Updated posted by Kylee Ann 18 days ago
Good news and bad news! Good...
Good news and bad news! Good news! I have insurance now. Bad news- they don't cover anything Lyme disease related. So I am still in the same boat. I recently had a doctor appointment with my LLMD and my heart is inflamed 4.7 times it should be. My overall inflammation is triple what it should be. I am trying to stay positive!
Updated posted by Kylee Ann 6 months ago
Happy Holidays everyone! I hope everyone...
Created by Kylee Ann on May 3, 2012
My name is Kylee and I am 22 years old. I have been sick with Chronic Lyme Disease for 8 years. For the first 4 years I was misdiagnosed. By the time I was sent to the correct doctor it was too late for the "quick fix" people think Lyme Disease is. The next four years were spent going on various oral antibiotic treatments and a variety of different all natural treatments. Unfortunately I am still not better, and far from it. The past 8 years** I have been in constant pain non-stop. I wish I was exaggerating. This past year I tried to seek out the help of a pain management place where I live. However after only seeing me for 1 month they stated they will no longer treat me because "you have Lyme Disease and still take Vicodin". Yes I do take Vicodin to help my pain. I know many people frown upon young people and narcotic use but I can assure you I have never once abused my pain medications (or any other drug) and have the drug tests to prove it. Towards the end I will continue talking about my personal Lyme issues.
I wanted to take a moment to describe what the money will go for and why I have such a high goal amount. To begin I do not have insurance anymore and cannot get new insurance due to Lyme being a pre-existing condition. During my first 4 years of treatment I spent around $10,000 of my own money and another $10,000 between my parents. I strongly believe the only way I have a chance of getting better is getting on IV Antibiotic Therapy. This is where the bills start adding up. IV Antibiotic Therapy will cost between $3,000- $5,000 a month without insurance. I will need to be on IV therapy for at least a year so that adds up to be $36,000- $60,000. This is just the IV treatment. The $36,000-$60,000 does not count the doctor office fee, transportation, other medications, supplements, etc.
I am praying that my treatment will be on the low end of the spectrum. If I raise enough money to cover my treatment and have extra money from donations please be assured that I will donate it to other people with Lyme Disease.
Lyme has caused many other health problems for me. This is because the bacteria is corkscrew shaped and just loves to hide in various organs. One for me happens to be my heart. Other symptoms of mine include pin prick pain in my eyes, stiff joints/muscles, choking while drinking liquid, muscle spasms, twitching, pain in my joints/muscles/bones, mood swings, and memory loss. Those are the major ones anyway.
To anyone who donates, there is no way I can express my gratitude enough. I thank you from the bottom of my heart and I am forever in your debt. Your kindness is something I will keep with me the rest of my life and reflect on it often. You all are giving me the chance to live a normal pain free life, something I have not felt in 8 years. Please know I will do everything in my power to pay it forward one day. Thank you again so much.
**Ps- The reason I say 8 years is because that is how long I remember feeling truly ill. My doctors believe however I was infected around the toddler years. I also want people to know that it is possible for a mother to pass Lyme on to her unborn child. If you want to learn more about that here is a link: http://www.canlyme.com/congenital.html
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