MFOMS Upgrade
Donation protected
The Many Faces of Moebius Syndrome www.moebiussyndrome.info / www.manyfacesofmoebiussyndrome.com is an all volunteer global organization to support people with Moebius syndrome, their families, and the global moebius syndrome community. Our mission is to create a better tomorrow for ourselves and our children through education and awareness. We created Moebius Syndrome Awareness Day in 2011 (www.moebiussyndromeawarenessday.org) and it has turned into a global annual event celebrated around the world.
The MFOMS also collects stories from people with Moebius Syndrome all around the world. We currently have approximately 190 stories in our library, http://alturl.com/ybquh.
We do community building and our Facebook page has nearly 13,000 likes, http://alturl.com/tc3uh
We promote Moebius syndrome Awareness in many ways including supporting and promoting Moebius Meet ups. We did our first Moebius Meet Up in Stafford, Virginia in 2009. Our most recent one was in Charleston, West Virginia in October 2016.
We encourage you to visit our Facebook page and websites to learn more about us.
Our President and Founder Tim Smith, http://alturl.com/g6his, http://alturl.com/v5ysn, has payed for all of the costs to equipment and websites out of his pocket since he started doing this in 2008.
Our equipment is out of date and very slow and needs to be replaced. Our first website www.manyfacesofmoebiussyndrome.com needs a major upgrade.
Please consider making a small donation to help defray the costs of updating and upgrading our website and equipment so that we can continue to provide high quality content to the global Moebius syndrome community…"
Thank You!
Team MFOMS
Please email any questions to [email redacted]o
The MFOMS also collects stories from people with Moebius Syndrome all around the world. We currently have approximately 190 stories in our library, http://alturl.com/ybquh.
We do community building and our Facebook page has nearly 13,000 likes, http://alturl.com/tc3uh
We promote Moebius syndrome Awareness in many ways including supporting and promoting Moebius Meet ups. We did our first Moebius Meet Up in Stafford, Virginia in 2009. Our most recent one was in Charleston, West Virginia in October 2016.
We encourage you to visit our Facebook page and websites to learn more about us.
Our President and Founder Tim Smith, http://alturl.com/g6his, http://alturl.com/v5ysn, has payed for all of the costs to equipment and websites out of his pocket since he started doing this in 2008.
Our equipment is out of date and very slow and needs to be replaced. Our first website www.manyfacesofmoebiussyndrome.com needs a major upgrade.
Please consider making a small donation to help defray the costs of updating and upgrading our website and equipment so that we can continue to provide high quality content to the global Moebius syndrome community…"
Thank You!
Team MFOMS
Please email any questions to [email redacted]o
Organizer
Many Faces Of Moebius Syndrome
Organizer
Remington, VA
