CT scan results.. Mason is CANCER FREE!!!
5 months ago today was the day that can always feel like it was only 5 min ago to me.. I remember so clearly driving mason to the children's hospital and I knew something wasn't right but I also knew we would find out and then go home.. Little did I know that from that night on we lived in the hospital for 2 months and had our lives turned upside down! And now 5 months later we can say he is done with chemo and getting better each and everyday ..on Monday we have to be at the hospital at 7am for him to get sedated and have his CT scan and his hearing test, then after that we get the results!!! I'm excited and nervous for this scan but I can't wait to finally start counting the number of days he is cancer free .. we are finally all settled in our new home and hope to have a relaxing weekend by the pool
I can't believe that this day is finally here.. February 10th of this year, this day seemed millions of years away.. But today is the day.. Today is the day our sweet mason gets his last dose of chemo, his last pole to push around with him and the last time his port needs to be poked.. Today will end the vomit filled nights and the days full of nonstop sleep.. Today is a new chapter for him, a new journey to begin and the start of many many more smiles and laughs! It has been almost 5 months since we got the life changing news and heard the dreadful word, cancer.. These past 5 months have tested us and our families emotionally, mentally and physically .. Mason showed us all how to be strong and push through each obstacle that was put in front of us.. Even on our worst day we always had something to be thankful for, mason was still sitting right next to us with his contagious smile and goofy personality! He has shown tremendous strength that we will all forever admire! Me and my family want to thank all of YOU so much too! Each of you have been there right next to us through all of this and have been a amazing support system.. Through all your prayers, love, gifts and donations we have been able to stay by masons side all along! You have all helped us more then you'll ever know and we love each one of you .. we hope you continue to follow masons next chapter and part of his journey as he recovers from chemo and just grows into a little boy! We are so happy that we got to share our mason with everyone and have so many people fall in love with him just like we have! He has had the most amazing nurses and doctors who at times stepped in for me when I needed to breathe or just cry and have a mommy minute to myself! They saved his life and words could never express how thankful we are for that.. A HUGE thank you to all our family members who have been there to support us and take care of Benjamin so we could stay at the hospital with mason.. Thank you to everyone that has planned events for mason and donated on his gofundme site.. Our sweet Benjamin has been incredible too and couldn't of asked our 4 year old to handle this any better then he has.. And last but not least, my husband! He has been our families rock and support system.. He has continued to work his butt off to make sure bills are getting paid and give us anything we need.. He sacrificed time at the hospital or home with Benjamin so he could work .. The first few months of all this, I could never keep it together and I was a mess.. Without jason I couldn't of made it through many days! He was a shoulder to cry on or someone that forced me to get out of the hospital room and go for a walk or get food lol there are probably so many more people I would love to thank and I will do so over the next several updates .. mason has been just playing with play doh and is just about done with his chemo.. We will be leaving here very soon and on our way home! I will update you all again later
Wow this week has been to say the least, exhausting!!!! Chemo on Monday went great, he also had to get some magnesium since it was really low again but Benjamin came with me and they both did great! And because he was so sick all last week from his last big chemo, he lost 2 lbs and is just so tiny .. he has been resting a lot which is great for him! Tuesday was our big moving day and it was a long day and we can't believe how much stuff we've accumulated over the past 4 years.. Tuesday night we still spent the night at the old house cause problems with the water and AC at the new house.. So me, jason and the boys all had a slumber party and we all slept together in the living room! But last night we slept in the new house and it felt good .. me and mason are cuddling on the couch right now while I catch up with my favorite show big brother! Today will be a calm day with just a lot of unpacking .. Well I'm gonna get back to cuddling with little man while we wait for Benjamin and daddy to wake up .. Thank you everyone so much and we love you all!
Tomorrow mason gets more chemo! He gets it tomorrow and then the following Monday and he will officially be all done with his 6 cycles of chemo .. July 7th will mark the end of chemo!!! I'm so so sorry I haven't updated all week, things have been crazy! Cleaning and packing like a crazy person since we are moving on Tuesday! And mason has been very very sick and sleepy this week.. He's been handling his big chemos really good, and of course this was his last one and he gets so sick! His appetite has been terrible and I can tell he's lost some weight .. I'm just so happy though that from here on out he just gets to relax and heal! Big brother is gonna join on tomorrow for chemo and I know mason will love that.. I also want to take a min to thank everyone so much for all the support and love since this all began in February! I don't know what we would of done without all of you behind us.. I'm also gonna post some pictures from this weekend! We went to my in laws to celebrate my husbands grandma and uncles bday and the boys had a blast!
