Bless. ~ Friends of the Allen Family
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Donations 

  • Anonymous
    • $5 
    • 9 yrs
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Organizer

Anita Allen
Organizer
Beaverton, OR

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