Thank you for all the recent donations! The care and concern from our family, friends, and complete strangers hasn't stopped. Rory is hanging in there with recent physical (surgical) changes to help him breathe better, and is enjoying more quality of life at home with his mom and dad and familiar surroundings. He's getting to be a big (heavy) boy too and now has mobility expenses, etc. Thank you for your prayers, kindness, and generosity.
We are a week away from our benefit in MN! Thank you to all of the friends, friends of friends, family, many community businesses and franchises, and complete strangers who heard it on the radio, saw a flyer, or saw an article in the paper about my nephew and found the generosity to pay it forward and help support his needs. Every dollar will count and it means a lot to our family just knowing people care. We are grateful for the kind words, prayers, help many hours from volunteers, and for the cash and item donations for auction so far! Thanks for sharing our page with your friends and family members to make this benefit a success!
Our fundraiser is in support of the Williams family and their 16 month old son, Rory James who is diagnosed with Miller Dieker Syndrome (MDS) which is a condition characterized by a pattern of abnormal brain development known as Lissencephaly. MDS is a rare genetic disorder and Rory and his parents are fighting for his life. Rory battles constant daily seizures, breathing difficulty, is fed through a feeding tube and is developmentally delayed. He and his parents spend a lot of time at the hospital and need your support. Beth grew up in Prescott WI and Woodbury MN and is a nurse at United Hospital. Ta Juan is a veteran staff sergeant with the United States Marine Corp, served 3 tours in Iraq, and works for DirecTV.
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