It's so weird that last night was the last time sleeping here.. Mason did so good and has gotten sick a few times but overall he is good! He has been the strongest little boy ever the past 4 months and I'm so happy for him that this part is behind him.. We have 2 more Mondays of quick chemos and then he's done! We are just waiting now to do his quick chemo today, see his doctor and then we get to go home .. last night we had one of our favorite nurses EVER and I couldn't of been happier.. She has been so amazing with him and he has really grown to love her!! Another one of his favorites is here today and I'm so happy we got to see her again too! Most of the morning we've been out and about walking around cause mason didn't want to be stuck in the room, and now he is sound asleep on the couch lol
The one picture is of him and his nurse from last night, Britney ..and then one of him walking around the hospital this morning in a tshirt, diaper and his slippers lol
I hope everyone has a great week and we will update later once we are home
Well traffic does is not fun at 8am going into Atlanta! But we surprisingly made it to his chemo admission on time.. This is officially his last admission! I found out today that even when he gets his port removed, it's a outpatient procedure.. So this is it! 3 more weeks and mason is done! July 7 will be his last day of chemo and then July 14th we get his final CT scan and hearing test .. I remember back in February, this day seemed like years away and now this day is here! Finally he will be free of tubes, machines, pokes, medicine and everything that comes along with it.. He can finally live life like a normal little boy!!!! I hope this last big chemo goes smoothly and he doesn't get too sick ..we are still at the clinic now and just waiting to get his chemo started, he is sounds asleep in my arms
I also would like to give a shoutout to a amazing little girl that I've mentioned before, Pray for Katie Adams.. That sweet girl is over at the other children's hospital for her last 3 cycles and they aren't gonna be easy.. They are gonna hit her pretty hard.. I pray she handles it like the superhero she is and these next 3 weeks being admitted goes smoothly for her and her mom Samantha.. It's very tough living in a hospital and it can take a toll on you.. We are all praying for you katie and your family!! Can't wait till we all get to play at the beach in a few months
Thank you everyone for all the love and support ..I'll update again later!
This has been a long week! Monday we get admitted again for his last chemo admission and I can't wait to talk to one of his doctors about the anxiety meds he is on cause I think that maybe he needs to come off of them or change to something else.. Mason will literally whine/cry/scream ALL day long for days and days and I think I'm gonna be bald like him soon from pulling my hair out lol having a hard time too with his hearing aids cause he is def not a fan of them, I know that it'll take time and he still has so much going on that the timing may be terrible.. Im hoping next month once he finishes everything he will get back to his old self and also wear his hearing aids.. We also will be moving 4th of July weekend! This has been our home now for 4 years, we moved in about month before Benjamin was born and we have SO many memories here.. Our landlords are amazingggg too and have become family to us and will be missed so much! We have outgrown this house and it's been a stressful process to find a new rental but we finally did and we sign the lease this weekend! We will only be 15 min from where we are now but closer to stores which will he nice it's time for us to start our next chapter with mason finishing chemo and us moving! The first half of this year has been the worst of all of our lives and it's time we make the rest of the year the best of our lives! Thank you everyone so much for all the love and prayers and being a place that I can vent to sometimes.. All the events people have put together and all the donations, our family could never ever thank each of you enough times .. we hope you all have a great weekend!
