Helmet for a round head
Donation protected
My daughter has to wear a helmet to correct her head shape. It’s not provided on the NHS and I have had to pay privately.
She has Brachycephaly something she has developed from sleeping on her back from a tiny baby. It’s also known as flat head syndrome.
From about 4 months of age I noticed a flat spot on her head so I went to see my health visitor who said it would correct by itself and just to reposition her when I put her down. So I did, I kept her off her head as much as possible and researched all about flat head syndrome and what could be done. I didn’t want to put a helmet on her because I couldn’t bare the thought of covering her beautiful head and I just could not afford it.
Over the the next few months it did improve but by 16 months I wasn’t happy so went back to see the health visitor who said that it wouldn’t improve further on its own.
My next decision was to book a consultation with an orthotist in Cambridge. I was told it would cost £2050 and she was in the moderate to severe category.
Knowing I couldn’t afford it didn’t stop me from saying no. It is classed as cosmetic but I was worried she would be conscious of it when she was older and as the window of treatment stops about her age I know that the money could be sorted at a later stage.
She had it fitted on the 9th October and took to it really well. she has to wear it 23 hours a day for about 3 months.
I have managed to raise a small amount of money doing boot sales.
I have also also managed to get a generous donation from a charity called headstartforbabies.org.
I have decided to start a go fund me page as I’ve been told numerous times by friends and family that there are people out there who look for good causes to donate to. I will continue in trying to raise money and if I exceed my target then I will give the money back to head start for babies so another family on low income can benefit.
She has already shown great improvement in her head shape and when I go next week to the orthotist I hope to see even more improvement.
On the 14th December I will be walking 1 mile per 1% with how much she has improved. Please sponsor me with a donation to show your support.
you can follow her treatment on instagram liliths_new_hat
Thank you
From myself and Lilith
xx
She has Brachycephaly something she has developed from sleeping on her back from a tiny baby. It’s also known as flat head syndrome.
From about 4 months of age I noticed a flat spot on her head so I went to see my health visitor who said it would correct by itself and just to reposition her when I put her down. So I did, I kept her off her head as much as possible and researched all about flat head syndrome and what could be done. I didn’t want to put a helmet on her because I couldn’t bare the thought of covering her beautiful head and I just could not afford it.
Over the the next few months it did improve but by 16 months I wasn’t happy so went back to see the health visitor who said that it wouldn’t improve further on its own.
My next decision was to book a consultation with an orthotist in Cambridge. I was told it would cost £2050 and she was in the moderate to severe category.
Knowing I couldn’t afford it didn’t stop me from saying no. It is classed as cosmetic but I was worried she would be conscious of it when she was older and as the window of treatment stops about her age I know that the money could be sorted at a later stage.
She had it fitted on the 9th October and took to it really well. she has to wear it 23 hours a day for about 3 months.
I have managed to raise a small amount of money doing boot sales.
I have also also managed to get a generous donation from a charity called headstartforbabies.org.
I have decided to start a go fund me page as I’ve been told numerous times by friends and family that there are people out there who look for good causes to donate to. I will continue in trying to raise money and if I exceed my target then I will give the money back to head start for babies so another family on low income can benefit.
She has already shown great improvement in her head shape and when I go next week to the orthotist I hope to see even more improvement.
On the 14th December I will be walking 1 mile per 1% with how much she has improved. Please sponsor me with a donation to show your support.
you can follow her treatment on instagram liliths_new_hat
Thank you
From myself and Lilith
xx
Organizer
Jo Spratt
Organizer
