My twin boys have Leukodystrophy
Donation protected
http://ulf.org/vanishing-white-matter-disease
I have gorgeous twin boys Aaron and Ryan both diagnosed with Leukodystrophy,( vanishing white matter). Ryan was diagnosed at 3 years old Aaron at 5. Both boys were normal healthy boys until then, running around and getting into mischief, as boys do.
So it was a shock when one day Ryan collapsed And was unable to get up off the floor, he was screaming hysterically.
Ryan was admitted to hospital, he stayed overnight, tests were done and he was diagnosed with a rare brain disease called vanishing white matter. See link above.
2 years later his twin brother Aaron was diagnosed with the same. I remember been told "I had more chance of winning lotto"Than to have the two boys with the disease.
recently I have been in touch with a doctor in Queensland that can offer the boys treatment to improve their quality of life and possibly slow down the progression of the disease but this treatment has to be funded privately.
Ryan and Aaron are my only children and I love them with all my heart, and I will continue to do all that I can for them, but I need your help and support.
Thank you in anticipation.
I have gorgeous twin boys Aaron and Ryan both diagnosed with Leukodystrophy,( vanishing white matter). Ryan was diagnosed at 3 years old Aaron at 5. Both boys were normal healthy boys until then, running around and getting into mischief, as boys do.
So it was a shock when one day Ryan collapsed And was unable to get up off the floor, he was screaming hysterically.
Ryan was admitted to hospital, he stayed overnight, tests were done and he was diagnosed with a rare brain disease called vanishing white matter. See link above.
2 years later his twin brother Aaron was diagnosed with the same. I remember been told "I had more chance of winning lotto"Than to have the two boys with the disease.
recently I have been in touch with a doctor in Queensland that can offer the boys treatment to improve their quality of life and possibly slow down the progression of the disease but this treatment has to be funded privately.
Ryan and Aaron are my only children and I love them with all my heart, and I will continue to do all that I can for them, but I need your help and support.
Thank you in anticipation.
Organizer
Mandy Munteanu
Organizer
Gidgegannup WA