Mason did amazing getting his hearing aids.. The audiologist told us it'll take time for him to get use to them and he wore them for about 3 hours then took them out lol me and jason could tell it made a difference when he wore them so I can't wait for him to he use to them.. After that we went to the cafeteria and got lunch then headed to the clinic for chemo and some magnesium.. We are on our way home now and will put his hearing aids back in till he goes to bed.. The goal is for him to wear them all day except for bed and bath time! He can rock hearing aids and we told him that he now has superhero hearing
So mason has been very very whiny the past few days.. I'm not sure what it is, he just cries and whines all day long and is attached to my hip.. I feel so bad when I get so frustrated cause I know he is still going through so much and still fighting.. I just hate not knowing exactly what's wrong, why he is crying and why he gets so mad all the time.. I can't wait to say my baby is cancer free and he can finally just take a deep breath and feel free and be a normal toddler! I wish we could take all this away from him .. We all may seem so strong, but we still have our moments.. We still have our sadness, anger, confusion and frustration.. But at least, most importantly we still have SO much love for mason and that wins over anything else.. Thank you everyone so so much for being a great support system and I love having all of you to vent on
June 9: Hi everyone! We hope you all had a good weekend!! Mason went for a "quick" chemo today lol it's never actually quick tho and we are always there for at least 3 hours.. He also had to get some magnesium today since his was really low at 0.4.. His appt was at 12:30 and we did get home till 7!! Long day.. He hasn't been feeling so good today, he got sick twice at the clinic.. In the waiting room (which was full of people, poor guy
Me and mason are here at the clinic! Just waiting for them to access his port and start some fluids before they start his chemo.. We also need to get him to take some nausea meds since he gets very sick from the chemo he is getting today, he usually doesn't even make it thru the 6 hours without getting sick.. So hopefully we can try to prevent that today
Me and jason had a blast last night during our night away! Had a couple extra drinks that we didn't need and I can't wait for bed tonight lol I always love coming home to the boys after being away, they get SO excited to see us! Even if I just run to the store I get that reaction coming home
I'm sorry it's been so long since I've updated his page! Not much new to report, we've just been hanging out at home and Jason's sister Kristin (auntie Kristin) has been staying with us the past few days and the boys have loved it! Mason has been doing really good, he's eating good and sleeping better at night.. He is still having his little fits and just gets so mad and frustrated with anything but can you blame him? Thankfully he hasn't been throwing up or anything but he gets his big chemo Monday and Tuesday so that'll be changing soon.. Jason has been working like crazy lately and finally has a few days off to spend with us! His birthday was on Wednesday and we are gonna go out tonight to celebrate.. Me and him are going out kid free and spending the night in Atlanta
At the clinic getting a quick chemo, mason is doing so good today!! Also got some great news.. His Medicaid got approved and will be receiving his hearing aids in the next 3 weeks
This weekend has been a blast and we are all totally worn out!! The kids want to stay but we all miss daddy too much
Well we are still at the clinic! He was suppose to only get a quick 5 min chemo today but his labs showed his magnesium was low, I guess the lowest it has ever been for him which is weird.. So we finished his chemo and he is now getting some magnesium, he has about another 30 min left of it then we can head home! And yup, right in the middle of rush hour in Atlanta
Well me and mason are at the ER.. Ever since he took that higher dose of that med on Wednesday night he hasn't eaten or drank anything.. He's been really tired and not himself and I can tell he has lost a little weight.. He has thrown up several times and we expected that from the chemo earlier this week, but with a empty stomach it worries me.. He just doesn't look like he feels good.. I called his nurse and she said to come to the ER and he will prob just need some fluids but they will also do some blood works to check all his levels.. I'll update again later once we know more! Thank u all for your prayers
Just a quiet day at home! Mason is very very sleepy today.. One of his doctors increase one of his meds and he said this could happen and if it did just totally knock him out to split it in half again and give it twice a day instead of all at once.. Have a good night everyone
Finally was able to take a good bath since he wasn't able to get his tubes wet for over a month :)
Sorry for the lack of updates on here! Mason is doing so good! We just for home from getting chemo the past couple days at the hospital.. He got pretty sick the first night but seems to be doing so much better now! Also, his drainage tube has been removed and he is free to finally take a good bath and also can go swimming! We are still just waiting to hear back from insurance so we can get his hearing aids, which should be soon! He is such a touch little guy and we want to thank all of you so so much for all the love and support!!! I promise I'll be better about updating more often :)
