Micah's FPIES & 22Q Medical Fund
Micah is an almost 2 year old little boy who was diagnosed with FPIES (Food-Protein Induced Enterocolitis Syndrome) and 22Q11.2 Deletion (DiGeorge Syndrome) with a 15Q13.3 MicroDuplication a few months ago. He is an amazing little boy with such a loving personality and loves everything and everyone. He has not has had an easy start to life. Severe food allergies, ranging from profuse vomiting (to the point of hypovolemic shock and ambulance rides), to constant GI intense pain with diarrhea, muccus, blood, reflux and rash, etc. He does not know what pain free is. At 23 months old, he only has ONE safe food. Peaches! Living in Quebec, CAN, let's just say Peaches are very hard to find when off season, when you can't eat frozen ones (unless they have no additives, which we still have not found yet) or dried ones either. Fresh is best. Organic would be even better as he needs to avoid contact with all pesticides and possible cross contamination due to his corn allergy. We are buying peaches in bulk and are running out of funds to do so, as we also have to pay for his complex medical needs. He has many many doctor visits with 9 different specialists every month. Life revolves around making sure he is the happiest little boy he can be. And for that we need to be able to provide him peaches every day.
At this point buying Peaches from anywhere and paying for shipping is becoming our only option. Mommy can't go back to work because she cares for his special needs and his 2 older brothers who also have their own needs. Daddy is doing everything in his power to work hard and bring in the money to pay for all this. We are also currently trialing Rabbit meat and at 30$, and having to feed it to him daily for more than 4-6months to avoid a reaction, things are becoming very very tight...
We are now at the point of using up our Holiday funds for the other boys, to pay for his food and medical needs. It seems so unfair right now and we still don't have peaches for him to have his one meal a day (yes, he still only eats once at day at 2yrs old!). He is underweight already and bordering another major FTT (failure to thrive) diagnosis and hospitalisation with G-Tube insertion and such. He cannot skip his meals or his special formula, which thank god, right now, the Medicare Insurance pays for, but only until Oct 2018. After that point, it is all on us, and at 52$/can that lasts 2 days, we need to start a major savings fund for him and prepare for the eventuality of things to come.
If you'd like to donate to the cause, we have created this GoFundMe to make it easier for all, in one place.
Funds will go directly to paying for his formula when the need arises, for ambulance rides, for natural specialists we may need to visit for treatments, for the organic peaches and other foods we are trialing, and for the possibility of another hospitalization or need to travel far for more testing and a second opinion.
To read more about Micah's story and updates in details, go to http://www.micahsfpieslife.com
