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ManCity Ballboy Elliott Fernandez

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In February 2016 my 18 year old only son was diagnosed with an extremely rare form of soft tissue cancer Rhabdomyosarcoma retroperitoneal and after his first dose of chemotherapy he suffered massive tumorlycis which left him on life support and dialysis for 9 weeks he also suffered a massive bleed on his brain and had emergency surgery and a craniotomy to relieve the pressure from his brain. Despite the doctors telling us that he would not make it through the night he defied the odds. They then told us he would never walk again but again after 9 weeks in ICU numerous NG tubes feeding pegs, bone marrow extractions etc etc he made it on to the young oncology Ward where he spent a further 7 weeks with a tracheostomy which was eventually removed and he learned to breathe talk and eat again. Physiotherapy got him back on his feet and he then spent a further 6 weeks in intensive rehab physio and was eventually allowed home where physio continued and with the love and support of his friends and family back into the gym. He went from strength to strength even managing to pass his first year computer science university course while going through gruelling chemo. After 4 cycles there was no evidence of the disease and we were elated .
On his next scan the beast had returned and he was placed on a clinical VIT trial which again worked for 4 of 6 cycles and then it reared its ugly head again !! Affecting his liver and spine.
He has been in hospital over Xmas and New Year with hydrocephalus and 2 weeks ago we were told there was nothing further they could do for this hero as they say he can't have any further chemo.
We brought him home to be with his beloved family and friends and his cat ! He was given 2 days at the most
Elliott is still here and fighting he defies all odds ! His strength and determination is immeasurable and I am so proud of him my heart bursts. We have continued to treat him with alternative therapy organic food, juicing, turmeric , cannabis oil and the doctor are astounded !
A clinic in Germany is willing to treat him but we first need a private scan and of course we need to get him there.
His own oncologist is not willing to scan him again until he is mobile again and we just do not have the time ... he's my only baby and IVF at that , so was a miracle from day one !
He so deserves the chance to realise all the dreams he has, the kindest most thoughtful boy you could ever have the pleasure of knowing. I'm a single mum so every little bit of help or knowledge out there would be precious. He's my hero and always will be ... take a look below at how far he came and we are now back to square one ! But he's a fighter which he is proving on a daily basis.. absolutely amazing super strength!!
https://www.youtube.com/watch?v=C9rYScqtZMo





Organizer

Beverley Clarke Fernandez
Organizer

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