Well I would like to start by clarifying that our mason is ok.. There is another little mason by my hometown that passed away last week and many people are getting our masons mixed up.. Our mason is still amazing and our prayers are with that other family.. Mason has been awesome at home and doing so well!! He is getting stronger and stronger everyday and couldn't be any happier being home! He gets more quick chemo tomorrow !! Thank you everyone so so much for all the support and help for mason and our family during this time.. It means SO much to us :)
Today has been a very hard day for all of us.. Mason started his hearing test around 8:20 this morning and they said it should take about a hour.. Well 2 hours later the doctors finally came to see me and said they were done.. The reason it took so long is because while he was sedated they molded his ears.. The results showed that mason will need hearing aids for both of his ears ðŸ˜¢ he has moderate hearing lose in mid and high pitch sounds .. The examples they gave me to explain how it effects him now is that if we were sitting outside and could hear birds chirping somewhere, mason can't hear that.. There are also certain letters he can't hear anymore, like F.. So they said if we were to say "frog" to him, he hears "rog" .. He also can't hear letters like S, TH, C, and K.. There are more but they didn't give me the whole list.. We now have to wait for masons Medicaid to kick in since our insurance doesn't cover hearing aids and they are very expensive! We will hopefully get him fitted for them in the next couple months, they don't want to wait too long so it doesn't hurt his speech development.. This was hard news to hear and news we were not expecting at all.. It's hard to imagine my baby with hearing aids.. The doctors said we will still finish off 4 more cycles of chemo but will lower the dose of the main drug that effects his hearing.. On a happy note, WE ARE HOME! We got discharged today since he is doing so good with the chemo he got this week!!! We went and picked up Benjamin and headed home ðŸ˜Š we don't go back till next Monday for just a quick chemo.. More good news is that in about 2-3 weeks he will get his drainage tube out of his belly, which means... NO SURGERY ðŸ˜„ the bile leakage has slowed down so much and they are confident in taking it out.. The hearing aids will be a minor setback for him but he is so amazing and strong and can handle anything that comes his way! Thank you everyone so much for all the love and continued support through all of this ðŸ’šðŸ’š
We got admitted back into the hospital yesterday and mason is doing amazing! He got chemo and then a good nights rest! Today he will get more chemo but it's a quick one, then tomorrow morning is the hearing test
Well we have all been home now for over a week and it's been so amazing! Mason is slowly getting better and better on his feet again and the bile leakage has slowed down drastically so we are hoping that's a good sign :) can't wait for Easter tomorrow and to hang out with family, cause Monday we get admitted back into the hospital for 2 days of chemo.. Wednesday is his hearing test to find out just how much hearing he has lost and where he is losing it.. Today was a event called shimmies for mason and I want to thank everyone so so much that attended and who keep praying for mason and following his journey! You all mean the world to us!
APRIL 10: we are home!!! We go back next week just for a checkup with the surgeon and then we don't go back till the 21st for chemo!
APRIL 9: Well I guess good and crappy news today.. Good news is we get to go home tomorrow and daddy and Benjamin are sleeping here with us tonight ðŸ˜Š some bad news is the surgeon thinks mason will need surgery to fix the bile leakage.. He won't do it for 6 weeks tho since he just had a major surgery and will have a lot of inflammation .. Hopefully over the next week it'll heal and we won't have to do surgery tho another crappy thing is that we did a repeat hearing test today and this time there was no water in either ear and the mid and high pitch has slow response.. Which means he is having a little bit of hearing loss, we don't know the extent of how bad yet tho.. We won't be coming back till April 21 to start chemo again and at some point over those 2 days he will need to be sedated to do a more extensive hearing test.. Other then all that mason is starting to eat a lot and he is so ready to be home! I CANT wait to see his face when we finally pull up at home tomorrow well we are all about to get some sleep and I'll update again tomorrow! OH YA and the biopsy from his diaphragm was all clear! We hope everyone has a good night and thanks for all the prayers and support!
Mason had a really good night and has pretty much been awake since last night around 9.. They are really surprised on how awake and alert he is today and they just finished taking out his breathing tube ðŸ˜Š he is talking a little bit and just watching cars right now.. He had such a huge surgery yesterday and it shows the strength he has and the fight he has in him! Today will be a day for rest for him and to just relax.. Me and jason are gonna have a little date later with Benjamin and go to lego land!!!!! All of masons numbers are really good and he is breathing perfectly on his own.. He has even tried to sit up lol I will update again later with anything new we find out throughout the day, but if everything goes good today and throughout the night he could possibly be moved back downstairs as early as tomorrow thanks to everyone for the continued love and support for our family and esp for our little man!
APRIL 4: He is all done!!!! The surgery went better then expected!! Dr brand is a amazing surgeon and got all of the visible tumor and cancer out ðŸ˜Š he took out about 65-70% of the liver and the remaining is very healthy.. Mason received 2 blood transfusions during surgery and also had some bile leakage they had to fix.. He looks SO good right now! He is sleeping with a breathing tube and they may take the tube out tomorrow.. He also has a tube in the side of his stomach to drain fluids.. They will watch that drainage bag for bile leakage over the next few days and if he has more then he would have to go back into surgery to fix it.. His new incision goes from the bottom of his left lung around to his right side of his belly.. There may be remaining cancer cells that just aren't visible to the human eye and that's why we will finish his last 4 cycles of chemo.. They are still getting him all settled in and doing a X-ray and blood work and I will update again tonight before bed! Me and my family can't thank everyone enough for the love and support for our little man.. There are still things over the next week we have to watch out for but for now he is doing great!!! All of your prayers and positive thinking have worked and mason FINALLY caught a break ðŸ˜Š TEAM MASON!!!
MARCH 27: Well we saw one of his doctors and have some good news, the infection is gone so he can start eating and drinking again!! We aren't sure about the tumor yet, we have seen one doctor and she brought us a picture of it from a month ago and now and it's def shrunk a little but not sure if it'll be enough.. It looks like it's still partially in his left lobe and they want it to be only in his right.. But that's the surgeons call and we prob won't find that out till tomorrow.. Still waiting to see his oncologist and they may give us a little more info on how the tumor looks.. For now that's all we know and as soon as we know more, we will update all of you amazing followers of mason thank you everyone for the prayers and please keep them coming cause I think we will need them!
MARCH 26: Pretty quiet rest of the day except his hearing test.. They have to check it every now and then since a rare side effect of chemo is losing some of your hearing.. Well he had a little bit of water in his ears so we are hoping that means the results weren't too accurate, his ears had a low response time to high pitch noise which means the chemo could be effecting his hearing but we are staying positive and hopefully those results were just from the water in his ears.. They will test him again in a month or so and we will know more then.. They are hoping to do the CT scan sometime before noon tomorrow but there is a chance we won't know the final answer on surgery till Friday so the surgeon has plenty of time to really go over the results.. The child life specialist brought in some play doctor stuff and it was so funny watching Benjamin pretending to be a doctor and even mason played a little too.. I'm at home now with Benjamin while jason stays with mason tonight, it'll be nice to get one more night in my own bed before back to the hospital first thing in the morning! Hope everyone has a good night and I'll update again tomorrow
MARCH 25: Mason I guess had a ok night with daddy, had a couple messy diapers but did good.. He is in a very bad mood today which I think is from the infection, his numbers never being stable, he's exhausted and just not happy about still being in the hospital.. He is also stuck in his room cause of the infection and I know that's hard for him.. When his urine test came back yesterday it showed he is losing a lot of things like magnesium and phosphorus through it so we just have to keep pushing more and more through the IV to keep up with what he is losing.. The rest of today and tomorrow are just about watching his numbers and he may possibly need another blood transfusion tomorrow.. If his hemoglobin level drops below 9 he has to get one and as of this morning it was 9.1 so we will recheck it tomorrow morning.. 2 MORE DAYS! 2 more days and we get to do another CT scan, I can't explain how excited and anxious and nervous I am for those results.. Our poor baby just hasn't caught a break in weeks and we prayyyyy that Thursday will finally be the break we want so badly! We need good news so bad to lift our spirits and make all this a little more bearable.. I know that even if we can take the tumor out next week he will still need 4 cycles of chemo but we could make it through those 4 cycles so much easier knowing that the tumor is gone! If I don't update again tonight, I def will by tomorrow afternoon hope everyone has a good night!
MARCH 23: Well mason just hasn't been himself the past couple days and his numbers have been far from being stable.. His breathing and heart rate have been very high so the doctors decided to do a chest and abdominal X-ray today.. The chest one came back clear but the abdominal one showed he has typhlitis which is a infection in the bowel walls.. He has already started his antibiotic and we have to stop his feeding tube for a couple days till he starts to feel better.. I'm so bummed for him but so happy we found something we can fix and it's not at a point where he needs surgery to fix it.. Just gave him some pain meds to try to help him rest and get some sleep.. All the family visited today and I think he enjoyed that! Daddy had to fly to Jacksonville last night to fix a plane and is still stuck there, but we will hopefully see him tomorrow.. Hope everyone has a good rest of the day and a good night
After his haircut!
After our sweet boy got his haircut
Hi everyone! Sorry I haven't updated in a couple days, I've been so tired and sleepy.. I got to see my brother both days this weekend which was so much fun.. Also my auntie Kristin moved back here from Florida and I was so excited to see her, I gave her a big hug and a kiss ðŸ˜Š on the downside, we are still in the hospital and my numbers (magnesium, potassium, electrolytes, etc) keep going down and up.. My tummy is still getting sick from the chemo and the diarrhea has come back swinging they will be starting me on TPN again tonight (fluid nutrition through my port) and lowering my feeding tube amount to give my tummy a little break.. If we are able to go home this week I'll have to keep the TPN and my feeding tube and I'll prob have more medicine to take.. My next round of chemo is set for Friday and next Thursday is my CT scan, fingers crossed for good news with that scan yesterday was the amazing psychic benefit for me in Salem, the turn out was incredible and they raised a lot of money for me.. Thank you so much to my papa, Memie and the owner of the shop Chris!!! And of course to everyone that went and supported me and my battle HAPPY ST PATRICKS DAY TO EVERYONE
Well my numbers dropped a little today and the doctor said we def won't be able to go home tomorrow, but maybe Sunday.. My GI doctor doesn't think we should go home and that it's too risky with my nausea, so we will find out more tomorrow..... I already got my chemo today and i did great! I've thrown up a few times today and my tummy hurts but the nurses are giving me good meds to help make it feel better.. Mommy went home today to get some more things and to clean up and she brought me some pictures from home to put up ðŸ˜Š also a banner a Sunday school from a church in FL made me.. My papa that lives in MA also drew me a picture with 2 of my favorite people, wall-e and buzz lightyear and I love it!!! My next CT scan is also scheduled for March 27th and we will find out then if my sick bump (as my mom calls it) shrunk enough with the chemo to take it out or if we need to do more chemo and check it again in another 6 weeks.. Thanks for all the prayers
march 14: Well this will be another update from mommy since mason is sleeping and not feeling so good.. Day 1 of his 2 day chemo finished around 11:30pm last night but he didn't even finish that before the vomiting started again.. And then during the night so did the diarrhea.. We never imagined the side effects would hit so fast this time, took them a couple days the first time.. We are still waiting to see the doctors this morning to see what they say and pray it doesn't effect us going home for a few days! Not sure when he will get the rest of the chemo today but thankfully that's a quick 20 min one .. We will update again later after seeing the doctors and know a little more
March 11: Ok I know I'm overdue for a update lol we just had a amazing day yesterday all together and I forgot.. And we got some great news yesterday too!!! The cancer he has can basically be diagnosed through blood work from the alpha feto proteins levels.. When we got here to the ER 4 weeks ago his number was 743,000 and they just checked again yesterday and it's 11,934!!!!!!!!! Which means the chemo is w...orking and killing this tumor ðŸ˜ŠðŸ˜ŠðŸ˜Š because that number was so good the doctors are giving him a couple days to rest and keep his other numbers up and then he will start his 2nd cycle of chemo on Thursday.. And they said they don't see why we couldn't go home this weekend.. Yesterday was the best day ever today will be another fun day hanging out as a family at the hospital with hopefully lots and lots of more laughs and smiles!!
P.s. Mason has his own Facebook page for people to follow his journey! It is almost all done and will let all of you know as soon as it is See More
March 10: .Well since jason is off work for a few days I went home last night.. And took Benjamin with me!! We needed some mommy son time.. So we hung out and watch tv and played with toys and stuffed our faces with cookie cake thanks to Nicholas Scott Moulder ðŸ˜Š now we are up and at the park playing for a little while before I have to take him back to Jason's parents house .. After that I'm headed back to th...e hospital to see mason snide we are prob gonna start his second cycle of chemo tonight.. I went home also hoping for a good nights sleep, nope! All I could think about was mason, that was my first night away from him since the start of all of this.. And I would just stare at Benjamin cause I miss him so much my heart is def being pulled in 2 different directions daily! Mason I guess had a ok night with daddy, he threw up a few times but it ok other then that! I'll update later tonight once I'm back with mason and know more.. Thank u everyone so much and esp nick for that delicious and HUGE cookie cake he had a location here make for us.. We loved it and so did all the nurses in masons cancer unit
March 8: .Today was a good day.. When Benjamin got here, me and him took off to target for a mommy and Ben date to get a few things.. I got myself a new book! A Nicholas sparks book I never heard of, very exciting lol when we got back mason had a really good visit with Benjamin and was very upset when he left.. Thankfully he is coming back tomorrow! And tonight is Jason's last night of work for the week so ...will be back with me and mason for a few days ðŸ˜Š only thing today is the doctors talks to the psych team to try to figure out some new meds for mason cause he hasn't been sleeping for days and seems to be having some anxiety and what we call "baby depression" .. He is just so over this place and is starting to have a hard time, most of the time doesn't even want anything to do with me and will scream and then kick me.. So I'm really hoping these meds will help him to get some rest and relax.. Thank u all again so much for everything
March 7 : Well today was a pretty good day.. He got a blood transfusion just to help his numbers a little.. Jason came to visit for a few hours before he had to go to work tonight and mason loved that!! Jason even got a couple little smiles from him!...! And today was a big day for another reason.. He got the big haircut today! He did good and then got a nice bath after, he def touches his head a lot now lol but he looks so handsome and like a little soldier and I know not having hair allllllll over the place will help himðŸ˜Š Benjamin will be here tomorrow and I know mason can't wait cause he was asking for him today! It'll be a good weekend thank u everyone again for all the love for our little guy!!
well thankfully today has been another pretty quiet day.. all his numbers are finally so much better and almost normal.. the only problem we had today was his NJ tube (feeding tube) was so clogged and we tried everything we could to unclog it and nothing worked so we had to take his out and replace it :( that was not fun for him at all.. our next step is to keep slowing increase his feeding machine back up to 50 while decreasing his TPN port nutrition he is getting.. once his TPN is totally finished they will wanna watch him for a day or two to make sure his numbers continue to stay normal without all that going.. not sure yet if we will have a couple days home before his 2 day chemo on monday but im not planning on it.. i would rather just stay here where he is comfortable and content and where they can keep a good eye on his numbers! its def weird being here alone during the day and night, jason is back at work and prob wont get back to the hospital till sunday.. and im missing benjamin like crazy :( but my mom is here tonight to keep us company and is gonna spend the night! thank you everyone so much for all the continued support and love, its all working!
well i guess today could be considered one of his easiest days so far.. he is still a little uncomfortable and started having a little bit of nausea but nothing too severe.. he threw one once today but thats the first time in a few days :) he got some more chemo today and of course did amazing and today marks the end of cycle 1.. next monday starts cycle number 2 then we can do another CT scan when that cycle is over and hopefully remove the tumor!! he got a nice bath tonight and smells yummy now :) his hair is really starting to shed so i needed to clean him up really good.. i also got to go home for just a bit today! we needed some more clothes and things from home and i did a little bit of cleaning and just got a few min to myself to breath.. but of course mason wasnt alone while i was gone, he got some good time with daddy :) hopefully tonight will be another quiet and restful night and tomorrow is another day of rest for him.. his numbers still arent where they should be so they just keeping tweeking his fluids a little till we can get the right combination for him.. thanks again to all of you for your continued prayers and support!!! xoxox
POSTED THIS MORNING ON FB: Yesterday was a pretty good day.. Benjamin came to visit and we got mason out of the room for almost 3 hours and he did so good! Just looking around and hanging out with us.. Only downside to yesterday was that all his numbers still aren't getting better like his potassium, magnesium and such.. After talking to the GI doctor he decided that mason needs a TPN for a while.. Which means he will be ge...tting nutrition through his port along with still having his feeding tube .. Normally they don't like to use the port for things other then drawing blood, chemo and fluids but they've tried everything and his numbers are improving, some continue to go down.. We are cuddled in bed again now and watching franklin ðŸ¢ he has more chemo today but it's a quick and easy one, the 2 day one he gets again next week is the one we are worrying about cause we gotta get his numbers right and make sure he will be ready for that round again.. He had that big 2 day chemo 2 weeks ago today and still feeling the effects.. The doctors feel his tummy everyday and do think the tumor is starting to shrink so that's amazing! Hopefully after this next chemo cycle we can take it out keep all the prayers coming cause I kno it sounds like he can't catch a break, but he has to go thru all this to then beat this thing!
POSTED ON FB SUNDAY: Yesterday was a very long day, poor guys was extremely uncomfortable and def in pain.. They ended up increasing his dose of morphine and he now gets it more often.. Waiting to talk to the GI doctor today cause his diarrhea is getting bad again so we gotta figure out if we should change up his meds or add something to his fluids.. The blood culture came back from the blood infusion and it was negat...ive which means he didn't reject it he just ended up having a allergic reaction which can be common.. For now on he if he needs another fusion he needs to pre med with Tylenol and Benadryl.. Last night was pretty quiet and he still seems uncomfortable today, not as bad tho cause some of his swelling has gone down since we decreased his fluids.. One of the things I've been dreading the most also happened today, I noticed on his pillow that his hair is shedding so yup I immediately started crying I know it'll grow back but it makes it that much more real and I know he is sick but I don't want him to look sick.. Benjamin, my mom, Jason's parents and grandma are all coming to visit soon so I hope getting mason out of the room for a bit and around family will be some good medicine thank u all so much for your prayers and support!!! Tomorrow he gets more chemo but it's a easy one, next week he gets the big one again and they said we can push it back a few days if they don't feel like he is ready for it.
Thank u everyone so so much for all the donations! Our little guy was discharged from the hospital this past Saturday with a NJ tube (feeding tube from his nose to the intestines) and is doing really good.. He is having some troubles with vomiting and nausea from the chemo last week but it is slowly getting a little better and hopefully he will get some relief.. Yesterday he has some more chemo and did amazing! He has lost quite a bit of weight these past 2 weeks and our goal in the next 2 weeks till his next big chemo is to try to get him to gain back a couple lbs.. Thankfully we had a very chunky kid so the weight loss isn't as bad as it could be :) all of your positive thoughts and prayers mean the world to me and my family and hope they continue cause they are working!!! Sorry I haven't updated this page lately but I will try to get better at it :)
Let me start by saying thank you everyone so much for donating and helping our family in this time of need.. Mason is doing so good! The road to recovery has began, he started chemo last night at 9:02 pm ðŸ˜Š he did really good through the night and is resting right now watching curious George! We are finally out of the PICU (pediatric intensive care unit) and back downstairs in a room which means he gets to see big brother today!!!!!!! He will get more chemo tonight at the same time and we will see how his body reacts, if good then we get to go home till we come back one day next week for more chemo.. Thank u everyone again so much!
First off, thank you so much for visiting this site for our little man.. Beginning of january 2014 our son Mason was having a hard time breathing and complained of a lot of chest pain. We took him to the ER and he had a xray and we were told that he had pneumonia. After his followup with the doctor after that I still wasnt satisfied and knew something was still wrong so we then took him to a childrens ER and had a repeat xray. We were told then that his pneumonia had cleared up but he now had a viral infection. Fast forward almost a month later and our little man still wasnt himself and was very inactive and wouldnt eat much or drink and could tell something was still hurting him. Monday February 10, 2014 changed our lives forever. We took him this time to a actual childrens hospital, Scottish Rite Childrens Hospital in Atlanta, GA. Immediately in the ER they performed blood work, xrays, ultrasound and gave him an IV drip with some fluids. We then found out within a few hours from arriving that Mason had a very large tumor mass in his liver, and that he has whats called Hepatoblastoma.. liver cancer. Our world was turned upside down. We now are waiting for the results of the biopsy and to then be able to see what kind of chemo treatment our little guy needs. His biopsy didnt go as planned, he started bleeding and they were not able to stop it. The only way to stop it is pressure so they put pressure gauze on the mass and closed him back up. He was then brought to the PICU and left sedated with a breathing tube. Our next step is getting him back in surgery to make sure the bleeding has stopped and then give him time to heal before chemo starts. This cancer is very curable since even if the chemo is not able to shrink it enough for removal, he will then need a transplant. We do not have the best health insurance for something this serious and my husband has missed many days of work so far and im sure will be missing many more. Ive been a stay at home mom since day one and Mason has an older brother named Benjamin who is 3 1/2. This is going to be a very long journey and road ahead but with everyones support and prayers, Mason can make it through ANYTHING put in front of him!!!